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Topic: Now what?

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Sep 14, 2021 04:38PM - edited Sep 14, 2021 04:38PM by AmericanInIreland

AmericanInIreland wrote:

March 2020 diagnosed brca2+ With triple positive lobular 3cm, bilateral mastectomy, started TCHP in June 2020 finished up my HP this past June.

2 weeks ago had full hysterectomy.

Onco says nothing left to do now. Have never had a PET, have no testing at all. So do I just wait for metastasis to show up and grow large enough for symptoms?

Feet like just waiting for it.

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Sep 15, 2021 10:24PM BCat40 wrote:

if you were triple positive I believe most medical oncologists would offer you an aromatase inhibitor after being done with chemo. Having your ovaries out doesn’t get rid of all your estrogen.

Body scans don’t help to capture microscopic circulating cells and so scans will only show things after the cancer has taken hold and grown in a new place.

Dx at 40. Did not tolerate hormone deprivation treatment. Dx 2/4/2020, LCIS/ILC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/25/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 6/2/2020 Whole-breast: Breast
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Sep 16, 2021 08:01AM wallycat wrote:

Unfortunately, that is the case. Oncologists go by symptoms most of the time. Best to you. I'm sorry you are joining us and dealing with this.


Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012

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