Topic: Calling all TNs

Forum: Triple-Negative Breast Cancer — Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: May 1, 2010 08:59PM - edited May 1, 2010 09:02PM by Titan

Posted on: May 1, 2010 08:59PM - edited May 1, 2010 09:02PM by Titan

Titan wrote:

I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having.

What to do you think?

I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads (including 7 boosts) mammogram every 6 months for 5 years (I think). see the onc every 3 months for 3 years, see the Bs every 6 months for 3 years (I think). see the rad onc 1 year after rads...probably won't see him any more after that...

I think this may be a good way to get all together...we can still have separate threads..but sometimes it would be nice to just go to one thread and have a cry or concern without worrying about not being on topic

What do you all think? ..

Dx 3/18/2009, IDC, 1cm, Stage I, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Jul 15, 2022 07:54AM santabarbarian wrote:

Heart

pCR after neoadjuvant chemo w/ integrative practices; Proton rads. Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy; Lumpectomy (Left) Radiation Therapy 2/10/2019 Whole breast: Breast, Lymph nodes
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Jul 15, 2022 09:43AM lookingforward66 wrote:

Hello to all. I have not been on in ages but thought I would let you all know there is life after TNBC. December 26 of this year will be 10 years. 🤞 I had to stop Chemo as it almost did me in. No radiation at all. Just try & eat balanced diet & watch sweets. Take supplements of B12 & D3 primarily. Still have wine or mixed drink now & then. Covid was hard as my yoga class closed. I’ll be 76 in October. Still ticking. Weight in good area. Take care & prayers to all of you. 💪

Stopped chemo - Allergic reaction. Now between me & our Lord. Few options due to allergies. I'll do my best & try to keep "lookingforward"! Dx 12/10/2012, IDC, Left, 2cm, Stage IIA, Grade 3, 1/14 nodes, ER-/PR-, HER2-
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Jul 19, 2022 07:37AM piperkay wrote:

Fantastic news, lookingforward66!! Thank you for sharing, and here's to at least 10 more!

Dx 11/2018, IDC, Right, <1, Stage IB, Grade 3, ER-/PR-, HER2- Surgery 12/9/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel Surgery 12/10/2018 Chemotherapy 1/16/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/17/2019 Other Radiation Therapy 4/23/2019 Whole breast: Breast Radiation Therapy 4/24/2019 Whole breast, Radiation boost: Right breast
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Jul 31, 2022 02:27PM anothernycgirl wrote:

Great update lookingforward66! Here's to many more happy and healthy decades to post about!

Dx 1998, DCIS, Stage 0 Surgery 3/17/1998 Lumpectomy; Lumpectomy (Left) Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/10/2000 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel Chemotherapy 7/31/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/11/2001 Breast Hormonal Therapy 2/11/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/24/2014 Lymph node removal; Lymph node removal (Left); Lymph node removal (Right); Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 5/1/2014 AC + T (Taxol) Surgery 11/19/2014 Reconstruction (Left); Reconstruction (Right) Surgery 1/13/2015 Reconstruction (Right): Tissue Expander Surgery 5/27/2015 Reconstruction (Right): Latissimus dorsi flap, Silicone implant Surgery 2/21/2016 Reconstruction (Left): Fat grafting, Nipple reconstruction; Reconstruction (Right): Fat grafting, Nipple reconstruction
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Aug 30, 2022 07:56AM - edited Aug 30, 2022 07:56AM by turbokitten88

Hey everyone, <3

I'm TN IDC Stage 2 diagnosed back in 8/2017 at the age of 28, Chemo, Lumpectomy, Radiation.

Can ya'll talk to me about your experience of Fat necrosis? I want it all. Good bad ugly, info, experience etc.

I am 4 years out from finishing treatment and i just now 6 months ago was told a lump i found was fat necrosis. In the six months (my next checkup is next week) since i feel like it has gotten slightly larger. And as you can imagine that has my brain going crazy. Any info is great. I don't want sugar coated. Just the truth. I guess my worst fear of course is it was mislabeled and its actually a recurrence.

<3 sending love

Ashley

Dx 8/11/2017, IDC, Right, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2- Chemotherapy 9/15/2017 AC + T (Taxol) Surgery 1/25/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal Radiation Therapy 2/26/2018 Whole breast: Breast
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Sep 21, 2022 05:56PM lovemyvizsla wrote:

turbokitten, sorry no one has replied to you. I only have minor experience with fat necrosis. I have a small lump under my port scar, of all places.

I came here to post this information.

https://reference.medscape.com/recap/968944

Diagnosed at 51yo Dx 10/5/2015, IDC, Right, 3cm, Stage IIA, Grade 3, ER-/PR-, HER2- Dx 10/30/2015, DCIS, Right, 3cm, Stage 0, 0/4 nodes Surgery 12/10/2015 Lumpectomy; Lumpectomy (Right); Lymph node removal Chemotherapy 1/15/2016 AC + T (Taxol) Surgery 8/10/2016 Radiation Therapy 9/6/2016
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Sep 21, 2022 07:24PM serendipity09 wrote:

Turbokitten - there seems to be more activity on the thread you started.

I have no information for you regarding fat necrosis, but I hope someone can share their experience with you.

It's difficult to not become alarmed with any lump/bump. Hopefully they'll get this resolved for you and it will just fat necrosis. <3

Are you scheduled to see someone for this?

"You can't wait until life isn't hard anymore, before you decide to be happy" - Nightbirde Dx IDC, ER-/PR-, HER2-
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Sep 22, 2022 06:27AM anothernycgirl wrote:

Turbo,

I've had fat necrosis and it is very common! It can be identified on a sono, - did you have one? Yes, it can change in size.

Have you had your recheck yet? Let us know how it went!

Hugs from NYC

Dx 1998, DCIS, Stage 0 Surgery 3/17/1998 Lumpectomy; Lumpectomy (Left) Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/10/2000 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel Chemotherapy 7/31/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/11/2001 Breast Hormonal Therapy 2/11/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/24/2014 Lymph node removal; Lymph node removal (Left); Lymph node removal (Right); Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 5/1/2014 AC + T (Taxol) Surgery 11/19/2014 Reconstruction (Left); Reconstruction (Right) Surgery 1/13/2015 Reconstruction (Right): Tissue Expander Surgery 5/27/2015 Reconstruction (Right): Latissimus dorsi flap, Silicone implant Surgery 2/21/2016 Reconstruction (Left): Fat grafting, Nipple reconstruction; Reconstruction (Right): Fat grafting, Nipple reconstruction
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Sep 22, 2022 02:29PM cookie54 wrote:

turbokitten, I don't have a personal experience with fat necrosis but I just wanted to give you a virtual hug. We all know and understand how our thoughts sometimes run wild. I hope your follow-up went well, sending good vibes.

Hi to all the tnbc sisters, sometimes it feels little lonely in the tnbc world. Sending hugs and good vibes to all!

Current Tx: Xeloda& Keytruda ,lung mets 6/22 Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/13/2016 Mastectomy; Reconstruction (Left): Saline implant; Reconstruction (Right): Saline implant Chemotherapy 10/13/2016 AC Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, 5/8 nodes, ER-/PR-, HER2- Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine) Surgery 10/18/2020 Lymph node removal; Lymph node removal (Right) Radiation Therapy 11/22/2020 Whole breast: Breast, Lymph nodes, Chest wall Chemotherapy 7/1/2022 Other Immunotherapy 7/5/2022 Keytruda (pembrolizumab) Dx IDC, Other, Stage IV, ER-/PR-, HER2- Chemotherapy Xeloda (capecitabine)

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