Log in to post a reply
Nov 8, 2018 05:32AM
I have been enjoying your descriptions of autumnal changes and walks - the descriptions of the East Anglian coast particularly strike a chord with me. My father (who, following an out-of-the-blue head injury in his mid-70s is now like someone with advanced dementia) has lived on that coast with his partner for about 8 years. He is in Aldeburgh, Suffolk, so not that far from Norwich. Southwold is also familiar to me.
My dad enjoyed moved to Aldeburgh about four years before his accident, and , since then, it has actually been a brilliant place for him. It has just about been possible to keep him at home with a carer (and his partner is 15 years' younger than him and still very energetic) and he spends much of the time sitting in his chair gazing out at the sea and at the "promenaders" on the main coastal path. I think it is a very peaceful place when your mind is as beleaguered as his is.
Although what happened to him is terribly sad, we have, over time, adjusted to it, and the knowledge that he spends his days watching the sea and the wonderful East Anglian skies, fed and watered by kind people and his devoted partner, is comforting to me (relatively-speaking of course).
Of course, it also allows me to concentrate on my mother. Speaking of which (or I should probably say "speaking of whom") she is going to be starting paclitaxel next Tuesday after a 5 week break from chemo! We were worried about the length of break, but Dr L assured us that it wasn't a problem, and that the effects of the AC chemo (the positive effects against the cancer) would have carried on during that break; the effects don't just stop when you end the cycle.
My mum is doing much much better now, and , as I mentioned earlier, reluctant to start drug therapy again. However, as Gill/Susie said with the Zometa, if the cancer comes back, she doesn't want to think "what if I hadn't tried it.."
As discussed before, she will definitely be paying for it ( she hasn't told me how much). She will therefore be treated at the private hospital in Oxford, and have "private" consultations with Dr L as part of this.
It is, as you have all said, pretty shocking that this is the case, but , for now, we are going to direct our energy towards looking after her while she undertakes this new chemo-challenge. Afterwards, I think I will take this matter higher...
I do appreciate you all thinking of me and my mum, and sympathising with her regarding her ordeal.
Mary- it is comforting to hear that you were not able to finish the Taxol, but are almost 5 years' out of treatment doing well (and congratulations again on that). I seem to hear so many stories of people who took chemo in their stride, and, if they have "success stories", I don't feel I can extrapolate from them to my mum, who (whatever happens with Taxane) won't have completed the recommended cycle.
It does really help to hear from others who weren't able to complete the treatment but have still gone on to do well, so thank you for admitting that Taxol was really hard on you too.
I do know, ultimately, that luck plays a big part in one's outcome with cancer (luck in the doctors one has; the country one lives in; the body one inhabits; the forum one is on!) and I try not to nurture too many expectations re: my mum's outcome, either positive or negative. She is doing the best she can, given trying circumstances, and that is all any cancer patient does. That said, I am trying to encourage her to eat a bit more healthily and drink less, because what harm can it do!
Gill - it sounds as though your chemo is going pretty well so far. Susie, I hope the burn heals soon. Sylvia, I hope life is trundling along comfortably and that Raymond has recovered from his fall.
IDC Er-Pr-Her2- 2cm 0/3 nodes Grade 3