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Help with Abbreviations

Topic: Frustration

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Oct 19, 2019 08:46AM

JudyO wrote:

I try to do research about ILC but it is so limited...I get frustrated. It is worse than ILC and more often recurs after 7 years. That makes me believe the online calculators are not for us (predict and Lifemath). I have read people questioning onco type testing for ILC (saw new lobsig). I am PR - and that really has no research other than it is very bad. I see arimidex better for ILC but how much and for who...I see chemo doesn’t work as well but for who does it work..

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Oct 19, 2019 05:52PM - edited Oct 19, 2019 06:03PM by trinigirl50

This Post was deleted by trinigirl50.
trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/13/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Oct 19, 2019 11:53PM trinigirl50 wrote:

https://lobularbreastcancer.org/

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/13/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Oct 20, 2019 08:06AM Moderators wrote:

Hello, Judy! On the following pages of the main Breastcancer.org site you can learn more about diagnosis and treatment of invasive lobular carcinoma:

Invasive Lobular Carcinoma: Symptoms, Diagnosis, and More

Hope this helps!
The Mods
To send a Private Message to the Mods: community.breastcancer.org/mem...
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Oct 20, 2019 11:31AM momand2kids wrote:

Hi there-

so sorry you are so frustrated-- I just wanted to check in --I was ILC- I am 11 years out--- feel great-- not sure what the future holds but for now I assume I am healthy!!!! Research is helpful and it is good for us to know what is happening- you may want to talk to your onc- or the Lobular Alliance.... they might have some additional information. Hopefully that will help you ... all the best


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Oct 20, 2019 11:32AM momand2kids wrote:

Judy,

I should add I had 4 rounds of chemo and was on letrozole for 5 years (along with lupron for 3 as I was pre-meno).... chemo was based on my oncotype which was in the intermediate range at the time....


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)

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