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Topic: Confusion with my diagnosis after 15 months !!!

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: May 22, 2021 01:17AM

MyaC wrote:

I just presumed I was ILC after reading Lobular on my Pathology report...so just by chance someone who was recently diagnosed wanted to see my pathology report so I dug it out and took a picture and posted it.....I’m Triple + my tumour was 3.2cm and the top line said it was Lobular..after reading it properly ,like 15months later it said ...Lobular Carcinoma In Situ...My Treatment was DMX first and they found DCIS 1.5cm in my “good breast” that was Hormone + only, no Lymph nodes were positive or no LVI...had TCH x6 and Herceptin x11 finished that in march...on Anastrozole since June 2020....My question is what is the recurrence for LCIS and DCIS compared to others like ILC and IDC...I am Her2+ to add in the mix

Tripe + ILC...DMX February 2020..0/8 Lymph Nodes..No LVI...Chemo .TCH x6...Herceptin x12..Anastrozole 10 years
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May 22, 2021 01:42AM Redcanoe wrote:

If you did chemo and herceiptin, it was either ILC or IDC with LCIS present. They don't do chemo for in situ.


for example, I have IDC but DCIS is mentioned on every pathology report.

Toni - age 34, mom to 4 kids ages 11, 8, 5 and 3 Dx 11/19/2020, DCIS/IDC, Right, 2cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 12/14/2020 Lumpectomy: Right Chemotherapy 1/11/2021 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/11/2021 Herceptin (trastuzumab) Radiation Therapy 6/9/2021 Whole-breast: Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 22, 2021 02:51AM MyaC wrote:

OK so it can be LCIS and ILC at the same time ...just confused when they mentioned it was LCIS

Tripe + ILC...DMX February 2020..0/8 Lymph Nodes..No LVI...Chemo .TCH x6...Herceptin x12..Anastrozole 10 years
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May 22, 2021 06:31AM Beesie wrote:

Yes, it can be a combination of ILC and LCIS.

Redcanoe is absolutely correct - chemo is never given for DCIS or LCIS. Nor is Herceptin is not even approved for these conditions.

Can you copy out here exactly what the pathology report says, word for word? Even a single word can change the whole interpretation.




Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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Jun 6, 2021 04:11PM jessie123 wrote:

When they did my lumpectomy for ILC they also found LCIS. I think that is pretty common. However, now that I know I have it I think that I have a greater risk of ILC in my remaining breast. I'm so glad I'm old.

Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/14/2019 Whole-breast: Breast
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Jun 12, 2021 02:32PM beach2beach wrote:

Hi,

I had ILC/LCIS and DCIS all in the same 9mm tumor.

Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/12/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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