Topic: Long term survivor examples.

Forum: Triple-Negative Breast Cancer — Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: Dec 17, 2013 12:46AM - edited Dec 17, 2013 12:53AM by banr

Posted on: Dec 17, 2013 12:46AM - edited Dec 17, 2013 12:53AM by banr

banr wrote:

Just an idea came across my mind.

Can we share stories and examples of long term triple negative survivors. They dont participate in such forums. So its only by word of mouth that we get to hear about them.

But I also see few of them in this website, who themselves are long term survivors. I feel so happy to see how they have moved on so beautifully with their lives.

I know two such women. Both close to 10 years out of diagnosis. Both without any family history of cancer.

One diagnosed in 2003 and another in 2004. Both were in their late 30s then. Those days they were not aware that they were triple negative. But they say that tamoxifilin didnot work on them, they had only surgery chemo and radiation. So in all probability they were tnbc patients.

One was stage 1, another stage 2b. One had 6 rounds FEC and another had 6 rounds TAC. They both have yearly check ups now and are leading completely normal lives.

I also know another woman, who got diagnosed 5 years ago but stage 3, body didnot respond to tamoxifilin and had complete mastectomy. She had 6 rounds TAc, plus rads. Living a normal life...and put the entire episode behind her.

If you also know someone having similar treatment and diagnosis years ago and is still living ...please share. It will be very insipiring.

Love u all!!

Theory of randomness...so unfair! Dx 9/12/2013, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 9/30/2013 Lumpectomy; Lumpectomy (Right) Chemotherapy 11/6/2013 AC + T (Taxol) Radiation Therapy 3/11/2014
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May 26, 2014 09:55AM MomMom wrote:

Jan69,  I didn't think anyone was too old to be tested for BRAC.  If you don't mind my asking, why was that?  Even though I'm 67, it was important for me to be tested as it would have changed my treatment had I tested positive.  Just wondering.  More importantly though, I have a daughter and 5 of my 7 grandchildren are granddaughters.  I wanted to know for them.

Dx 1/9/2014, IDC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER-/PR-, HER2- Surgery 1/29/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 2/26/2014 AC + T (Taxol) Radiation Therapy 8/7/2014 Breast, Lymph nodes
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May 26, 2014 10:05AM - edited May 27, 2014 09:45AM by shorfi

This Post was deleted by shorfi.
Dx 8/31/2004, IDC, Left, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2-, Dx 6/19/2013, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2-, Dx 8/1/2013, IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2-,
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May 26, 2014 01:29PM megomendy wrote:

Ozzygirl, thanks for posting for us. I love your motto about not waiting for the Cancer shoe to drop.

Meg Dx 2/2013, DCIS, <1cm, Stage 0, Grade 3, ER-/PR- Surgery 3/14/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 12/2013, IDC, 2cm, Stage IIA, 0/0 nodes, ER-/PR-, HER2- Surgery 1/29/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel
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May 26, 2014 02:15PM placid44 wrote:

I think insurance may not pay for BRAC testing after age 45. I was 44 at diagnosis.

Ki67: 70%; beltwaybreastcancer.blogspot.com Dx 8/20/2012, IDC, 3cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Chemotherapy 8/29/2012 AC + T (Taxol) Surgery 2/12/2013 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 3/26/2013 Breast, Lymph nodes Surgery 11/25/2013 Reconstruction (left); Reconstruction (right)
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May 26, 2014 05:41PM jarris77 wrote:


I don't know about all insurances but was 56 at diagnosis (last year) and my insurance paid for my BRCA testing.

Dx 5/15/2013, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 6/4/2013 Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 7/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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May 26, 2014 07:25PM MomMom wrote:

Insurance differs but paid for mine at age 66.  If you are triple neg BRAC + or - can make the difference between lumpectomy or mastectomy.

Dx 1/9/2014, IDC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER-/PR-, HER2- Surgery 1/29/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 2/26/2014 AC + T (Taxol) Radiation Therapy 8/7/2014 Breast, Lymph nodes
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Jun 5, 2014 08:49PM - edited Jun 5, 2014 08:52PM by StefS

I'm one of those ten that is not on here much anymore. I'm approaching my 10 year anniversary of finishing treatment and after that my 11 year anniversary of hearing the surgeon tell me, "You have cancer, but we don't know what kind."

I was Stage 3c, triple negative with all 21 nodes involved, including several all matted together. There is hope!!!

I do not have either of the BRCA genes. And with the US Health care act/Obamacare, the testing is covered, at least according to the main company doing it. I did the test years ago.

If you can't say anything nice, don't say anything at all. Dx 8/13/2003, IDC, 1cm, Stage IIIC, 21/21 nodes, ER-/PR-, HER2- Surgery 10/31/2003 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 12/3/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Breast, Lymph nodes
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Jun 6, 2014 08:04AM simplelife4real wrote:

StelS....THANK YOU for posting.  As someone with TNBC stage 2b and did not get a pCR, I needed to see your post!!

Dx 8/1/2013, IDC, 2cm, Stage IIB, Grade 3, 2/11 nodes, ER-/PR-, HER2- Chemotherapy 9/5/2013 Taxol (paclitaxel) Chemotherapy 12/3/2013 AC Surgery 2/13/2014 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Radiation Therapy 4/1/2014 Breast, Lymph nodes
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Jun 6, 2014 10:39AM Lettinggo wrote:

StefS, yes, thank you for posting. We all need to hear survivor examples like yours. take good care!

Simplelife4: Sorry to hear about the PCR situation...  Did they recommend radiation because you did not get a PCR or just because you had a lumpectomy?  I am sure you will be fine... Sending love and prayer to all you ladies and survivors- yes we can do it. We can kick cancer's ass regardless.  

I choose to empower myself with Divine Love and Protection and let go of fear, helplessness and hopelessness Dx 1/7/2014, IDC, 2cm, Stage II, Grade 3, ER-/PR-, HER2-
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Jun 6, 2014 04:37PM simplelife4real wrote:

Lettingo, I would have had rads with either an MX or LX because I was clinically node positive (confirmed by a biopsy of the node) at the time of my initial diagnosis.  Also, the neoadjuvant therapy got rid of all the detectable cancer in my breast, but I was still had a small amount of cancer in two nodes after chemo...so no matter what kind of surgery I had, I still would have needed rads.

Dx 8/1/2013, IDC, 2cm, Stage IIB, Grade 3, 2/11 nodes, ER-/PR-, HER2- Chemotherapy 9/5/2013 Taxol (paclitaxel) Chemotherapy 12/3/2013 AC Surgery 2/13/2014 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Radiation Therapy 4/1/2014 Breast, Lymph nodes

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