I just found out 2 days ago that I have ILC in my right breast. I just turned 41 years old, have a 2 year old at home, and am 38 weeks pregnant. Its like I'm living one of those horrible talk shows where folks' stories are almost too bad to be real.
For me it was as if one morning I woke up and my right breast was hard with an inverted nipple. It seemed to happen so fast. At first my doctors and I thought it was related to the pregnancy - swelling, engorgement and inverted nipple - but we did an ultrasound and one core biopsy to be safe. ILC, ER+, HER2-, My family doc said that the hormones from pregnancy likely caused it to grow faster. I see a surgeon in a few days for a consult, if I'm not in active labour at the time. Surgery likely in April.
I've been trying to research and read through past posts but its difficult with so much other planning to do. I have pregnancy appointments and planning and have to plan for additional care to help with a newborn and toddler while I'm recovering from surgery and then who knows what else after that. My hubby is amazing but can only do so much. I'm planning for a long journey, I hope a successful one. I'm terrified of leaving my husband and two young children without a mother.
I guess I'm just reaching out for any help folks can give on where to start with limited time to read over stuff. What do I ask my surgeon? I have the list from the main board but a lot of doesn't seem applicable (I either already know it from the pathology report, or the doctor won't know it prior to surgery). What is the prognosis for ILC overall - some stuff I read is positive and other stuff very negative. I want to know what it is I'm facing, realistically. The whole "you will beat this! you'll be just fine!" from well meaning family members isn't particularly helpful when they (nor I) have any idea how serious this "thing" is that I'm supposed to beat. What are other key things to know about ILC from folks who have been there, done that, know what it is? Any key points are greatly appreciated!
Also to note, if its important - I'm located in Canada. A major city so there are a lot of options and leading experts around.
Thanks everyone. I'm already grateful to have found this group.
3/3/2020, ILC, Right, 6cm+, Stage IIIC, Grade 3, 40/40 nodes, ER+/PR+, HER2- (IHC)
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