May 18, 2021 03:59PM - edited May 18, 2021 04:09PM by FrackingHateCancerMPBC
Share with others who have ER-/PR-/HER2- breast cancer.
Posted on: May 1, 2010 11:59PM - edited May 2, 2010 12:02AM by Titan
I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having.
What to do you think?
I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads (including 7 boosts) mammogram every 6 months for 5 years (I think). see the onc every 3 months for 3 years, see the Bs every 6 months for 3 years (I think). see the rad onc 1 year after rads...probably won't see him any more after that...
I think this may be a good way to get all together...we can still have separate threads..but sometimes it would be nice to just go to one thread and have a cry or concern without worrying about not being on topic
What do you all think? ..
Posts 35611 - 35636 (35,636 total)
May 18, 2021 03:59PM - edited May 18, 2021 04:09PM by FrackingHateCancerMPBC
May 18, 2021 04:06PM - edited May 18, 2021 04:20PM by FrackingHateCancerMPBC
Ah, okay thanks, Piper! And Trishyla! Good good! But all that said, I am being dragged into family court. I need to thwart the in-person appearance. I will wait and see how all that plays out, but I will I guess check with how the juries are being handled too. I'd like the scientific evidence anyway, I still have field trips to bow out of, etc. I want an immunocompromised button or something until all this is done and COVIDs not circulating anymore. And I am a scientist so I want to see it myself. I'm an astronomer but science is science and I have to be shown things. I can't imagine catching COVID and losing one's life because of some ridiculous court rules. Our Family Court Judges aren't known for being reasonable without evidence presented to them. And Family Court is like the Wild West here in the Bay Area of California. It's not normal, trust me. So, if anyone has links to articles or studies, they could post about us being immunocompromised and probably not as well protected by the vaccine I would SO appreciate it. I will likely have to have my lawyer plead my case for a remote appearance. That's just how that goes. Thanks so much. I said Jury duty really so that it is relatable for everyone. As far as I know, I have not been called for Jury Duty lately and our Family Court does not have juries, so it's not really a jury issue, sorry to misrepresent. Thanks again!
And I totally support you're doing Jury duty, Trishyla, I'm also a high school science teacher, I know living with risk, I've been teaching in-person since Early April - and we mitigate that risk and it's fine. But we are VENTILATED at school. To the outside. All of our rooms have huge doors and windows that are open to the outside so air is blowing through constantly. Courts aren't ventilated to the outside. There are huge windowless Halls in general. Ours here are anyway, I'm personally am not risking stepping foot in a courthouse. So for my situation, I need some studies. But this is a great topic and it has generated some conversation! That's great! Does anybody have the articles stating that we are actually immunocompromised? Articles abound. I know someone has them. Thank you so much. I'll keep looking myself. I will also search this site.
May 19, 2021 09:52PM santabarbarian wrote:
Frack can you get a 'doctor' note? Can your MO help you out?
May 20, 2021 11:21AM PiperKay wrote:
Here's an article about some conditions that may make the vaccine less effective: https://www.washingtonpost.com/health/2021/05/18/immunocompromised-coronavirus-vaccines-response/
May 20, 2021 04:14PM NatureYogi wrote:
Thank you for the article, I appreciate it!
I obtained a letter from my Oncologist and it has helped me in a lot of situations. They even noted that if anyone has any questions or concerns, can call the office direct.
May 21, 2021 09:49AM PiperKay wrote:
Glad to help a fellow Georgian, NatureYogi!
May 23, 2021 09:38PM VLH wrote:
Hello, Fellow TNers,
As of Thursday, I'm now five years out from my diagnosis date, this despite chemo being delayed by needing a second lumpectomy due to DCIS in the tumor margins and a serious infection from draining a seroma. I know cancer in general and the triple negative news in particular is scary so wanted to stop by to offer encouraging news to those feeling anxious about their diagnosis.
May 23, 2021 10:21PM Trishyla wrote:
Congratulations, Lyn. What a huge milestone. Time to celebrate. 🍾🍾
May 23, 2021 11:10PM VLH wrote:
May 24, 2021 12:31AM NorCalS wrote:
Great news VLH. It really makes my day when I hear a TNBC sister reach the 5 year mark. Cheers to you and thanks for coming back and letting us all know. It really does give us hope
May 24, 2021 02:16AM VLH wrote:
May 24, 2021 01:42PM santabarbarian wrote:
VLH this is great news!!
May 25, 2021 08:25PM cookie54 wrote:
Congrats VLH, awesome news! Thanks for stopping buy to let us tnbc sisters know. It 's my favorite topic on here to read positive news. Be well and celebrate!
May 27, 2021 12:39PM LoveMyVizsla wrote:
Big congrats VLH!! Welcome to the 5 year club!
I need your help, ladies. I recently passed my 5 year mark, but just found out my sister has breast cancer, but not TN. Comedogenic DCIS. She is going to do a mastectomy and a reduction on the unaffected side.
Without going into personal experiences, are there questions you feel she should ask the surgeons, or questions you wish you had asked? Thanks so much, in advance.
May 31, 2021 03:58PM VLH wrote:
Thanks so much for the congratulations, folks! Ironically, I'm a bit more nervous about my upcoming mammogram than prior imaging because I seem to be a physical "oddball"; for example, having my chemoport loop & retract 3 cm, a first for the general surgeon who had been inserting them for 20 years. I definitely do NOT want to be a statistical outlier in this case!
LoveMyVizsla, I'm so sorry to hear about your sister. I assume she would still need periodic mammograms on the reduced breast? It might be helpful to ask to see the plastic surgeon's photo gallery so she has a general idea of what to expect (recognizing that everyone's body is unique).
Jun 1, 2021 07:43PM Volleyballmom2008 wrote:
Hi everyone. I have not been on here for a very long time. Since my cancer diagnosis in June of 2018 my life has literally been crazy and not in a good way. When you have to say you dealt with cancer better then certain things that go on you know its been crazy. Since my cancer diagnosis I have watched my mom die of cancer, my husband's partner at work kill himself, selling my moms home and moving. To this year learning the lawyer selling moms house was disbarred and stole the proceeds from the home. So I had to hire someone else to sue her. Sorry I am unloading but I am so tired of people saying to me at least you are not sick anymore. While all the above has been bad it was a distraction from my upcoming mamo this Thursday. I am know starting to freak out because I have not been healthy at all with everything going on, not to mention the stress I have felt and am so terrified this being my third year from diagnosis that something just has to go wrong. Of course I have been googling for 2 days and realizing maybe 3 years can be a bad thing as far as reaccurrance. Anyone have any good words of assurance or advice to het me to Thursday. Thank you.
Also how do you factor your anniversary from diagnosis? I did chemo first, then surgery then rads?
Jun 1, 2021 09:30PM Trishyla wrote:
I'm so sorry you've had a rough time of it lately. Sometimes it seems as if the bad stuff is all there is. Hopefully it will get better soon.
But honestly, Volleyballmom, I think once you hit three years most doctors look at you as if you already have one foot out of the woods. You're not quite out of the woods, but you're getting awfully close. I know my breast surgeon (my rock through the whole process) breathed a sigh of relief once I hit that three year mark.
Good luck with the mammo. I hope everything comes back boringly normal.
Sending warm cyber hugs.
Jun 1, 2021 10:48PM smc123 wrote:
Volleyballmom, I did chemo, surgery andthen radiation too and my doctor told me my anniversary is my surgery date.
Jun 2, 2021 12:02AM NorCalS wrote:
You bring up an issue I’ve been wondering about a lot lately as well. I was initially told that the diagnosis date was the date you use to calculate whether we’ve hit the 5 year mark. Then I was told that you use the date of your surgery. I have seen some use the last day of active treatment. I had ACT chemo, surgery, radiation, then Xeloda, so it would be a real bummer if the last date of treatment was used. I went to a triple negative specialist for a second opinion a few months ago and she used the diagnosis date. I guess I just want some certainty on when I can stop worrying so much
Jun 2, 2021 04:20PM PiperKay wrote:
Volleyballmom, I have a mammogram tomorrow (Thursday) morning myself. I'll be thinking of you!
My diagnosis was November 2018, surgery was December 2018, and chemo and radiation were both complete by May 2019, so I guess since they're all bunched up, picking any one of them as an anniversary would probably be accurate. So, 2-2.5 years out for me depending...
Jun 3, 2021 02:43PM Murfy wrote:
My life insurance policy says first cancer anniversary is one year after surgery in us LN- gals.
Jun 3, 2021 08:54PM Volleyballmom2008 wrote:
Good evening ladies. My mammo was good thank God. So much anxiety goes into this day and the weeks leading up. I dont think that part will ever go away. I didn't get to see my oncologist but saw her nurse practionor after. I tried asking her about what defines your years out. She said surgery, so I guess I am only 2.5 years out. January will be 3 years. Jez.
Jun 3, 2021 11:34PM NorCalS wrote:
Great to hear that your mammogram was clear. Crossing my fingers for all of us to get to the 5 year finish line
Jun 10, 2021 05:04PM ScotBird wrote:
It’s 5 years yesterday since my surgery. I never thought I’d still be here, but I’m surviving and thriving and honestly, don’t even think about cancer at all some days! Hang in there ladies.
Jun 10, 2021 06:34PM Trishyla wrote:
Yay, scotbird! Doing a happy dance for you! 🌈🍾🥂🎆🎂🎁🌈
Congratulations. Go celebrate.
Jun 11, 2021 09:07AM santabarbarian wrote:
Love to hear from the 5 years-ers-- such happy news. Bravo!