Share with others who have ER-/PR-/HER2- breast cancer.
Posted on: Sep 29, 2011 04:24AM - edited Feb 20, 2021 01:37AM by Moderators
Thought you all might be interested in this podcast from Breastcancer.org: Hope After a Triple-Negative Breast Cancer Diagnosis
And this blog post: You CAN Survive Triple-Negative
Hope you find this helpful!
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Posts 1 - 30 (611 total)
Dec 25, 2011 08:39AM lilredpony wrote:
I sure hope so!!! I am very hopefuly since I'm on stage 1V, and adriomycin, and taxol not work. I'm currently on erubulin and prayers. Definitely need to have some positive vibes as the holidays doesnt help me feel any better, it's pretty bad, i'm sorry
Dec 31, 2011 09:02AM Reality wrote:
Thanks for the post - The truly negative connotation of Triple Negative really hit me when I overheard an RN, who was new to my center, and not onc. trained, comment to the other nurse that it was too bad that I had the "worst case scenario" - my heart just sank when I heard him -
Jan 13, 2012 02:01AM journey4life wrote:
I experienced a similar reaction when talking to a patient navigator. I got an "Oh" when talking about TNBC. Got an "OH (more pronounced)" when I mentioned BRCA1. It is encouraging to know that we can survive!
mcharl - you're an inspiration!
Jan 24, 2012 07:55PM - edited Jan 24, 2012 07:56PM by mcharl
No one, please hear me no one, can say how you will handle cancer or treatment but you. Nurses should be ashamed to project their own negative reactions onto patients, what hooey. Hang on, smile at these people and walk away knowing that they are clueless. Big hug.
Jan 25, 2012 05:31AM - edited Jan 25, 2012 05:32AM by chumfry
I've had TNBC twice and I'll be five years out from the second one this April. Mine was even two separate types of tumor, medullary in 2005 and IDC in 2007. You don't see lots of TN old-timers here on BC.org but that just means they've gone on with their lives.
At the beginning, you take it one day at a time. Then a week at a time, then a month. Nowadays, I don't even notice when my "cancerversaries" go by. <grin> I'm not saying I wasn't forever changed by BC, but the fear does eventually subside and your real life starts back up.
Mar 26, 2012 09:43AM EllieH7 wrote:
I must agree with you on the time thing. I was dx in May of 2010 with TNBC and I am almost 2 years out now, and there are times I think about it and other days it is far from my mind. Life is good, but God is great. Amen!!
Mar 31, 2012 08:23PM dtholden wrote:
I just completed my DIEP free flap surgery a couple of weeks ago and recovery is going well. My chemo treatments of 4 months prior to my surgery went well with mnimal side effects. I am feeling very good....walking twice a day, eating super healthy...not taking any meds due to almost no pain...just a tad bit sore at times. I am simply amazed on how well I am feeling after such a major surgery.
Even though I was diagnosed Triple Negative, I feel blessed that things have gone so well and I hold to the belief that I will not have a reoccurrence. I live in the moment ...enjoy each day to the fullest...I know that I must die one day but it won't be anytime soon :-)
You are all strong warriors...and I believe that we will all share a "truimph of spirt" over this adversity once we complete our surgeries, treatments and get on with living and loving our lives!
Everyone stay blessed and strong!
Apr 18, 2012 05:58AM tropixchick wrote:
Grateful I read this today. I was diagnosed in April 2010 and have gone through chemo and radiation. Most days, I don't even think about it much, but some days (like today), I do and I worry. Thanks for the upbeat blog.
Apr 23, 2012 12:40PM shirley1946 wrote:
I am a new March 18,2012 had a mastecomy left side, and the got the news triple negative, Stage 2a, and then i went and saw my oncologist, very incourageing, no negative, Her2 is 2+ so i do have a chance with a trail, havent heard yet but i am hopeful. Had a port-cath put in my left shoulder and we start ACT chem on April 26,2012, with God's support and my framily and friends, the first day of chemo should be an event, plus maybe the trail (Herseptrmin) bad spelling, sorry, Anyone else, my thoughts are with you, if you dont have a support group, you get one, it helps to be on the positive side of this.
Apr 25, 2012 10:03PM gauravbhatia1979 wrote:
My mom has recently been diagnosed with Stage 2a breast cancer. She has undergone Modified Radical Mastectomy. Her Histopathology report says that she has triple negative cancer. Margins and lymph nodes were all negative. Scores were ER = +1, PR = 0, HER2 = 0. What are her chances to fully recover so that this does not recur ? what are the further treatment courses she needs to undertake ?
Apr 30, 2012 04:50AM Clowngirl wrote:
I want to post to this thread as I can really use the support right now. I am a triple neg. Getting BMX on June 10th with no reconstruction. I am very concerned about my options. BS says I will need rads and chemo. I won't have any more info until path comes back from BMX. I'm quite depressed so anything positive that anyone can give me so that I can hold on to hope?
Thank you, all.
Apr 30, 2012 07:35AM njprn wrote:
I'm grateful to find this blog. I'm newly diagnosed (Jan) and as you all know it has been a wind tunnel since. Just a FYI if anyone is considering options. I enrolled in a trial at Dana Farber in Boston which is chemo before surgery (neoajuvent) for 12 weeks,,followed by surgery (which I still haven't decided on yet), followed by 4 more cycles of chemo (AC) then radiation most likely. The trial drugs are Cisplatin, Taxol and Rad (Everlimus sp??) or placebo.I just finished tx #10 and side effects have been tolerable. I get examined every three weeks and the tumor, about 3cm to start, can't be felt now on exam!! I met another woman in the trial who had similar results. Hopefully this is good news for TN treatment. We need to be positive not negative (sorry for the pun) . Support and best to all........ Nance
Apr 30, 2012 10:08AM mb1024 wrote:
Welcome, Nance, and that's great news!
Apr 30, 2012 02:47PM Moderators wrote:
Nance, thanks for sharing the great news about your experience with a clinical trial - congratulations!
gauravbhatia and Clowngirl, you've found a good source of information and support! You can read more medically-reviewed information about Triple Negative Breast Cancer on the main Breastcancer.org site (click to go to the link).
There is also a very active and helpful forum Triple Negative here in the discussion boards, where you can connect with other members who are experiencing what you are.
May 3, 2012 09:20AM - edited May 3, 2012 09:24AM by Read2nyt
Had LCIS on rt side, Ductal carcinoma on the left, and 3/15 lymph nodes affected. Did surgery,chemo, radiation and later herceptin. Have been great, BUT... That was 8 years ago. Now, I am battling a NEW attack on the right. Lobular Carcinoma, 26/26 nodes, and breast cancer cells in my colon. All of this was found thru a fluke, my tumor markers were going up...still nothing shows up on my breast MRI, mammo, sono. We cannot find a primary tumor, but assume there must be one. I am not BRAC 1 or 2 positive, and I have stumped the regional tumor board. Scared out of my mind...just started abraxane, but since no one can find a primary source, I am not purposeful to a trial...what would they measure? Has anyone survived this? Please respond. Thanks a lot.
May 10, 2012 12:02AM njprn wrote:
I don't know if it has to be measurable. But there was a recent article reporting that a Canadian study made some discoveries regarding TNBC. When I went to research that it led me to another drs review on research being done on TN. He reviewed PARP inhibitors and Cisplatin ( a trial I'm doing) and the Cisplatin showed promise with Taxol. Cisplatin is an old drug but not used on BC as much. There is also research about Tyrosine Kinase inhibitors for TN. Maybe you can ask your onc about it there are drugs you can try.