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May 25, 2019 04:54PM
Chrissy, having breast cancer, no matter the type, is frightening and concerning. People will tell you not to worry, but if you find a way to do that please let me know, it never worked for me!
I had IDC in 2003, small tumor, treated with a lumpectomy, removal of fat pad with 24 lymph nodes because my sentinel node biopsy failed, a re-excision for clean margins, chemotherapy and radiation. I tried the Tamoxifen as I was pre-menopausal at the time, but didn't like it so I stopped it, but still continued follow up visits with my medical oncologist. Everyone told me I would most likely never get cancer again.
The day before my surgery in 2003, my elderly mother was diagnosed with IDC. A year to the day I had my biopsy my sister was diagnosed with IDC and lymphoma at the same time. About two months after my surgery this year my other sister was diagnosed with IDC, yet I am not positive for BRCA 1 or 2.
As each year passed I was sure I would never get breast cancer again. Then 15 1/2 years later I went for a diagnostic mammogram because I had pain in the breast I had cancer in. My mammogram was fine, but they did an ultrasound because of my pain and that is when they saw something suspicious and told me I needed a biopsy. I literally went into shock when I got the call that I had ILC.
I was treated with a mastectomy and now I am on Letrozole.
I feel like I should be an expert after all I have been through, but the truth is, I am the same as you, looking for answers to so many questions and feeling helpless and worried.
I am not sure of your age but ILC does seems to respond well to Aromatase Inhibitors. I assume you have a breast surgeon and hopefully have seen or will see him/her soon. The breast surgeon is the starting point as surgery is always part of treatment. He or she will tell you what you need next.
If you go on the Main Site of this website you will find a lot of information on lnvasive lobular carcinoma. Also, the women on this message board are amazing and I have learned so much from them.
My advice is to take one step at a time, one day at a time. It isn't easy, I know as I have to remind myself of that too. If you are afraid you are going to die, don't be. People don't die of breast cancer, they die from it spreading to other places in the body and even then, most women live many, many, years with the help of new treatments. The fact that yours is in an early stage is very good news!
Hopefully you will get a lot of responses here. Have you see a breast surgeon? ((((cyber hug)))) I think the worst part both times I had breast cancer was waiting for a diagnoses. Once you see your doctor at least you will have a treatment plan. Breast cancer is full of waiting, having a test, waiting, getting result, waiting..... It does get easier to relax in between tests and appointments. Hope this was helpful.
6/6/2003, IDC, Left, 1cm, Stage IA, Grade 1, 0/24 nodes, ER+/PR+
12/4/2018, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH)