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Topic: I have ILC and no rads or chemo but take Arimidex. Anyone else?

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Sep 20, 2020 07:24PM - edited Sep 20, 2020 07:25PM by Suzanne89

Suzanne89 wrote:

Feel lucky I didn't have to do chemo or rads, but was wondering if there are others out there. I do take Arimidex. Thank you.


Surgery 11/28/2013 Lumpectomy: Left Dx 11/7/2018, LCIS/DCIS/ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+ Surgery 12/26/2018 Lumpectomy Hormonal Therapy 4/4/2019 Arimidex (anastrozole)
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Sep 20, 2020 08:16PM Catsme wrote:

Hi Suzanne,

I had ILC, had a double MX, no rads or chemo. I too feel lucky. I do take Arimidex every day. Tolerating it well.


Dx 12/7/2016, ILC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 1/3/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 1/19/2017 Arimidex (anastrozole)
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Sep 20, 2020 08:25PM Suzanne89 wrote:

I had lumpectomy. Clear mamo this month :). Thank you for responding

Surgery 11/28/2013 Lumpectomy: Left Dx 11/7/2018, LCIS/DCIS/ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+ Surgery 12/26/2018 Lumpectomy Hormonal Therapy 4/4/2019 Arimidex (anastrozole)
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Sep 20, 2020 09:11PM LillyIsHere wrote:

Suzanne, did you have node involment?

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/29/2019 Femara (letrozole) Targeted Therapy
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Sep 20, 2020 09:18PM KBL wrote:

I am diagnosed de novo Stage IV, and I’m on Ibrance and Letrozole with ILC. I did not have a mastectomy, and I’ve had no chemo or radiation. I’ve been on this combo since June of 2019.

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine)
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Sep 20, 2020 10:18PM Suzanne89 wrote:

no node involvement

Surgery 11/28/2013 Lumpectomy: Left Dx 11/7/2018, LCIS/DCIS/ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+ Surgery 12/26/2018 Lumpectomy Hormonal Therapy 4/4/2019 Arimidex (anastrozole)
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Sep 20, 2020 10:20PM MinusTwo wrote:

Suzanne - can you go to My Profile and fill in your diagnosis & treatment to date? It would help to see that information.

I thought everyone who was not de novo Stage IV had radiation after a lumpectomy.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 20, 2020 11:00PM Suzanne89 wrote:

I think I did that right. Can you see I had LCIS in 2013 and ILC in 2018? I was told it was too small to do radiation. But I am on Arimidex. Thank you Minus 2. I haven't been on this for a while.



Surgery 11/28/2013 Lumpectomy: Left Dx 11/7/2018, LCIS/DCIS/ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+ Surgery 12/26/2018 Lumpectomy Hormonal Therapy 4/4/2019 Arimidex (anastrozole)
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Sep 21, 2020 01:25PM GlobalGal wrote:

I was diagnosed with de novo stage 4 breast cancer whichwas found in 3 neck central lymph nodes following thyroidectomy for papillary thyroid cancer. The pathologist said it was “possibly lobular”. I have had 3 PET scans with no evidence of disease so far, thus no surgery or chemo or radiation, just Anastrozole.

2019, de novo stage IV metastatic breast cancer to 3 central lymph nodes in neck following thyroidectomy for papillary thyroid cancer WITH NO PRIMARY BREAST CANCER IDENTIFIED. 10/2021, multiple multifocal liver and bone mets identified on PET scan. Dx 3/20/2019, Stage IV, metastasized to bone/liver/other, ER+/PR+ Hormonal Therapy 6/4/2019
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Oct 8, 2020 05:52PM jessie123 wrote:

Will you be having a yearly MRI? I was stage 1B, but the tumor was 2cm - no nodes. I did have radiation, but have refused the drugs. I thought all ILC patients who have lumpectomies must have the dreaded yearly MRI since ILC usually doesn't show up on Mammograms.

Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/15/2019 Whole-breast: Breast
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Oct 9, 2020 12:16AM Suzyshacklechick wrote:

jessi, I go to my Dr. for my 6 month blood check for Arimidex. I will ask him then. So far I haven’t had MRI after surgery

Dx 11/2/2018, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 12/27/2018 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 2/19/2019 Arimidex (anastrozole)
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Oct 14, 2020 08:04PM - edited Oct 14, 2020 08:06PM by beach2beach

ILC , no chemo or rads. I did a BMX. Take tamoxifen though.

I feel lucky also. I still sometimes feel guilty. When I said that to my gyno he told me that "you did not ask for cancer, nor for the type, the size, not anything about the cancer. You got what you got. Still is cancer.

Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/12/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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