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Oct 1, 2019 11:13AM
Hi Mac5, you may want to post your question as a new thread, as this is only about the CYP2d6 test. :)
Ok Wander, I feel I did answer all those items, but if you choose to disregard my answers then it's up to you. Bottom line is this:
1) You can order the Tamoxifen test directly from Kailos Genetics or another certified lab. I personally recommend the Complete RX test as it does more than just tamoxifen and is super beneficial. Insurance is not billed and has no knowledge of any of this.
2) You pay with a credit card and tell them your doctor's contact info - which doesn't have to be your oncologist, it can be any doctor, even a holistic one.
3) you then inform that doctor you are ordering a test, paid out of pocket and just need them to sign for it. You don't ask permission, you inform them that is what you want and since it's not being billed to insurance, they need to do it.
4) You then decide if you want to request an endoxifen test from your doctor.. and if your doctor 'WONT', you then decide to bypass them and do the testing yourself through numerous labs across the country that test for Endoxifen.
Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now.
5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2-
6/1/2016 Lymph node removal: Sentinel
6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
7/7/2016 Mastectomy: Left, Right
7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)