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Sep 12, 2018 06:05PM
Just thought I'd pop in to report on my mum's treatment and say hi.
Well, she's almost three weeks into her first cycle and about to start her second on Saturday. It's been a mixed picture. She had a rare allergic reaction to the one of the anti-sickness meds at the very beginning, but this was diagnosed and dealt with very efficiently by the JR hospital. A week later, she started feeling hot and cold, took her temperature, and it had risen to 38.1, so she went into hospital and spent 5 days there on IV antibiotics until her temperature came down and her neutrophil level went up.
We always knew the latter was a common occurrence during chemotherapy- and the doctors were never very concerned, but any hospital visit always adds a bit to the anxiety-levels (anyone who read my past message about my recent 4 day stay in hospital for suspected but misdiagnosed cervical cancer will understand that any emergency hospital admission leaves me feeling a bit wobbly!)
To balance the picture for anyone new/facing chemotherapy: the rest of the cycle hasn't been too bad. She has not been sick once (which she's so pleased about), bowels have been fine, and the only major symptom has been deep fatigue. She is up to pottering round the house and round the block, and has a few visitors, but does spend a fair portion of the day in bed. She is not really feeling ill though(even while she had her infection) and her morale is not too bad. She is 73 though, and the deep fatigue may in part be due to the effect of chemo on a "more elderly"person.
Gill - it sounds as though you are getting lots of support on this brilliant forum. What a whirlwind it must all be for you-a rare subtype of a rare subtype of cancer, where it is hard to find much research. In your case, I think your seeking a private second opinion is absolutely the right thing to do. In fact doing all you can to find her oncologist who has seen the most cases of your type of tumour (luckily Google makes this much easier these days)
When my mum was first diagnosed, I set up a second opinion with a triple negative expert at Guy's Hospital, London. It was really helpful as our initial consultation in Oxford had suggested that my mum should not have chemo, despite it being the only real option in Triple Negative IDC tumours, because she was over 70. The second opinion oncologist absolutely turned this on its head and said of course she should have chemo, being generally fit and well. He said he would definitely have advised his own mother to have it at 73 if she had been in a similar position. He then referred us to a third opinion doctor back in Oxford, who said the same as him!
Susie - think you're in the run-up to your radiotherapy now , or have you started it? Sorry, hard to keep up. Anyway, I do hope it all goes well. You seemed to do very well on chemo- I loved your comment about feeling like the prize patient because the doctor commented you "seemed to have tolerated chemo rather well"!
Ellen: what's her latest with your mum?
Sylvia- I went to a Healthy Eating session at Maggie's cancer centre with a cancer dietician last week. Lots of interesting stuff, which I'll put down in another message. She, like you and Mary, recommended The Rainbow Diet book along with some other books, which I'll track down the names of.
It is an overcast and rather gloomy day here in Oxford, with a definite feel of autumn in the air. My children have all gone back to school now, but, with my mother's various minor crises, I seem to have a lot to keep me occupied. Today I volunteer at my children's school's gardening club. I dread to think what our patch will look like after a summer of neglect, but there should be lots for the children to "slash and burn"at any rate!
Love to all
IDC Er-Pr-Her2- 2cm 0/3 nodes Grade 3