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Topic: San Antonio Breast Cancer Symposium--ILC

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Dec 1, 2018 01:38PM

macmomma wrote:

I just learned today that there is a Breast Cancer Symposium in San Antonio next week. There is an all-day session on ILC. Is anyone going? I'm thinking about it. I live here, but it will be $225 to go. I can't find anywhere (like Lobular Breast Cancer Alliance) that is live streaming it.

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Dec 7, 2018 12:53PM macmomma wrote: really didn't have any coverage of the ILC symposium. I found the list of abstracts in the ILC symposium, and here's the link. Not much going on with ILC that I can see.

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Dec 7, 2018 03:13PM farmerlucy wrote:

Thanks for the link macmomma. I learned after many, many, posts that a hard return will make your link live.

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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Dec 7, 2018 05:45PM macmomma wrote:

Thanks! This is off-topic for this, but I see that you had a prophylactic oophorectomy. Because ILC likes to metastasize to the ovaries, I am interested in pursuing the oophorectomy. My medical oncologist and a second one I consulted (both breast specialists) said there was "no indication" for a prophylactic oophorectomy with my Stage 1, etc. What made you have one? Did you have a hard time convincing your doctors?

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