HI. I have been reading ILC info on this site for months, but was afraid to sign-up. After seeing my MO yesterday, I thought it was time to reach out. I went into my BMX surgery thinking I had 2.1cm and 1.0cm tumors ER/PR+ (90/90 for one tumor and 100/100 for another). I was also HER2- with no nodal involvement showing on CT, US, or MRIs. When I woke-up, they did do the BMX, but I found out that a sentinal node had tested positive and they took the rest (level II aux). End result was that 3/21 nodes taken were positive (largest .5, did not go through LN = no extra capsular involvement / 2 LN were Macro and 1 was Micro). There was also a 3rd tumor in between the other two and very little ones scattered around at .1, etc. Yes, there was lymphovascular invasion. Oncotype was sent out - not back yet (I understand the issue with that and ILC). Surgeon says I was Stage 2B after surgery. Only Atip in my other breast.
Here's where I would absolutely love some input. I went to my MO yesterday and he said that I automatically get Chemo because of the LN involvement. He does not know why the surgeon sent out for the Oncotype if there was LN involvement. Then he started talking about ports, etc. and said I would have radiation after and then endocrine therapy. There was no other discussion - just if there are LN, then right to Chemo. No % of recurrence and how Chemo would help, no lobular discussion (I thought i read that Chemo does not always work well for lobular), etc.Just if you have any positive LN, then you have to have Chemo - end of discussion.
Do any of you know if this is the normal way of doing things? I have been crying on and off for about 24 hours, very scared, and this is the first I have heard of a lot of this. Should I get a second opinion at a larger university-type hospital, and if so, what should I be asking about? Does the Oncotype matter in my situation? I am
DX 7/2019; BMX 9/1/2019; 3/21 nodes (micro, 2 macro)
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