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Topic: Can ILC be grade 1?

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Sep 2, 2019 10:48AM

JudyO wrote:

In my path report it said ILC grade 1. Is this possible?

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Sep 2, 2019 04:26PM Meow13 wrote:

Judy I think it can, by definition I believe the tubile formation is ranked 3 but nuclear grade and mitotic score could be 1. On Nottingham score 3-5 total is grade 1. My ILC was a Nottingham score 6, grade 2. Tubular score 3, no formations found, nuclear grade was 2, and mitotic score 1.

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Sep 2, 2019 04:34PM JudyO wrote:

My was graded 1 but see mostly 2 or 3 so wondering if an error was made. Thnak

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Sep 3, 2019 09:01AM claireinaz wrote:

It's very possible. And very lucky. ILC tends to grow more slowly than IDC, etc. so very possible it is grade 1.

Claire in AZ

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Sep 3, 2019 09:28AM arizonaboundgal wrote:

Hey Judy. Yes, mine was given a grade 1.

Enjoy every sandwich--Warren Zevon
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Sep 3, 2019 09:29AM Runrcrb wrote:

yes very possible. Mine was grade 1. As others mentioned grade 1 is good.

Dx 6/27/2016, IDC, Right, 1cm, Stage IIB, Grade 1, 4/10 nodes, ER+/PR+, HER2- Dx 6/27/2016, ILC/IDC, Right, 2cm, Stage IIB, Grade 1, 4/10 nodes, ER+/PR+, HER2- Surgery 9/22/2016 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/9/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/23/2017 Aromasin (exemestane) Surgery 12/13/2017 Reconstruction (right): DIEP flap
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Sep 3, 2019 09:57AM JudyO wrote:

Thanks for the replies. I was diagnosed in 2008 grade 1 2.2 cm and 7 positive lymph nodes. I did AC and T then 10 years of arimidex. I worry because I am PR neg high ER. Hopefully the arimidex kicked butt. Some say it works for PR neg others no.Now at 11 plus years I am having scans due to back issues...hopefully just arthritis. I had put it all in the back corner of my mind now the worries are overwhelming agai

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Sep 3, 2019 03:47PM beach2beach wrote:

Mine was also grade 1.

Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/12/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 4, 2019 07:17AM - edited Sep 4, 2019 07:18AM by dakrock

What does it mean if it says Stage 1A Grade 2

Bonnie Dx 12/4/2017, ILC, Right, 2cm, Stage IA, Grade 2, ER+/PR+, HER2- Hormonal Therapy 12/5/2017 Femara (letrozole) Surgery 2/23/2018 Mastectomy: Right; Reconstruction (right): Nipple reconstruction, Saline implant Hormonal Therapy Arimidex (anastrozole)
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Sep 4, 2019 05:16PM Georgia1 wrote:

Hi Dakrok. The main part of this site has info on stage and grade. Here is a place to start:

https://www.breastcancer.org/symptoms/diagnosis/st...


Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/26/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 12, 2019 09:28PM karen1956 wrote:

yes, I was stage 3A, grade 1 - ILC


Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Sep 23, 2019 07:35PM robinblessed54 wrote:

Judy, Yes, mine was grade 1. That means it is slow growing and is a plus. Especially since ILC is very sneaky and may be hard to detect. I am almost 5 years on Femara (Letrozole). Have most of you long term ILC survivors doing more than 5 years? My MO said I can stay on longer if I wish. It is like a security blanket. I don't have side effects that hinder my daily life like I did on the other two AIs.

Take care, Robin


Dx 9/2/2014, ILC, Left, 1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2- Surgery 9/25/2014 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 10/15/2014 Arimidex (anastrozole) Hormonal Therapy 12/30/2014 Aromasin (exemestane) Surgery 3/5/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 3/14/2015 Femara (letrozole) Surgery 12/21/2016 Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo
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Oct 6, 2019 06:13PM karen1956 wrote:

yes - I was stage 3, grade 1

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Nov 9, 2019 06:53PM LillyWasHere wrote:

I am stage !B, grade 1. I had double mastectomy in September and I started Lupron and will be starting Letrozole. Grade 1 means grows slow, however, it spread when the guard is down after 5 years.

Dx 7/31/2019, ILC, Left, <1cm, Stage IB, Grade 1, 2/5 nodes, ER+ Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 10, 2019 09:00PM - edited Nov 10, 2019 09:00PM by karen1956

This Post was deleted by karen1956.
Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,

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