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Topic: Calling all TNs

Forum: Triple-Negative Breast Cancer —

Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: May 1, 2010 11:59PM - edited May 2, 2010 12:02AM by Titan

Titan wrote:

I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having.

What to do you think?

I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads (including 7 boosts) mammogram every 6 months for 5 years (I think). see the onc every 3 months for 3 years, see the Bs every 6 months for 3 years (I think). see the rad onc 1 year after rads...probably won't see him any more after that...

I think this may be a good way to get all together...we can still have separate threads..but sometimes it would be nice to just go to one thread and have a cry or concern without worrying about not being on topic

What do you all think? ..

Dx 3/18/2009, IDC, 1cm, Stage I, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Oct 5, 2021 08:50PM santabarbarian wrote:

Birads 2 is *not* suspected to be cancer

pCR after neoadjuvant chemo w/ integrative practices; Proton rads. Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/10/2019 Whole-breast: Breast, Lymph nodes
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Oct 5, 2021 10:58PM HopeHeal wrote:

Birads 4 is cause for concern, Birads 2 is not.

Dx 3/1/2021, DCIS/IDC, Left, 3cm, Stage IIB, Grade 2, 0/1 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 4/9/2021 AC + T (Taxol) Surgery 9/27/2021 Lumpectomy: Left Radiation Therapy Whole-breast: Breast Chemotherapy 12/15/2021 Xeloda (capecitabine)
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Oct 6, 2021 02:19PM Kayce234 wrote:

Hi All

Quick question. Haven't had my surgery yet - scheduled for 10/21 - but I have been exhausted for months. I fall asleep around 10:30 and sleep pretty much straight thru to my alarm at 7:30 yet I'm always exhausted and have no energy. I noticed this with my last cancer diagnosis but not as bad. It started a few month before diagnosis but has gotten progressivly worse. Anyone else feel like this? Is it the cancer making me so tired?

Dx 11/10/2011, IDC, 3cm, Stage II, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 12/7/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/17/2012 Hormonal Therapy 3/16/2012 Dx 8/24/2021, IDC, Left, <1cm, Stage IA, Grade 3, ER-/PR-, HER2- Surgery 10/20/2021 Mastectomy: Left; Reconstruction (left): DIEP flap
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Oct 6, 2021 05:22PM NorCalS wrote:

Kayce234,

Could it be the stress from having to deal with BC again and also dealing with your mom? When I’m stressed, mo matter how much sleep I get, I’m still tired.

Dx 6/17/2019, IDC, Left, 6cm+, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/24/2019 AC + T (Taxol) Chemotherapy 4/6/2020 Xeloda (capecitabine) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 6, 2021 08:04PM Katiha wrote:

Hi Kayce234,

My mom felt like that before they found cancer. She felt better right away after they took it out.

Dx 3/6/2004, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 7/8/2020, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 9/14/2020 Carboplatin (Paraplatin), Taxol (paclitaxel) Surgery Lumpectomy Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Left; Lymph node removal: Sentinel
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Oct 7, 2021 12:20PM Everythingispossible wrote:

Great News

Dx 8/13/2021, IDC: Medullary, Left, 1cm, Stage IB, Grade 3, 0/1 nodes, ER-/PR-, HER2-
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Oct 8, 2021 06:23PM Kayce234 wrote:

Katiha

Thanks! I felt this way last time but it's so much worse this time.

Dx 11/10/2011, IDC, 3cm, Stage II, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 12/7/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/17/2012 Hormonal Therapy 3/16/2012 Dx 8/24/2021, IDC, Left, <1cm, Stage IA, Grade 3, ER-/PR-, HER2- Surgery 10/20/2021 Mastectomy: Left; Reconstruction (left): DIEP flap
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Oct 11, 2021 02:42AM - edited Oct 11, 2021 02:46AM by HopeHeal

Hi Kayce, I would say yes it is most probably the cancer making you tired. I was always tired before I was diagnosed and felt so much more energetic after it was treated, even after the chemo (imagine that!) and especially after the surgical removal. Our poor bodies trying to fight it.

Dx 3/1/2021, DCIS/IDC, Left, 3cm, Stage IIB, Grade 2, 0/1 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 4/9/2021 AC + T (Taxol) Surgery 9/27/2021 Lumpectomy: Left Radiation Therapy Whole-breast: Breast Chemotherapy 12/15/2021 Xeloda (capecitabine)
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Oct 12, 2021 10:52PM tumornamedclyde wrote:

In June 2018 my CA 27-29 went to 38 and I underwent CT scans and bone scans, then sold our farm, took the entire family on a vacation...(doomsday mode); fast forward to September 2018, repeated the scans, nothing. Rechecked markers, up to 40. Never agreed to any further markers until one month ago and it came back at 48. I feel great, general aches and pain, nothing severe. All other labs were within normal limits. Went today for repeat markers. Scared is too gentle a word to use. 8 years post diagnosis...

tumornamedclyde Dx 10/17/2013, IDC, Left, 2cm, Stage IIB, Grade 3, 0/2 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 10/31/2013 AC + T (Taxol) Surgery 4/14/2014 Mastectomy: Left; Prophylactic mastectomy: Right; Prophylactic ovary removal
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Oct 13, 2021 09:12AM Kayce234 wrote:

8 days out from my surgery and I've been having low grade temps on and off and headaches. Assumed sinus infection and doctor has me on flonase, mucinex and anitibotic but not helping. Hoping it's just the stress or the actual cancer and not something that will delay surgery - already been waiting 6weeks. Anyone have these symptoms?

Dx 11/10/2011, IDC, 3cm, Stage II, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 12/7/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/17/2012 Hormonal Therapy 3/16/2012 Dx 8/24/2021, IDC, Left, <1cm, Stage IA, Grade 3, ER-/PR-, HER2- Surgery 10/20/2021 Mastectomy: Left; Reconstruction (left): DIEP flap
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Oct 17, 2021 12:22AM HopeHeal wrote:

Tumormamedeclyde, I am sorry your markers went up. I hope no large tumors are found and that whatever is is easy to diminish. Sending you healing dust.

Dx 3/1/2021, DCIS/IDC, Left, 3cm, Stage IIB, Grade 2, 0/1 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 4/9/2021 AC + T (Taxol) Surgery 9/27/2021 Lumpectomy: Left Radiation Therapy Whole-breast: Breast Chemotherapy 12/15/2021 Xeloda (capecitabine)

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