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Topic: Calling all TNs

Forum: Triple-Negative Breast Cancer —

Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: May 1, 2010 08:59PM - edited May 1, 2010 09:02PM by Titan

Titan wrote:

I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having.

What to do you think?

I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads (including 7 boosts) mammogram every 6 months for 5 years (I think). see the onc every 3 months for 3 years, see the Bs every 6 months for 3 years (I think). see the rad onc 1 year after rads...probably won't see him any more after that...

I think this may be a good way to get all together...we can still have separate threads..but sometimes it would be nice to just go to one thread and have a cry or concern without worrying about not being on topic

What do you all think? ..

Dx 3/18/2009, IDC, 1cm, Stage I, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Jul 24, 2021 10:45AM cc4npg wrote:

Dkp1994 - It is scary! This group is awesome and the best one I've ever seen. You will find great people on this site and you'll be welcomed to post. The information here is wonderful. The folks here really care about what you're going through and will give you the support you need to help you as well as her! I have the Bracca gene (BRCA 2 positive). Being that your wife is so young, she may want to highly consider being checked to see if she carries this predisposition.

By the way, I'm going on 11 years out now. I've had a couple of scares, but they were just that... no other cancer. I take lots of vitamins... especially more D3 than needed, Magnesium, K2 MK4 and MK7, etc. You want to keep your D3 levels higher than the normal population.

Angelisa - BRCA2+, Bilat NSMX 10/7/10, Chemo 11/29/10 4xTC, Exchange and Oophorectomy 2/28/11.. DONE! Dx 9/2/2010, IDC, <1cm, Stage I, Grade 2, 0/3 nodes, ER-/PR-, HER2-
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Jul 25, 2021 08:28AM Ntlw12 wrote:

Hi everyone,

I’m Nikki and I’m 38. In early June I felt a plum size lump in my left breast. I immediately thought it was a cyst, but when it didn’t go away, and because of prompting by friends, I went to my GP. She seemed immediately concerned, which of course sent me into a tailspin. She sent me to a breast clinic in Rochester, NY (just an hour from where I live). There I had a mammogram, ultrasound, and biopsy. The next day, July 13, the radiologist confirmed it was IDC, 4.5cm and after testing, it came back triple negative.

Last week I had a breast MRI, that showed nothing else but the area we knew about.

Tomorrow I meet with the BS and I wish I could adequately describe my emotional state. I’m sure it’s something you all remember upon your diagnosis. This feeling of, can I have a few more years? I’m not ready to leave my life just yet.

I’ve read that once I have a plan in place, some of those anxieties will go away, but right now, they are suffocating. I have wonderful friends and family, but I’m just scared. And sad.

I’m hoping that after I meet with the BS tomorrow, I will start to feel more like myself. Right now, every time I feel anything I imagine it’s cancer taking over my body. I do have moments of positivity and strength, but these past few days have been so tough.

Thank you to everyone here sharing your stories. I’m trying to hang on to your optimism and spirit

Dx 7/12/2021, IDC, Left, 4cm, Grade 3, ER-/PR-, HER2-
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Jul 25, 2021 07:25PM cc4npg wrote:

Ntlw12.... Breathe.... exhale... breathe again... repeat. This IS scary, regardless of whether you've gone through it before or not... it can be a crippling sense of fear. Everything you're feeling is normal. I wish that helped to know it, but I know it doesn't ... not like you'd like it to help. It is SO hard to begin with. I remember all I did was cry and read... didn't feel like sleeping or eating. I was a mess! The women here were wonderful to help bring me back down to earth. I think the waiting game is the hardest. When you're actively getting it OUT of you, it helps. Dreading what is to come and not knowing what to expect is really hard! The good news is, it sounds like you're moving at a pretty fast clip with everything and you should find out a lot tomorrow. Have your list of questions on paper. Take a small recorder with you, or use your cell phone to record (I put mine on video and use it to record). There are MANY women here who are Triple Negative, and even more out in the world who don't come here. The ones of us who have battled cancer and gone on with our lives often don't visit these sites too much. Others will continue staying to encourage those just coming on. Are they going to test you for BRCA? I would encourage that. I was 42 and tested positive for BRCA which was shocking also... no one in my family has had breast cancer. That was almost 11 years ago. It does get easier. In the meantime, try your best to relax as much as you can... try to eat and drink lots of water... get some sleep... everything is so much worse when you're exhausted. Once you have a game plan, and begin actively kicking cancer in the A$$, the anxiety will become more manageable. I also found taking Tylenol and/or Ibuprofen staggered helped take the edge off. I remember the feeling you're going through.... all too well. Hang in there... praying for you to have strength and clarity. Thinking positive WILL help... remember the brain is a very powerful tool... but it's hard when your world seems to be crumbling.

Angelisa - BRCA2+, Bilat NSMX 10/7/10, Chemo 11/29/10 4xTC, Exchange and Oophorectomy 2/28/11.. DONE! Dx 9/2/2010, IDC, <1cm, Stage I, Grade 2, 0/3 nodes, ER-/PR-, HER2-
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Jul 27, 2021 01:25PM moth wrote:

Fresh from the FDA

FDA approves pembrolizumab for pts with high-risk early stage TNBC based on DFS improvement seen in KN-522

https://www.merck.com/news/fda-approves-keytruda-p...


I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Jul 27, 2021 02:20PM Ntlw12 wrote:

@CC4NPG You we’re so right I met my surgeon yesterday and she is phenomenal. She said she has seen many cases of women around my age with the same diagnosis that have gone on to live full lives. I meet the oncologist tomorrow, but know that I will have 6 weeks of dense chemo and then I have my next surgeon appt already scheduled in September. I will be getting a port in this Thursday, so hopefully chemo starts next week.

I am getting the genetic testing done, they did that last week when I went for my MRI and my surgeon said that will help us make decisions regarding surgery.

I’m worried about chemo but have decided that we are on the same team fighting against an ugly invader. So, although I know the side effects won’t be great, I welcome the help.


Thank you for replying and the kind words of support. As I have read so many posts on this site over the past week, I am inspired by the fierce women who have been willing to share their stories and offer their support


Dx 7/12/2021, IDC, Left, 4cm, Grade 3, ER-/PR-, HER2-
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Jul 27, 2021 03:31PM NorCalS wrote:

Moth,

Thanks for posting. Good news for those diagnosed with TNBC

Dx 6/17/2019, IDC, Left, 6cm+, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/23/2019 AC + T (Taxol) Chemotherapy 4/5/2020 Xeloda (capecitabine) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Jul 27, 2021 03:35PM NorCalS wrote:

Ntlw12,

If you haven’t already, you may want to ask your MO about pembrolizumab (keytruda). Moth posted an article which indicates that the FDA approved pembro for neoadjuvent therapy. This was not available to me when I had neoadjuvent, but it is definitely something I would have wanted to have the option of having.

Dx 6/17/2019, IDC, Left, 6cm+, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/23/2019 AC + T (Taxol) Chemotherapy 4/5/2020 Xeloda (capecitabine) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Jul 27, 2021 04:06PM Ntlw12 wrote:

@NorCalS

I was thinking the same thing. My MO is affiliated with Roswell Park Cancer Institute in Buffalo so I am hoping this research is already on her radar.

Dx 7/12/2021, IDC, Left, 4cm, Grade 3, ER-/PR-, HER2-
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Jul 30, 2021 07:31AM Moderators wrote:

We know there is a lot of discussion on genetic testing. Has anyone done their genetic testing via "tele-genetics" (over zoom, other conference line) instead of in-person? If so, would you mind sharing your experience with us (send us a Private message)?! Thank you!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jul 30, 2021 03:37PM FrackingHateCancerMPBC wrote:

Hi there Moderator,

Maybe I don't understand the question. Genetic Testing requires a blood test. That can't be done over Zoom. Right?

If you mean the questions you get asked before the blood draw or after, like the interview info-gathering session, mine was pre-pandemic and OVER THE PHONE. Mine was for BRACA. I think they asked me to come in and I said no I was way too busy. So it was the phone.

Is that what you meant? It was fine. The phone interview for BRACA. They basically just ask if your family has cancer and I guess they make a family tree. No reason it couldn't be a phone or zoom.

I was negative! First good news I got! I DID NOT wait to do surgery for results. Although it was suggested. That's BOGUS. Get your surgery as soon as possible. They can always do more later but you can never take back the weeks wasted for genetic testing to come back while the disease possibly spreads. In my humble opinion of course! Very humble I am! And very opinionated!

Thank you for moderating.

-Frack

Dx 2/19: Plastic TN (MpBC) | 3.9 cm | Neg Nodes | BRCA Neg | Stage 2 | Grade 3 | 16 days Dx to LUMP | ACT halted | LUMP | Dent Repair was Fat Graft | Summer of RADS | Now 🤞🏽 Inspire hope, live well & be VIGILANT for 5 years (TN) and beyond 🔭🌋👑.
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Aug 13, 2021 09:51AM MountainMia wrote:

Hi TN friends. I'm hoping for some rational advice from people who know how this goes.

For most of the summer I've been experiencing some digestive issues. In late June and into July I had a lot of stomach/belly discomfort. I finally decided it was probably due to eating lots of fresh cherries. I'm sensitive to almonds, which are related to cherries, so I thought that made sense. Then I went on vacation and surprisingly, felt better on average. However, on the way home (July 20) I had an evening of "gut wrench," with diarrhea. At one point I thought I would throw up, too, but didn't. Next day was better.

Since then I've felt mostly okay until the last week or so. Now I feel incredibly bloated and heavy. I've been skipping breakfast, not particularly hungry, and still I feel like my belly is big and bloated. My stool is different with a BM. You know how you don't always think much of something when it starts, so you don't note what day it is? That's what I did with this. I finally noted that the stool was different on Wednesday this week (Aug 11.)

I figure to wait until next Friday (Aug 20) to give this a chance to get better, or not, as the case may be, before contacting the doctor.

Does that sound like a good plan? Any other thoughts on this? Sorry in advance, I know no one really wants to spend time thinking about someone else's digestive problems.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Aug 13, 2021 09:58AM moth wrote:

MountainMia, I think unless you're in extreme pain (affecting daily activities), have diarrhea which might be causing dehydration, then it's reasonable to wait for two weeks and then contact the dr.

I hope it turns out to be nothing!

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Aug 13, 2021 11:17AM santabarbarian wrote:

agree- my doc says for mild symptoms give it 2 weeks & if symptom doesn't resolve call

pCR after neoadjuvant chemo w/ integrative practices; Proton rads. Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/10/2019 Whole-breast: Breast, Lymph nodes
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Aug 13, 2021 11:56AM Trishyla wrote:

Have you tried probiotics, MountainMia? My digestive system was kind of a mess after chemo. Remember, chemo kills a lot of things, including good gut bacteria.

It wasn't terrible at first, but got gradually worse as time went on. I started taking Florastor probiotics on the advice of my gastroenterologist and it really helped. That and a really good active culture yogurt.

Funny thing is, I just signed up for a remote Scripps seminar on harnessing the power of microbiota to boost immunity against infection and cancer.

Hope whatever is ailing you turns out to be minor and easily remedied.

Trish

Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 8/4/2017 Xeloda (capecitabine)
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Aug 13, 2021 08:02PM anotherNYCGirl wrote:

MountainMia,

My thought is either lactose intolerance or irritable bowl syndrome?

Years ago, I had a lot of bloating and discomfort, my gyn suggested 3 days without milk/dairy products and see how I felt. That showed me that it was a lactose issue, so now I use lactose free milk or take lactiad pills with regular dairy foods.

More recently, my gastro dr said I may have some IBS too, and she suggested IBGuard. It;s over the counter, and mostly peppermint oil. It;s worth a try.

Unless an urgent situation, as others have suggested, I give things 2 weeks to improve before calling drs.

I hope you feel better soon!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Aug 14, 2021 04:49AM MountainMia wrote:

Thanks, all. I don't feel like it's "urgent" and it will be easy to wait that long, as long as nothing gets worse. Mostly I asked here because I am a bit worried, and saying it "out loud" makes it easier to deal with. :)

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Aug 16, 2021 04:42PM LoveMyVizsla wrote:

TNBC in the news again….

https://consumer.healthday.com/statins-use-after-diagnosis-ups-survival-in-triple-negative-breast-cancer-2654331433.html?fbclid=IwAR0Rk5kCowdnjPGOwpz4miIbMIVpSwWxk_zLBDc05uBv4krE4kTFcxlL0WM

Diagnosed at 51yo Dx 10/5/2015, IDC, Right, 3cm, Stage IIA, Grade 3, ER-/PR-, HER2- Dx 10/30/2015, DCIS, Right, 3cm, Stage 0, 0/4 nodes Surgery 12/10/2015 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 1/15/2016 AC + T (Taxol) Surgery 8/10/2016 Radiation Therapy 9/6/2016
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Aug 16, 2021 07:03PM MountainMia wrote:

Thanks, LMV. That's interesting about the statins. Of course I want to know more, like whether they controlled for blood cholesterol in the subjects. And is it the impact on cholesterol that is important, or is the statin doing something else.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Aug 20, 2021 06:59PM MountainMia wrote:

I actually saw my PCP today about my digestion issues, as it had become too uncomfortable to wait. She had blood tests and urinalysis done -- all numbers fine, including liver function! -- and after we talked for a while, she sent me down for abdominal xray.

When I came back upstairs, she already had the images. OH! she said, I know what's wrong. Your colon is full.

She showed me the image. I don't seem to have a blockage or impaction, but my gut is full up. So step one is get empty again (yay, golightly...) and then take another look with US to see if there is anything else structural to be seen, and also check my thyroid numbers to see if my whole system has slowed down.

So that was GOOD NEWS #1 (or #2, in a way!!)

The other good news (?) is that I'm considered immune compromised, so I'll get my covid booster shot next week, too!

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Aug 21, 2021 05:59AM mightlybird01 wrote:

Hi Mountain Mia, good news on your digestive issues :-)! I have noticed that my digestion (which is generally more on the sluggish side) is much better the less meat and fish I eat and if I cut out dairy pretty much completely.

Dx 4/12/2019, IDC/IDC: Medullary, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 5/21/2019 AC + T (Taxol) Surgery 11/8/2019 Mastectomy: Right
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Aug 28, 2021 07:36AM Kayce234 wrote:

Hi all. This thread was recommended after I posted in another. 10yrs post diagnosis of my original diagnosis i was diagnosis with triple negative. Completely separate from my original diagnosis, has zero connection. Im floored. I expected a recurrence but not a new diagnosis and not tnc. Tumor is only 6mm so oncologist is extremely hopeful. I found both cancers with self exams. Very lucky to live in Massachusetts and have Dana Farber.

SMX w/SNB 12/08/11 Rad started 01/10/12 Dx 11/10/2011, IDC, 3cm, Stage II, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 12/8/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/18/2012 Hormonal Therapy 3/17/2012 Dx 8/24/2021, IDC, Left, <1cm, Stage IA, Grade 3, ER-/PR-, HER2-
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Aug 28, 2021 11:59AM - edited Aug 28, 2021 01:22PM by InspiredbyDolce

Hi Kayce,

I just saw your post...yes indeed Dana Farber is top notch, and I believe has led some of the research and discovery for TNBC options! I'm sorry to hear you have a bc diagnosis. I will send you something privately - check your messages.  I'm not on here often, but this group of ladies will surely support you.  Thinking of you and sending love and healing prayers your way!

Debra

After breast cancer, it's Plan B (as follows): Low-fat, low sugar, fish, veggies, whole grains, fruits, water, green tea; 6 hrs moderate-vigorous exercise weekly; and Metformin. If you need info about Metformin to discuss with your Onc, PM me. Dx 12/27/2011, IDC, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 1/3/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/1/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 5/29/2012 Reconstruction (left); Reconstruction (right)
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Sep 11, 2021 01:47AM 5andcounting wrote:

Doing my once a year pop in to make sure you remember MANY of us have survived and just don’t get on the boards any more. I used to look for that so often and it upset me not to see long term survivors. I promised myself I will check in yearly to encourage others. I was 43 when diagnosed and today I turned 55!

I had one local recurrence at 3.5 years out and in October, I will be 8 years out from the second time.

My thoughts and prayers are with all of you who have become stronger than you ever imagined you’d have to be. The first years of survivorship are anxious times. Please be kind to yourself as there really isn’t a one size fits all recovery.

I’m grateful to this forum for the information and support it provided during the hardest moments in my life.

I hope to pop in again next year and continue my streak-every day is still precious to me. Love and light to all

Surgery 11/4/2009 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Dx 11/6/2009, IDC, 1cm, Stage IIA, Grade 3, 1/20 nodes, ER-/PR-, HER2- Chemotherapy 12/30/2009 AC + T (Taxol) Radiation Therapy 4/18/2010 Breast Dx 4/16/2013, IDC, Left, 1cm, Stage IIA, Grade 3, 0/0 nodes, ER-/PR-, HER2- Surgery 5/1/2013 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 6/6/2013 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 11, 2021 05:39AM MountainMia wrote:

5andcounting, thank you, and I hope for you to have a lifetime of good health!

Your message is very helpful, especially the fact that you had a recurrence and are doing so great. I'm probably not the only one of us who expects that any recurrence of tnbc is metastatic. Of course that's not true! but without examples to see, it's hard to believe the truth.

I have a new lump, a small hard spot under my lumpectomy scar, which I found earlier this week. Now, I have LOTS of lumpiness under my scar, so that in itself isn't surprising. But this one I don't remember feeling before. It's a distinct thing, small like a peppercorn, close to the surface, practically in the scar.

Yesterday I saw the PCP for follow-up on my digestion issues. When she raised my shirt to poke my belly, I said, hey, while you're poking around, feel this thing. She felt it right away, exclaimed a little, said it almost feels like a surgical stitch. But surgery was 2.5 years ago, and I don't remember noticing it before, and I don't remember anyone else remarking about it during any other breast exam. Note I keep commenting about remembering. It honestly could be something that's been there and noted and not important, and I just don't remember. ??

So PCP will contact the BS (same hospital system, they know each other) and decide what next.

I expect it's some type of scar tissue or fat blob, alive or dead. But I'll be glad to find out more.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Sep 11, 2021 07:43AM Trishyla wrote:

Surgical stitches do move, MountainMia. They can also spit out years later. I had that happen on the abdominal scar from my DIEP flap surgery. It was very weird.

Meant to post on August 29th, which was the five year anniversary of my diagnosis. Hard to believe it's been that long.

I'm still here, battered and forever changed, but still NED, as far as we know. Hope to stay that way for a very long time.

Trish

Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 8/4/2017 Xeloda (capecitabine)
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Sep 11, 2021 10:24AM NorCalS wrote:

5andcounting, thanks for checking in and letting us know how you’re doing. Happy Birthday 🎉🎂!

Trishyla, CONGRATS on 5 years! Love hearing good news like this. I hope to make it to 5.

Dx 6/17/2019, IDC, Left, 6cm+, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/23/2019 AC + T (Taxol) Chemotherapy 4/5/2020 Xeloda (capecitabine) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 11, 2021 02:04PM MountainMia wrote:

Trishyla, big congratulations on the 5 year anniversary!! That's beyond exciting, I expect!

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Sep 12, 2021 07:49AM anotherNYCGirl wrote:

5andcounting, thank you for posting! Happy birthday!! Keep celebrating and enjoying!!

MountainMia, - Lumps and bumps seem to turn up often, - most likely nothing! I was sent for sonograms twice in recent months, so I know the feeling! (Isn't it funny that in these cases we wish for fat? ;) Hoping yours is just that!)

Trishyla, - Great to read that your post!

Hugs to all here, and wishes for GOOD HEALTH!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Sep 12, 2021 10:57PM LoveMyVizsla wrote:

MountainMia, I’m sure your little peppercorn is fat necrosis. I have the same thing under my port scar.

Diagnosed at 51yo Dx 10/5/2015, IDC, Right, 3cm, Stage IIA, Grade 3, ER-/PR-, HER2- Dx 10/30/2015, DCIS, Right, 3cm, Stage 0, 0/4 nodes Surgery 12/10/2015 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 1/15/2016 AC + T (Taxol) Surgery 8/10/2016 Radiation Therapy 9/6/2016
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Sep 14, 2021 05:09AM Martaj wrote:

I also had a fat necrosis and had it bx. Didn't know it was that. Was scared cancer had returned. Thank god it was dead fat

Dx 7/8/2019, IDC, Right, 2cm, Stage IIIB, Grade 3, ER-/PR-, HER2- (IHC) Chemotherapy 8/8/2019 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Chemotherapy 8/9/2019 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 2/12/2020 Lymph node removal: Right, Sentinel; Mastectomy: Right; Reconstruction (left); Reconstruction (right) Surgery 2/13/2020 Lumpectomy; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 3/8/2020 Breast, Lymph nodes, Chest wall

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