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Topic: Zometa

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Apr 17, 2019 11:27PM

everetta wrote:

Has anyone taken Zometa to reduce chance of recurrence and how did they feel after taking it. I have been recommended it and am getting myself prepared.

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Apr 17, 2019 11:46PM reflect wrote:

I get zometa infusions every six months to strengthen bones that are being weakened by AI and also to prevent bone mets. I have had no trouble at all with it I’m happy to say! Good luck!

Hormonal Therapy 9/20/2015 Arimidex (anastrozole) Radiation Therapy 9/30/2015 Breast, Lymph nodes Dx 2/3/2016, DCIS/IDC, Right, 1cm, Stage IIIA, Grade 2, 7/17 nodes, ER+/PR+, HER2- Chemotherapy 2/24/2016 AC + T (Taxol) Surgery 9/13/2016 Lumpectomy: Right; Lymph node removal: Sentinel, Underarm/Axillary
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Apr 18, 2019 12:00AM everetta wrote:

Thanks so much. I hope I will have the same response. The doctor said sometimes people feel flu like for a few days. Was the infusion comfortable and how long does it take? Do you have any side effects from it?

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Apr 18, 2019 01:53AM Krissy37 wrote:

Hello,

I will be having my second Zometa infusion next week. I experienced flu like symptoms for 2 days after my first Zometa infusion. I was SO ACHY I could hardly stand it! I did have some bone pain too for a few days. I had my port still in when I did the first infusion- real simple, I was in and out of the oncology office in 30 minutes. There are no pre meds and I didn't experience any nausea. And so far no lingering side effects. My infusions are given every 6 months to prevent bone mets and strengthen my bones.

I no longer have my port so I'm dreading the IV in my hand for the next infusion. My Oncologist said the same, some have a reaction, some do not. I may be just fine this time. I will post my experience next week

Dx 3/19/2008, DCIS, Right, 5cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+ Radiation Therapy 7/10/2008 Whole-breast: Breast, Chest wall Dx 11/6/2017, IDC, Right, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2- (IHC) Surgery 1/25/2018 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Latissimus dorsi flap Chemotherapy 3/29/2018 AC + T (Taxol) Chemotherapy Xeloda (capecitabine)
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Apr 18, 2019 06:24AM everetta wrote:

Thanks for the response. Did you feel back to yourself after 2 days. I heard you can feel achy for a couple of days but you would feel better by the third day. I have to travel and do something important 5 days after. Did you feel ok by then? I am wondering if I should postpone the treatment or if I will feel fine within 5 days.

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Apr 18, 2019 06:53AM bravepoint wrote:

I also go for a Zometa infusion every 6 months. After the first one, I felt so achy I could hardly move the next morning. I took some Tylenol and felt fine. I have had no issues at all after the next 3 infusions. The last one, the nurse tried to put the IV in the back of my hand. I almost passed out. She went back to my arm after that. Hope all goes well. You should be fine 5 days after to travel.

Gail Radiation Therapy 4/17/2016 Whole-breast: Breast, Lymph nodes, Chest wall Dx 8/8/2016, IDC, Right, 1cm, Stage IIA, Grade 3, 1/5 nodes, ER+/PR-, HER2- Surgery 8/28/2016 Chemotherapy 10/6/2016 AC + T (Taxol)
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Apr 18, 2019 07:04PM dakrock wrote:

I have had 2 Zometa IV's and no problem with either.  The first day is fine the second day a little achy but so use to be achey it really didn't bother me.  I get them every six months and takes about 30 mins. 

Bonnie Dx 12/4/2017, ILC, Right, 2cm, Stage IA, Grade 2, ER+/PR+, HER2- Hormonal Therapy 12/5/2017 Femara (letrozole) Surgery 2/23/2018 Mastectomy: Right; Reconstruction (right): Nipple reconstruction, Saline implant Hormonal Therapy Arimidex (anastrozole)
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Apr 18, 2019 08:21PM Simbobby wrote:

Thanks Ladies

Perfect timing on this thread. I’m have my first infusion tomorrow. I was told about it right after I had my port removed. My oncologist said it’s only about a five minute infusion. I too will get it every six months. I’m most nervous about the needle. They can only use my left arm. Thanks for the info

Dx 9/15/2017, IDC, Right, 6cm+, Stage IIIB, Grade 2, ER+/PR+, HER2+ Chemotherapy 10/8/2017 AC + T (Taxol) Surgery 3/29/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right Dx 4/3/2018, Right, 24/26 nodes Hormonal Therapy 4/9/2018 Femara (letrozole) Surgery 3/11/2019 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall

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