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Topic: 2020 ILC Symposium in Pittsburgh - Save the Date

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Apr 1, 2019 10:05AM

Hipline wrote:

The Lobular Breast Cancer Alliance will be actively involved in the 2020 conference. Sign up for their newsletter to stay up to date!

Pleomorphic ILC, Onco DX score 16 Dx 11/16/2010, ILC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 1/31/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/23/2014 Femara (letrozole)
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Apr 1, 2019 11:05AM leighseattle wrote:

You can also follow LBCA and conference updates on LBCA's facebook page https://www.facebook.com/lobularbreastcancerallian... and/or twitter @LobularBCA. Sign up for newsletters at www.lobularbreastcancer.org


Dx 10/25/2012, ILC, 2cm, Stage IIB, Grade 2, 1/17 nodes, ER+/PR+, HER2-
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Apr 2, 2019 09:55AM Hipline wrote:

There is talk of possibly doing a patient advocate training session on May 13, the day prior to conference start. Organizers are looking for feedback and you can post it on this thread. Thank you.

Pleomorphic ILC, Onco DX score 16 Dx 11/16/2010, ILC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 1/31/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/23/2014 Femara (letrozole)
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Aug 5, 2019 10:04PM Meow13 wrote:

bump

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Aug 6, 2019 09:12AM - edited Aug 6, 2019 09:12AM by Hipline

LBCA members are meeting to talk about the 2020 Conference later this month. The current plan is to do a day of Advocacy Training Workshops for all patients interested (as well as clinicians) on Thursday May 14th. This may include such things as basic science of lobular, research news on lobular and how to be an effective advocate. We will have clinicians presenting some of the workshops. The first Keynote Speaker would be that evening and mark the official start of the conference.

Conference will be May 14 - 16, 2020 and end early afternoon May 16 for those who need to travel home. More updates very soon.

Also, please sign up for the LBCA newsletter to stay in the latest loop on all things lobular. Thank you!

Pleomorphic ILC, Onco DX score 16 Dx 11/16/2010, ILC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 1/31/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/23/2014 Femara (letrozole)
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Sep 28, 2019 01:38AM Meow13 wrote:

Bump for JENT1972.

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Sep 28, 2019 06:27AM - edited Sep 29, 2019 07:35PM by Mavericksmom

This Post was deleted by Mavericksmom.
Dx 6/6/2003, IDC, Left, 1cm, Stage IA, Grade 1, 0/24 nodes, ER+/PR+ Dx 12/4/2018, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH)
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Sep 28, 2019 08:45AM - edited Oct 23, 2019 08:35PM by Hipline

I was at the recent conference in Cleveland and the moderators did their best in trying to field questions from over 350 people in a short time. There were a lot of questions left on the table and it goes to show how great the need is for information to the lobular community.

Pittsburgh 2020 is a different type of meeting. It will be a day focused on patient education and learning about advocacy and then a day and a half presenting research and clinical updates geared towards medical professionals and research advocates.

We will make every effort to record the session in Pittsburgh 2020 but it will depend on cost and if we can raise the funds. But note that the one day "Lobular Boot Camp" geared towards patients and advocates will have researchers and clinicians speaking about lobular and experienced advocates speaking about things we as patients can do. This is May 14 and you could come for that day only and learn a tremendous amount.

We hope to have schedules and registration available by early November and I will update as soon as we know more.


Pleomorphic ILC, Onco DX score 16 Dx 11/16/2010, ILC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 1/31/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/23/2014 Femara (letrozole)
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Sep 28, 2019 12:33PM - edited Sep 29, 2019 07:28PM by Mavericksmom

This Post was deleted by Mavericksmom.
Dx 6/6/2003, IDC, Left, 1cm, Stage IA, Grade 1, 0/24 nodes, ER+/PR+ Dx 12/4/2018, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH)
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Sep 28, 2019 01:00PM - edited Oct 23, 2019 08:35PM by Hipline

We will be generating some promotional material in the upcoming months. I will post when we have that available and offer it to anyone interested in spreading the word.

Once the agenda is set in November, you can share it with your medical team and they can decide if it is something they are interested in. There will be both researchers and clinicians present. Here is a link to a "save the date" that can be printed and shared in the meantime. Thanks!

Pleomorphic ILC, Onco DX score 16 Dx 11/16/2010, ILC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 1/31/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/23/2014 Femara (letrozole)
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Jun 17, 2020 08:17AM WndrWoman wrote:

I know the symposium has been rescheduled for November. On the website it says hotel reservations with the discount need to be made by a date in April. Is that correct or does it need to be updated? Thanks

Dx 10/2014, ILC, Left, 1cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 10/15/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Hormonal Therapy 11/11/2014 Arimidex (anastrozole) Radiation Therapy 12/16/2014 Whole-breast: Breast
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Jun 17, 2020 11:43AM Hipline wrote:

Hi,

I think there will be an announcement coming out in the next week or so with details about the future symposium. You are correct, the hotel information is wrong and needs updating. I will help make sure all pertinent information is shared when there are some more details. Thanks for pointing that out!

Pleomorphic ILC, Onco DX score 16 Dx 11/16/2010, ILC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 1/31/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/23/2014 Femara (letrozole)

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