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Nov 29, 2012 02:43PM
, edited Nov 29, 2012 03:36PM
Thank you for your post. I was glad to know that you find the posts informative.
I do not understand why you have not received the e-mails from CANCERactive, because if you click on CANCERactive, enter your e-mail address and click on Add me to the News List, that should do it. This is what I did and the e-mails arrive very regularly at my e-mail address. The CANCERactive e-mails are always very informative and I read through one as it arrives and then click on the titles underlined and read information in more detail, and then post the link etc. on our thread.
I have been thinking of you a lot and thought that you were probably very busy looking after your father. I really understand that, as I had to do a similar thing with my mother. Where I live in Exmouth, there are a lot of elderly people who end up needing care. They start off with carers coming in morning and evening, but I have seen first hand that this care is inadequate, especially if it is funded by the NHS. I have looked after some of the neighbours here and have dealt with carers. They are usually very young girls who have less than half an hour in the morning and the same in the evening and can do virtually nothing. Often they do not arrive on time because they have been delayed by other visits. They also come too early in the evening and put patients to bed. I think when elderly people cannot cope they are probably better off in a retirement home or a nursing home, but you have to make sure they are in a good one.
Often, you can find a place by arranging respite and then making it permanent.
I do hope you will be able to find the best arrangement for your father, so that he will be safe. It is so dangerous to be alone in your home, have a fall and be lying there for hours waiting for someone to come to your rescue.
I have just had a look at the thread that you started, Parathyroid disease and breast cancer, which I had not looked at in a while. You just never know when a thread is going to come alive after a while with a new post. I found that latest post extremely interesting and it has got me started wondering again about this connection between hyperparathyroidism and breast cancer and about which one comes first. I am sure you will remember all our discussions about this and all our PMs as we both went through surgery for a parathyroidectomy. I shall read the post again in detail and do another post tomorrow. We need to keep that thread going, so I have put it as one of my favourites. I am also trying to keep two other threads going. One is the High Calcium thread on the forum Not diagnosed with recurrence or metastases but concerned. You will remember we had lots of posts together on there. I am also reactivating a thread started by someone back in 2009, entitled Not a typical triple negative. This thread is about older women diagnosed with TNBC because it is supposed to be a breast cancer of younger women. From what I have been reading, TNBC seems to affect all ages but it could well be that much younger women are in the majority.
I also have no idea whether my bone density has improved. I had a DEXA scan in February 2010 about three months after my parathyroidectomy in November 2009, and I had one before that in March 2009 when I became concerned that I had lost a bit of height. Before that everything had been normal since I was diagnosed with hyperparathyroidism when diagnosed with breast cancer in 2005. My consultants, who were busy treating my breast cancer, seemed to have forgotten about the hyperparathyroidism and I had not worried about it until 2009. It was then that the consultant told me to have the surgery.
There was a slight improvement in the bone density reading in the 2010 DEXA scan, but osteoporosis was still there.
It will be three years in January 2013 since I had that second DEXA scan. I was told that you can have one only every five years. I am beginning to think that I should try to push for one. With the NHS we never have preventive treatment. I am still concerned about taking calcium tablets, even though I take only one a day. I have read a few other posts where women have had high calcium blood serum, been taken off the calcium supplements by their consultants and everything became normal. They were apparently told to take only vitamin D.
We are fine here in Exmouth, but very fed up with the weather. At least, for the past two days, it has been dry, sunny but very cold.
I shall do some more posting tomorrow.
Let your food be your medicine and your medicine be your food - Hippocrates B.C. 390 Preadjuvant chemo 3 months epirubicin, cyclophosphamide, 3 months docetaxel. Mastectomy RB Sentinel node pos Radiotherapy 3 weeks + boosters
6/20/2005, IDC, 6cm+, Grade 3, 1/7 nodes, ER-/PR-, HER2-
05/16/2006 Mastectomy of one or both breasts: Mastectomy of my right breast; Lymph node removal (also called dissection): Lymph node removal (also called dissection) on my right side
10/31/2005 Ellence (chemical name: epirubicin), Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel)