JohnSmith
wrote:
Here's some great news for the the Lobular breast cancer community.
The new patient registry is a win for ILC researchers and should ultimately improve patient outcome. More to follow...
https://consultqd.clevelandclinic.org/new-lobular-breast-cancer-registry-will-shed-light-on-rare-disease/
Here's an excerpt to the story:
"Lobular breast cancer is the second most common type of breast cancer from a histological (tissue type) perspective, but it only represents about 10 to 15 percent of breast cancer cases. Because of its rareness, oncologists have tended to view it and treat it in the same way as the more common ductal breast cancer.
But as more research is performed on lobular cancers, investigators are starting to recognize that it has some distinct features apart from ductal cancer, especially with respect to how it metastasizes and its decreased sensitivity to chemotherapy.
With this in mind, scientists from Cleveland Clinic, University of Pittsburgh Medical Center (UPMC), Ohio State University and University Hospitals Cleveland Medical Center are creating a lobular breast cancer registry that will include cases from 1990 to the present.
"Many of us in the community feel like these cancers need some special attention," says Megan Kruse, MD, Hematology and Medical Oncology, Cleveland Clinic. "That maybe it's not best that we treat lobular breast cancer the same as ductal breast cancer. But the challenge in doing so is that lobular breast cancer cases are pretty rare, and so in order to really get a comprehensive look at its characteristics and treatment patterns, you really have to do it across multiple institutions."
Wife was Age 45 at Dx 4/2014. BMX Surgery 6/2014 revealed: ILC, Stage 2 (Multifocal ILC, largest lesion 2.2 cm), Grade 2, ER+/PR+ (95%), HER2-, Ki-67 5-10%, Oncotype 11; Variant in the ATM gene
Dx
4/8/2014, ILC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC)
Surgery
6/26/2014 Mastectomy; Reconstruction (left); Reconstruction (right)
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