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Oct 18, 2020 08:41AM
I was diagnosed with ILC and a positive node back in March, but had a second round of biopsies done after my MRI showed additional areas of concern and that pathology was inconclusive and they called it IDC. My MO says I have IDC, DCIS, with a "lobular component"?? Whatever that means? Anyway, we knew immediately that I had at least one positive node and the CT scan showed potentially more, so when they performed my mammogram, they took all level 1 axillary lymph nodes as well. Prior to my surgery, the MO ordered CT with contrast and a nuclear bone scan to look for any metastatic signs, thankfully they were mostly clear (some enlarged supraclaviclar nodes and a couple "bone islands" are being watched). I had a low Oncotype score, but given my age and the 4 positive lymph nodes, my MO recommended 4 rounds of TC chemo and I also completed 15 rounds of accelerated radiation treatments. I just started ten years of hormonal therapy with anastrozole. The biggest concern for my MO regarding the "lobular component" is a fear of a new cancer in the opposite breast. She said that we will need to monitor the right breast closely as lobular cancer seems to be mirrored on the other side and harder to detect. I wish I had the opportunity to do a double mastectomy so that I didn't have to worry about every ache and pain, but with COVID it was considered "elective" and as there was no evidence of disease, it was not allowed. Just had a mammogram on Friday and things looked good!
The summer before my BC diagnosis, my eye doctor discovered a "chorodial nevus" in my left eye and once I learned I had cancer, I panicked worrying that it was indeed cancer too. A visit to the ophthalmologist ruled out cancer, but nevertheless, I am always worried about it. I did suffer from episcleritis (an inflmammation of the eye) and was treated with steroids for a month during my chemotherapy. There have definitely changes to my vision in the last year, so plenty of reasons to worry, but the ophthalmologist seemed very confident that I shouldn't need to. Trust your eye doc and don't let it panic you ;).
You are quite lucky that your cancer is ER/PR+2 HER- as that means you have many effective treatment options available and a better prognosis! Chemo is probably in your future, and it is tough, but you can do it and there are wonderful ladies here to support you. It's natural to worry that every new pain or strain is a possible spread, but having a little faith and taking things one day at a time is all we can do. My therapist said to me that the only thing we can control is our positive attitude and that is definitely one thing that I won't let cancer steal from me! You got this!
3/2/2020, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 2, 4/22 nodes, ER+/PR+, HER2- (FISH)
4/10/2020 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy; Reconstruction (left): Tissue expander placement
5/25/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
9/14/2020 Whole-breast: Breast, Lymph nodes, Chest wall
10/12/2020 Arimidex (anastrozole)
6/10/2021 Prophylactic mastectomy: Right