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Topic: Best place for second opinion

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Aug 13, 2018 05:32PM

macmomma wrote:

My entire "journey" through this has been odd. First, I had a terrible complication from the biopsy--a 9cm hematoma that had to be surgically removed. Then, when they got to the mastectomy, they found no cancer at all in either breast. I want to take all my slides as well as any tissue they have preserved and go to either Fred Hutch or U. Pittsburgh for a second opinion. Any opinions out there?

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Aug 13, 2018 08:42PM edwards750 wrote:

Good grief. I’m not familiar with either facility but definitely get a second opinion. Never heard of such a thing.


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Aug 14, 2018 04:30AM dtad wrote:

macmomma....not familiar with that area but IMO you should go to a university based teaching hospital. Good luck and keep us posted.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 14, 2018 04:48AM Moderators wrote:

macmomma - That situation must be really frustrating! If it helps, here is an article from our main site with helpful information on Getting a Second Opinion. Please, come back to let us know how you're doing!

Best wishes,

The Mods

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Aug 14, 2018 09:51AM macmomma wrote:

Thanks for the encouragement! U Pittsburgh is supposed to have an ILC specialist, Dr. Jankowicz (sp?) I think, and Fred Hutch in Seattle is premier in ILC research and treatment.

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