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Topic: Mri can detect invasive labular carcinoma?

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Sep 11, 2018 02:55AM

Rizz wrote:

hi there

I have heard that ILC is difficult to detect in mammogram and ultrasound.can MRI detect it PLEASE tell me as I have to pay for Mri out of my pocket I have no insurance just to make sure that if mammogram and ultrasound couldnot detect any thing seriousMri would be a good idea or not

Thanks

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Sep 11, 2018 11:26AM Rizz wrote:

PLEASE reply anyone

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Sep 11, 2018 11:30AM - edited Sep 11, 2018 11:31AM by RyansMomma

Rizz, My ILC was found on my MRI. I would definitely get an MRI done to ease your mind. I hope that everything is benign for you. Sending hugs.

Ultrasound had missed my ILC, which doesn't surprise me. It's common with this type of cancer. :(

Dx at 19 years old. I am currently 20. I am a mother of a 6 year old cat named Ryan. He is my little angel! Dx 9/4/2018, ILC, Both breasts, 6cm+, Stage IIIA, Grade 2, 9/11 nodes, ER+/PR+, HER2- (FISH) Surgery 9/4/2018 Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Hormonal Therapy 9/5/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 11, 2018 11:32AM Rizz wrote:

thanks alot ryansMomma

If MRI come back ok means nothing serious does it mean I can relax

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Sep 11, 2018 11:34AM RyansMomma wrote:

Rizz yes. :) MRI's are pretty darn accurate. ILC is the best detected on an MRI. Good luck and I hope for benign results for you. Keep us updated.

Dx at 19 years old. I am currently 20. I am a mother of a 6 year old cat named Ryan. He is my little angel! Dx 9/4/2018, ILC, Both breasts, 6cm+, Stage IIIA, Grade 2, 9/11 nodes, ER+/PR+, HER2- (FISH) Surgery 9/4/2018 Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Hormonal Therapy 9/5/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 11, 2018 11:36AM Rizz wrote:

thanks a lot for ur kind reply I will definatly update :)

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Sep 11, 2018 12:21PM dakrock wrote:

Yes an MRI will show ILC.  Mine did.   It is expensive so I would look for help to have it done

Bonnie Dx 12/4/2017, ILC, Right, 2cm, Stage IA, Grade 2, ER+/PR+, HER2- Hormonal Therapy 12/5/2017 Femara (letrozole) Surgery 2/23/2018 Mastectomy: Right; Reconstruction (right): Nipple reconstruction, Saline implant
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Sep 11, 2018 01:16PM RyansMomma wrote:

I honestly feel that MRI's should be offered as a part of screening for women without family history, since some cancers can get missed on other screening. I feel that then cancers wouldn't be getting missed, especially "sneaky" ILC. I hate cancer. :( I understand if no one agrees with me, just figured I'd give my two cents on the matter.

Dx at 19 years old. I am currently 20. I am a mother of a 6 year old cat named Ryan. He is my little angel! Dx 9/4/2018, ILC, Both breasts, 6cm+, Stage IIIA, Grade 2, 9/11 nodes, ER+/PR+, HER2- (FISH) Surgery 9/4/2018 Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Hormonal Therapy 9/5/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 11, 2018 01:38PM - edited Sep 17, 2018 11:28AM by Rizz

yes u are right ryanMomma

My ultrasound and mammogram are clear I want Mri to be 100% sure but my Dr said no need just 6 months followup. I want to know the cause of indent in my breast thats why I am going to see another Bs .I read alot of stories here that mamo and Us missed their cancer I am afraid :(

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Sep 11, 2018 01:46PM readytorock wrote:

Mammogram and US missed my lobular. It showed on MRI. Best wished to you!

Dx 8/11/2014, ILC, Left, 1cm, Stage IIA, Grade 2, 1/6 nodes, ER+/PR+, HER2- Surgery 9/1/2014 Lumpectomy: Left Chemotherapy 11/10/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 9/20/2015 Surgery Hormonal Therapy Radiation Therapy Whole-breast
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Sep 11, 2018 01:49PM - edited Sep 17, 2018 11:28AM by Rizz

thanks everyone I hope its not cancer I will now definitely ask for a MRI

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Sep 11, 2018 03:08PM kar123 wrote:

My ILC did not show on any imaging except PET/CT. It was 7.5 cm. Even MRI's can fail. Biopsy is the only accurate test.

Dx 6/2010, ILC, 6cm+, Stage IIIA, Grade 2, 2/7 nodes, ER+/PR+, HER2- Chemotherapy 6/28/2010 AC + T (Taxol) Surgery 11/17/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 1/24/2011 Breast, Lymph nodes Hormonal Therapy 4/4/2011 Arimidex (anastrozole) Hormonal Therapy 5/1/2013 Femara (letrozole)
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Sep 11, 2018 03:11PM Rizz wrote:

if mri would fail how it can be diagnosed how they can order biopsy if they wont see anything.what kind of ct scan u had it was for chest or for breast

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Sep 11, 2018 03:12PM Rizz wrote:

plz inform me so I can ask my dr for it

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Sep 11, 2018 03:15PM - edited Sep 11, 2018 03:15PM by Rizz

This Post was deleted by Rizz.
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Sep 11, 2018 03:18PM RyansMomma wrote:

Whoa! Your MRI missed yours? I didn't think that was possible. Thank goodness they found yours. Man ILC is sneaky.

Dx at 19 years old. I am currently 20. I am a mother of a 6 year old cat named Ryan. He is my little angel! Dx 9/4/2018, ILC, Both breasts, 6cm+, Stage IIIA, Grade 2, 9/11 nodes, ER+/PR+, HER2- (FISH) Surgery 9/4/2018 Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Hormonal Therapy 9/5/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 11, 2018 03:20PM RyansMomma wrote:

Rizz, I know this is really scary for you, but try to remain calm. You are in my thoughts. All you can do is just hope for the best. :) I have anxiety over all of this as well. I am worried about the outcome of my life, so I definitely know where you are coming from. I'm hoping for benign results for you.

Dx at 19 years old. I am currently 20. I am a mother of a 6 year old cat named Ryan. He is my little angel! Dx 9/4/2018, ILC, Both breasts, 6cm+, Stage IIIA, Grade 2, 9/11 nodes, ER+/PR+, HER2- (FISH) Surgery 9/4/2018 Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Hormonal Therapy 9/5/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 11, 2018 03:34PM Rizz wrote:

thanks ryanMomma for ur really kind words I was bit relaxed that after MRI I can get peace of mind but after reading that comment I am again very worried even after MRI there is a chance oh GOD

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Sep 11, 2018 05:03PM SoozyCue wrote:

I think it varies person to person. Mine showed up on everything: mammo, US, MRI, CT... I don't know numbers, but it's probably something like the CT being most accurate, then MRI, and on down the line.

Dx 6/25/2018, LCIS/ILC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (FISH) Surgery 8/1/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/10/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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Sep 11, 2018 05:08PM Rizz wrote:

thanks soozyCue

Ct scan means chest ct scan?? I had my ct scan done few months ago because of Wegener granolomatosis..should I take my ct scan report along with me to my Dr on my appointment.please advise

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Sep 13, 2018 12:53AM kar123 wrote:

it was a PET/CT with glucose of my torso. I had a blind biopsy, meaning the breast surgeon made her best guess as they just felt a thickening. Luckily, she was accurate. I am a rare case but not alone unfortunately.

Dx 6/2010, ILC, 6cm+, Stage IIIA, Grade 2, 2/7 nodes, ER+/PR+, HER2- Chemotherapy 6/28/2010 AC + T (Taxol) Surgery 11/17/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 1/24/2011 Breast, Lymph nodes Hormonal Therapy 4/4/2011 Arimidex (anastrozole) Hormonal Therapy 5/1/2013 Femara (letrozole)
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Sep 13, 2018 05:21AM Dani444 wrote:

Mine was seen on mammogram and ultrasound, however measured very differently on both. MRI measured closer to the ultrasound than the mammo. I was sent back for a second biopsy, because of probable satellite lesions behind and in front of the cancer area. I guess they usually do a breast MRI at a certain point in your cycle, unless you are already diagnosed. The spots behind didn't "light up" for the biopsy and they said it was because of where I was in my cycle. Evidently due to the changes in your breast tissue while you are on your period can cause normal tissue to "light up".

DX @ 46, premenopausal, mammaprint low risk Dx 8/21/2018, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 2/3 nodes, ER+/PR+, HER2- (IHC) Surgery 10/25/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Silicone implant
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Sep 15, 2018 12:04PM vlnrph wrote:

Rizz, do be sure to shop around for the best price since you don't have insurance. Some of the free standing imaging centers, not connected to a hospital or clinic, are quite competitive. Of course, they have to have the proper equipment for a breast scan where you lay on your stomach.

Also keep in mind that MRI is sensitive but not specific. Meaning, it will see lots of things without being able to tell exactly what they are. That is why biopsy is required for a definite diagnosis.

You are wise to be educating yourself and seeking a second opinion.

IDC too! Rt MX+DIEP 4-2011; ALND 5-2011 d/t micromets; TC X 4; tamoxifen; lymphedema 9-2011; switch to letrozole 3-2014 for 1 yr; bone mets 8-2018: Zometa, rads to spine, Faslodex/Versenio Dx 3/7/2011, ILC, 2cm, Stage IIA, Grade 2, 1/25 nodes, ER+/PR+, HER2-
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Sep 17, 2018 04:44AM wallycat wrote:

Lobular cancer is tricky to detect because it grows flat and long, not with a traditional "tumor"/mass. Any imaging system can miss something. MRI is typically used to detect lobular cancer but MRIs can also show false positives (my twin had a false positive). My mammogram and ultrasound missed mine but MRI picked it up. Waiting 6 months to follow up isn't unthinkable. Some oncologists even recommend 2x year scans...once w/ mri and another traditional mammogram, to cover all your bases. Good luck.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Sep 17, 2018 05:26AM - edited Sep 17, 2018 05:28AM by Rizz

ohhh false positiveScared

Then what happened with your twin how it was discovered that it was false positiveShocked


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Sep 17, 2018 08:28AM wallycat wrote:

They biopsy the area that lights up on the MRI. Interestingly, both of ours lit up in the same area in the same breast. Her biopsy was benign, so no cancer even though it lit up similar to mine, which was biopsied and was cancer.


Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Sep 17, 2018 10:58AM - edited Sep 17, 2018 12:33PM by Rizz

I can wait for 6 months BUT again they will order mammogram and ultrasound and my question is..if ultrasound and mammogram didn't pick up anyone's ILC first time WHAT are the chances that it can pick it up after 6 months


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Sep 17, 2018 01:13PM - edited Sep 17, 2018 02:12PM by Georgia1

Rizz, my ILC was picked up on a 3D mammogram then confirmed on MRI. I'm not a doctor, but my understanding is that if ILC does appear in your breast at a later date there will be a visible distortion of the breast tissue. (MRI measures how water molecules diffuse through body tissues.) For now, it sounds like you have good news really so please do try to de-stress somehow. Wishing you the best.

Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/27/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 18, 2018 05:37AM Elisabeth_W wrote:

I think ILC that doesn't show up on MRI is the exception rather than the rule. BUT it's important to know that MRI generally can't pick something up until it's 3 mm or larger (about the size of a pea). It also may miss LCIS or DCIS. Rarely larger cancers, which do not take up the MRI contrast material well, may not be detected. (I got this info from a MRI patient consent form and confirmed it with my docs).

My ILC was mammographically occult, but seen on ultrasound and later, MRI. MRI did not detect my LCIS or ALH-which is usually an incidental biopsy finding.

But most ILC is very slow growing. A ILC discovered now that is less than 2 cm has probably been growing for 3-5 years. That was the most fascinating thing I learned when I was first diagnosed. There are exceptions to that, but they are rare. Going back and looking again in six months is considered close surveillance and is the current standard of care.

I can't tell from your initial post. What makes you suspect ILC?

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Sep 18, 2018 11:24AM Del10 wrote:

Mine was picked up on a 3D mammogram and confirmed with biopsies. The 3D mammorgram showed one distortion on my regular scan and when I had to return for additional scanning. The tech caught the other distortion. Ultrasound didn't show anything.

I didn't have an MRI as I had already decided on a BM plus I have two tumors.

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Sep 19, 2018 05:33AM Rizz wrote:

Elizabeth_W I have an indent on my contour of breast which has changed the shape of same breast and sometimes I feel the same breast has shrunken .I had an normal mammogram and ultrasound but they didn't find anything suspicious except the fibroadenomas that I have for 18 years.

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