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May 21, 2021 06:25PM
May 21, 2021 06:30PM
Sorry you are here. I was just diagnosed with ILC on the 14th of May. Although if I am honest, I knew I had cancer on the 7th based on the conversations with the Radiologist and Ultrasound tech. The Biopsy on 10th didn't give me any comfort based on the conversations they had with me as well as introducing me to the nurse navigator that day.
I had known something was wrong for over a year, I went to breast specialists, my regular doctor, more mammograms/ultrasounds and everyone told me sometimes nipples just invert as they didn't see anything on any images. Now I have over a 6cm tumor and who knows what else. I am so angry with myself for not pushing harder. Needless to say, none of those doctors are treating me now.
My diagnosis so far is ILC ER +, PR+, HER2-. My Ki67 score is between 5 and 10%, it is preliminary Grade 2. I also have Neurofibromatosis Type 1. I had an MRI today and they said I should know more Monday. I meet with the breast surgeon on Thursday of next week, although the nurse navigator gave me a heads up my BS may refer me to the MO and discuss me having chemo before surgery so I need a MO in mind, which I have picked, so I can be scheduled if that is the route she thinks she needs to get clear margins.
Looks like we will be going through this journey over a similar timeframe. I am nervous and scared too. I have a husband that I adore and an 9 year old son that is everything to me. The uncertainty is crazy.
But we have got this!! Positive thoughts and good vibes sent to the universe for you!!
41 at diagnosis. Neurofibromatosis Type 1 (Diagnosed at 5 years old). MammaPrint: Low-Risk
5/14/2021, ILC, Left, 6cm+, Stage IIIA, Grade 1, 4/14 nodes, ER+/PR+, HER2-
6/21/2021 Mastectomy: Left; Prophylactic mastectomy: Right
7/12/2021 Lymph node removal: Underarm/Axillary
8/9/2021 AC + T (Taxol)