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Sep 28, 2010 11:20AM
Aug 20, 2013 10:49AM
I was very glad to hear from you again and to learn about your details and experiences.
I did not suffer very much from my treatment With both the chemotherapy and the radiotherapy I was just more tired than I usually was. I did not suffer much from my surgery either. I suppose this could be because I had never been ill before. A diagnosis of breast cancer came as a big shock, especially because a large tumour appeared to come from nowhere. I hear this comment quite a bit from women diagnosed with triple negative breast cancer. The tumour seems to come from nowhere and grow very quickly. I was very frightened, was in pieces for a day, then became very quiet and started to think about treatment etc.
The first thing I did was to start serious reading about breast cancer and I read a book entitled The Cancer Directory by Dr Rosie Daniels. I would recommend it to anyone diagnosed with breast cancer or any other cancer. I delayed treatment for quite a while, and I would not recommend this to other women. I did see alternative doctors, and they were very honest with me, and told me to have the conventional treatment. Once I had made that decision I went through everything very calmly. I had an excellent woman consultant, and excellent woman oncologist, and an excellent homeopathic doctor. The homeopathic doctor was recommended to me by my consultant and I saw that homeopathic doctor for almost five years and found her really helpful. She gave me medication at each stage of my treatment, and I believe it helped me.
Before accepting conventional treatment I went armed with written notes full of questions to both my consultant and oncologist, and they were always willing to answer any questions. I found out about triple negatives through my own research and then asked my consultant/oncologist any questions. It was very frightening to discover that a diagnosis of triple negative breast cancer is generally considered not to be good. However, I wonder if it is any different to any other BC diagnosis. Women do survive it. The difficult thing is that you feel strange, even lonely, because you do not have the back up medication that women with hormonal breast cancers have. However, hormonal medication, such as Tamoxifen and Arimidex, do have their side effects, and do not work for everyone.
I also found out that most, but not all, triple negative breast cancers, are described as "basal like", but I am not sure what this means.
I did see a genetic nurse, buit she said that I did not need genetic testing for the BRCA1 or BRCA2 gene. She said this because of my age and because only one family member, my maternal grandmother, had had breast cancer and that was in old age. If anyone feels they would like to have genetic testing, they should press for it, because I think it may be easier to get it than it was five years ago when I was diagnosed. At least I discovered, on my own, that triple negative breast cancers acted in a similar way to genetic ones, because of silenced genes, not damaged ones.
One thing that did surprise me, during a conversation with my oncologist, was that she said my triple negative breast cancer may not have started as such, but may have mutated from a different kind.
I recently read that research was being done in trying to sensitise triple negative breast cancers to oestrogen, so that they could be treated with Tamoxifen. I would welcome any information about this from anyone viewing this forum. I do not know whether changing breast tumours like that is a good idea.
I have also been reading about proton radiotherapy that is less damaging than the radiotherapy that we currently have. Apparently it is available in other countries, but NICE is only just starting to think about it for the NHS. I think there may be certain hospitals here where you can get it.
Let us hope that some kind of preventive treatment will soon be available for us triple negatives. As for the cause of our cancer, we may never know, but there is almost certainly not one cause.
Is there anybody out there that was diagnosed with hyperparathyroidism at the same time as their breast cancer or before or afterwards? I was diagnosed with hyperparathyroidism at the same time as the breast cancer, and had surgery to correct this only last year. Some research indicates a connection between hyperparathyroidism and breast cancer. You can find information about this on the internet. There is also research about breast cancer and exposure to light at night. I have intiated forums about these on this site.
That is about all for today. Please keep this forum going. Sylvia.
Let your food be your medicine and your medicine be your food - Hippocrates B.C. 390 Preadjuvant chemo 3 months epirubicin, cyclophosphamide, 3 months docetaxel. Mastectomy RB Sentinel node pos Radiotherapy 3 weeks + boosters
6/20/2005, IDC, 6cm+, Grade 3, 1/7 nodes, ER-/PR-, HER2-
10/31/2005 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel)
5/16/2006 Lymph node removal: Right; Mastectomy: Right