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Topic: MRI measurement of ILC

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: May 16, 2019 10:54AM

Melmatt wrote:

Hi everyone, I’m new in “town”—just diagnosed with ILC. I had an MRI on Monday and from what I’m reading it sounds like the measurements could be a lot different on MRI from what the ultrasound said. Any personal experience that anyone would like to share? Thank you in advance!!

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May 16, 2019 11:44AM wallycat wrote:

**raising hand***

Yes, I was told 7mm and it turned out to be 1.8cm. Of course, I know gals that had the reverse; told it would be bigger and it turned out smaller.

Best to you!

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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May 16, 2019 01:40PM Pinky24 wrote:

my impression is that MRI usually shows larger than ultrasound, but I’m not sure if that’s true across the board. They really don’t know what’s there until surgery and pathology.

Dx 10/23/2018, ILC, Right, 6cm+, Stage IIIC, Grade 2, ER+/PR+, HER2- Chemotherapy 11/7/2018 AC + T (Taxol) Hormonal Therapy Radiation Therapy Surgery Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right
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May 16, 2019 01:44PM Melmatt wrote:

thanks ladies—the waiting is making me crazy but I will know tomorrow!!!

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May 16, 2019 03:17PM wallycat wrote:

From everything I've read, ILC size is less important than for IDC, if that is helpful at all.

Interestingly, my mammogram AND my ultrasound found ZERO tumor. None. They wanted to send me home and see them the following year.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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May 16, 2019 03:21PM Meow13 wrote:

Mine was the what the MRI showed but not sure my ILC was typical, it was a very distinct tumor 1cm almost identical to my 1cm IDC tumor. MRI was very accurate in my case.

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May 28, 2019 04:22AM Stanford wrote:

Hi- my mammogram showed a 9mm mass and the mri showed 11mm. When they removed the tumor it measured 11mm. This was the first year I had a 3D mammon’s. Curious if it would have been seen in a regular mammogram

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Jun 10, 2019 11:06PM OnTarget wrote:

A late bump on this-

My ultrasound showed 2.7cm, MRI showed 2.9cm plus a 2cm area behind it that was susipcious.

The actual tumor was 3.0, plus the tissue around it had a lot of atyipcal hyperplacia.

Diagnosed at 42, Oncotype score 16, ITC in one node- considered node negative Dx 4/8/2019, ILC, Left, 3cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 4/23/2019, ILC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/15/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/13/2019 Zoladex (goserelin) Chemotherapy 8/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/6/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jun 10, 2019 11:14PM Meow13 wrote:

yes I had a suspicious area on mri that turned out to be normal tissue.

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