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Apr 12, 2019 10:40AM
Well, I'm a one dose wonder with CHEMO. AC, so I did get to dance with the red devil but just once...
My tumor type is basically proven CHEMO -resistant. Because it's meta -Plastic. Docs still want me to do it, because it's all they have, and it just MIGHT help they can't PROVE it doesn't they say. Also it is the standard of care. We treat MPNC TNBC just like TNBC, until you have a MET and then we don't.
I'll never get CHEMO for a MET because I don't plan to get one of course, but if I do they'll just radiate it.
So I collected the studies and was like, ok sure, my tumor's out so we CAN'T PROVE this AC is ineffective, but here are the first 15 studies of probably 100 that draw the conclusion that NO chemo works on my tumor type, not AC not T not FEC or whatever they're using in Europe. I mean we have scientists for a reason. It's so they can collect and analyze data form hypotheses, run experiments where needed and show doctors where to go next with treatment when they may not know.
Also you know I'm technically cancer free at the moment, so I feel I'm it METS management. Prophylactic METS management so I never get a MET but still. If I get one they won't bother with CHEMO. Because they know how ineffective it is on my tumor. So why on god's green earth am I putting myself through it now? I read one study it's for the new IMMUNOTHERAPY for mPBC TNCB ( meta-Plastic) where the CHEMO actually just pissed the local chest wall post MBX plastic METS tumor off. Then 2nd dose is immuno-chemo mix, tumor shrinks and leaves. So that was just approved for STAGE Four MPBC (Meta plastic only I think - it takes advantage of the metaplastics high death or kill something something that overexpresses in mPBC and makes it so virulent). So in 5 years that will be standard first line treatment most likely for my TUMOR but not today.
Think they can eventually for newly future diagnosed people make mPlastic TNBC CHRONIC, which I guess means it won't kill you any more if you're careful. But as my DOC likes to say, you'll still be eligible for all the other cancers!
Thing is 5 years is too long. In five years my TNBC mPLASTIC story has played itself out. Half of my tumor type will be dead in 5. or maybe it's 65% . Some numbers go as low as 40%. But that's because when it comes back distally we generally die in 8 months. BUT that said, half the time it's never seen from again!
Like the rare Chernobyl Minnow, now extinct. It crawled out of a swap, into a woman's breast one day to hide. They attacked it with needles, they attacked it with tears, they came at it with ill will and admonitions, , then they danced, cried again to shrink it, attacked it with knives, and finally it was gone.
Then they toxified the place it had been and radiated it. Hoping to kill any small seeds it had laid before it left. They imagined dragons to surveill and keep it away. And giant Squid patrolled the swap now..... And it was never heard from again....
Fracking out, off to DERMO to solve a CHEMO rash before reconstruct and RADS. I will be MARATHONING game of thrones too! MNCTeach and FLYNN. We should do a GOT marathon book club sort of thing. Is it your first time through GOT or are you rewatching/ catching up for premiere? I'll be rewatching for premiere!!!
Plastic TNBC (MpBC) | 4 cm | AC one dose halted | Lumpectomy | Neg Nodes | BRCA Neg | Stage 2 | Grade 3 | 16 days Dx to LUMP | Dent Repair & Radiation up next...then we cross our fingers and live WELL for 5 years and to infinity and beyond!