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Jan 11, 2019 01:42AM
Jan 11, 2019 01:43AM
My understanding from my team here was that radiation is needed in these situations...
1. If you did a lumpectomy it is a must
2. If after your mastectomy they found that your lymph nodes were affected then radiation would happen.
3. Possibly if you don't have clear margins
At my last appointment I questioned that I have an appointment scheduled with an RO before my surgery and asked if I really needed to keep that appointment as I am having a double mastectomy and so far it seems like my lymph nodes may be OK (they won't really know until my surgery is complete 1/31) BUT I learned at due to my age (41) and my family history (no genes but multiple family members all also with no gene identified) and other factors (multicentric and some other stuff) that radiation is not off the table at this point in my situation. They wanted me seeing the RO ahead of everything due to information they already know, this way if RO deems I need it we can move forward accordingly after surgery without further delay.
I was also told that onco score only relates to wether or not chemo will be benifical.
If I were you I would ask your RO just as you posted on here about what was said to you and hopefully they will be able to clarify a bit more from their end how radiation works and in what situations they deem it necessary and vice versa. Since you have had your surgery already I would hope that they will have all the information needed to make the best decision for your situation. AND of course.....if you don't feel comfortable go elsewhere for a second opinion.
I too would think if you aren't having radiation then he may put the implants in sooner as well. You could always call his office and ask that same question.
I hope your appointment goes well tomorrow and that you do not need to have radiation. (((((HUGS)))))
Diagnosed at 41 with multicentric ILC 4 tumors and LCIS throughout entire breast
12/3/2018, LCIS/ILC, Left, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2-
12/9/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
1/30/2019 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right)
3/13/2019 AC + T (Taxol)