Topic: Long term survivor examples.

Forum: Triple-Negative Breast Cancer — Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: Dec 17, 2013 12:46AM - edited Dec 17, 2013 12:53AM by banr

Posted on: Dec 17, 2013 12:46AM - edited Dec 17, 2013 12:53AM by banr

banr wrote:

Just an idea came across my mind.

Can we share stories and examples of long term triple negative survivors. They dont participate in such forums. So its only by word of mouth that we get to hear about them.

But I also see few of them in this website, who themselves are long term survivors. I feel so happy to see how they have moved on so beautifully with their lives.

I know two such women. Both close to 10 years out of diagnosis. Both without any family history of cancer.

One diagnosed in 2003 and another in 2004. Both were in their late 30s then. Those days they were not aware that they were triple negative. But they say that tamoxifilin didnot work on them, they had only surgery chemo and radiation. So in all probability they were tnbc patients.

One was stage 1, another stage 2b. One had 6 rounds FEC and another had 6 rounds TAC. They both have yearly check ups now and are leading completely normal lives.

I also know another woman, who got diagnosed 5 years ago but stage 3, body didnot respond to tamoxifilin and had complete mastectomy. She had 6 rounds TAc, plus rads. Living a normal life...and put the entire episode behind her.

If you also know someone having similar treatment and diagnosis years ago and is still living ...please share. It will be very insipiring.

Love u all!!

Theory of unfair! Dx 9/12/2013, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 9/30/2013 Lumpectomy; Lumpectomy (Right) Chemotherapy 11/6/2013 AC + T (Taxol) Radiation Therapy 3/11/2014
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Nov 28, 2020 01:22AM yellowdoglady wrote:

Good for her! My hair came back very different. I called it poodle hair. I hated it. But when I see the photos now, it looked really different but good on me. My hair is now halfway down my back again, and it is not the same color as before, but it is behaving as I remembered before.

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Jul 9, 2021 03:11AM kayrem wrote:

Hi. Just dropped in to say I passed my 10 year since diagnosis on June 30. I was diagnosed at the age of 46 with stage 3, 4 nodes positive, triple negative breast cancer. After a lumpectomy and treatment found out I had a Brca 1 mutation so I had a some prophylactic surgeries and am doing well. I saw my oldest graduate grade 12 and have done a lot of great living with purpose! Take care everyone and stay safe

Dx 6/13/2011, IDC, 2cm, Stage IIIA, Grade 3, 4/11 nodes, ER-/PR-, HER2- Surgery 6/30/2011 Lumpectomy; Lumpectomy (Right) Chemotherapy 9/15/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxol (paclitaxel) Radiation Therapy 2/21/2012 Breast, Lymph nodes Surgery 3/14/2013 Prophylactic mastectomy; Prophylactic mastectomy (Left); Prophylactic mastectomy (Right) Surgery 5/21/2013
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Jul 9, 2021 08:00PM cookie54 wrote:

Woohoo Kayrem!!!!! So happy to hear from a fellow TNBC sister who is thriving. It gives me great hope as I am restarting my clock after a recurrence. Thank you for popping in and giving us all the hope we need. Congrats to you and happy to hear you are living life with a purpose. Be well.

Current Tx: Xeloda& Keytruda ,lung mets 6/22 Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/13/2016 Mastectomy; Reconstruction (Left): Saline implant; Reconstruction (Right): Saline implant Chemotherapy 10/13/2016 AC Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, 5/8 nodes, ER-/PR-, HER2- Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine) Surgery 10/18/2020 Lymph node removal; Lymph node removal (Right) Radiation Therapy 11/22/2020 Whole breast: Breast, Lymph nodes, Chest wall Chemotherapy 7/1/2022 Other Immunotherapy 7/5/2022 Keytruda (pembrolizumab) Dx IDC, Other, Stage IV, ER-/PR-, HER2- Chemotherapy Xeloda (capecitabine)
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Jul 10, 2021 07:08PM kayak2 wrote:

Another 10 year survivor / thriver here. There are SO MANY of us! We just don't post any more. Some pop in here on a yearly basis just to say hi. Hang in there. One day it will be you posting your long term stats!

Dx 5/2011, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 6/4/2011 Lumpectomy; Lumpectomy (Right) Chemotherapy 7/19/2011 AC Chemotherapy 9/13/2011 Taxol (paclitaxel) Radiation Therapy 1/16/2012 Breast
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Oct 7, 2021 09:17AM tibet1 wrote:

hi Yellowlady, what kind of treatment did you get? I read you are doing Mamograph each year? Did you have lumpectomy? thanks,

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Nov 11, 2021 03:21PM Fiercer wrote:

9 years out! Keep pushing forward

Dx 2/14/2013, IDC, Left, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2-, Chemotherapy 3/14/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/7/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 7/15/2013 Breast, Lymph nodes
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Nov 12, 2021 02:27PM maryjv wrote:

thank you Fiercer

Dx 11/22/2019, IDC, Right, 1cm, Stage IB, Grade 3, ER-/PR-, HER2- Chemotherapy 12/30/2019 AC + T (Taxol) Surgery 3/27/2020 Mastectomy; Mastectomy (Left); Mastectomy (Right) Surgery 8/27/2020 Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap
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Nov 12, 2021 04:17PM SJSmith52 wrote:

In 6 months I will be a 5 year TNBC survivor. My cancer was stage 1, no lymph node involvement. I received radiation but no chemo or pills. I worry that the lack of more treatment increases my chance of recurrence. I am 69 years old, no family history of cancer

Dx 5/27/2017, DCIS, Right, <1cm, Stage 0, Grade 1, 0/2 nodes, ER-/PR-, HER2- Radiation Therapy 7/15/2017 3DCRT: Breast
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Nov 24, 2021 05:55PM yellowdoglady wrote:

Hi tibet1,

Today I am 13 years from TNBC diagnosis. Yay! I had a lumpectomy and axillary lymph node dissection. Four of the fourteen lymph nodes were affected, so the dx was Stage IIB. I did six rounds (18 weeks) of chemotherapy with Taxotare and Cytoxin, then daily radiation for seven weeks. Yes, a mammogram every year, and more often if there are any changes detected. And Prolia for bone density. So far, all is well.

I recently learned from my aunt that we do in fact have a family history of BC. My great great grandmother had BC in the 1920s. She was treated with radium, and lived into her 80s. I had no idea.

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