Aug 24, 2018 06:23PM momand2kids wrote:
sorry you find yourself here-- but it is a good community. The "sneaky" part of ILC is that it often does not show up on a mammogram--many of us were having regular mammograms when all of a sudden (seemingly) a lump shows up-- but in ILC in many cases it has been there for a long time, just not detectable by mammograms. An MRI will be very helpful-- it can give you more specifics about the size of the lump. A biopsy of course is the final word on this.... for many of us, due to our ILC dx, regular MRI's are often part of the follow up protocol (I have one every 2 years along with annual mammograms).. Some people say ILC also is more likely to occur in the other breast--my onc at Dana Farber disputes that-- but just so you know, it is out there. ILC does seem to grow more slowly-- my onc said it was probably in my breast for 10 years...and it was discovered in a clinical breast exam with my regular doctor.
People here can help you, the hospital websites are helpful- we always recommend that you don't google anything-- lots of old and incorrect stuff on the internet. I should say my ultrasound suggested that my tumor was 1.8cm, it ended up being 2.5... others have had the exact opposite happen.
This is the hardest time-- as you are testing and gathering information--once you have it all together you and your doctor can make a plan. You will feel much better then. hang in there.