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Jul 20, 2020 08:45AM
MsLivvy, I’m sorry you have ILC. The fatigue you felt could have been due to the ILC, but as you have seen from the responses, not everyone had that symptom. I was tired a lot before my diagnosis, but I was working a lot and didn’t think anything of it. In hindsight, I also remember that my right breast had been itchy, but it wasn’t constant or severe enough for me to think it was anything more than just some irritation from wearing a bra. As they say, hindsight is 20/20, and if I knew then what I know now I would have immediately insisted on an MRI. But I don’t dwell on what could have been, I’m just focused on today.
I’ve had 6 biopsies, 2 prior to BC. The first one was done by a resident. It must have been his first time because he had a lot of difficulty getting the needle in the right place and eventually the supervising doctor took over. With so much jabbing internally, that one hurt for several weeks and I had a nice bruise. The biopsy of my lymph node as hurt more than the others. I don’t think that the fact that you have residual pain in your breast has any bearing on your prognosis.
MRI is the best tool for identifying and measuring ILC. My ILC was never visible on mammogram (tomosynthesis/3D digital) and it was missed by ultrasound for 2 years. It is not uncommon for the ultrasound measurement to be wrong compared to MRI and surgery. The MRI with contrast does help to highlight where the cancer is located.
Surgery is obviously definitive. There are lots of pros and cons for what type you do that you can read about on this forum. Whatever you decide, just know that we are here to support you.
Whether or not you are HER2+, will likely determine your course of treatment with your oncologist.
Hang in there! The waiting is hard. The uncertainty is hard. I hope you are early stage. If you are, I hope you are like my mother who lived 30 years before a recurrence and is still doing well 3 years after the recurrence. If you are a later stage like me, take comfort that the treatments are much more effective now and you CAN live well despite having cancer
6/17/2019, DCIS/ILC, Right, 5cm, Stage IV, metastasized to bone, Grade 2, ER+/PR-, HER2+ (FISH)
8/1/2019 Perjeta (pertuzumab)
8/1/2019 Carboplatin (Paraplatin), Taxotere (docetaxel)
10/9/2019 Abraxane (albumin-bound or nab-paclitaxel)
10/10/2019 Herceptin (trastuzumab)
3/18/2020 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
6/1/2020 3DCRT: Breast, Lymph nodes, Bone
8/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)