Topic: Long term survivor examples.

Forum: Triple-Negative Breast Cancer — Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: Dec 16, 2013 11:46PM - edited Dec 16, 2013 11:53PM by banr

Posted on: Dec 16, 2013 11:46PM - edited Dec 16, 2013 11:53PM by banr

banr wrote:

Just an idea came across my mind.

Can we share stories and examples of long term triple negative survivors. They dont participate in such forums. So its only by word of mouth that we get to hear about them.

But I also see few of them in this website, who themselves are long term survivors. I feel so happy to see how they have moved on so beautifully with their lives.

I know two such women. Both close to 10 years out of diagnosis. Both without any family history of cancer.

One diagnosed in 2003 and another in 2004. Both were in their late 30s then. Those days they were not aware that they were triple negative. But they say that tamoxifilin didnot work on them, they had only surgery chemo and radiation. So in all probability they were tnbc patients.

One was stage 1, another stage 2b. One had 6 rounds FEC and another had 6 rounds TAC. They both have yearly check ups now and are leading completely normal lives.

I also know another woman, who got diagnosed 5 years ago but stage 3, body didnot respond to tamoxifilin and had complete mastectomy. She had 6 rounds TAc, plus rads. Living a normal life...and put the entire episode behind her.

If you also know someone having similar treatment and diagnosis years ago and is still living ...please share. It will be very insipiring.

Love u all!!

Theory of randomness...so unfair! Dx 9/12/2013, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 9/30/2013 Lumpectomy; Lumpectomy (Right) Chemotherapy 11/5/2013 AC + T (Taxol) Radiation Therapy 3/10/2014
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Jan 23, 2014 07:31AM Mercygirl wrote:

Hi ladies, hold on to your hats! I am a 62yr old , 4 time, yes FOUR time, TNBC survivor. My journey began 23, yes TWENTY THREE, yrs ago!!! I was 39 yrs old with one child which was born when I was 18yrs old. So keep your chin up, your ears and eyes open and your mind on the future. I was sure I had been handed a death sentence all 4 times. But, by the grace and mercy of God, and a great medical team, here I am 23yrs later watching my 9 grandchildren play in the yard, taking care of 2 adorable dogs and a dozen chickens. Life isn't over it just gets a little bumpy sometimes. I'll be glad to answer any questions about my diagnoses and treatments. Feel free to ask.

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Jan 24, 2014 06:02AM - edited Jan 24, 2014 06:05AM by banr

you will pnak! do keep us posted on your progress

all the best

Theory of randomness...so unfair! Dx 9/12/2013, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 9/30/2013 Lumpectomy; Lumpectomy (Right) Chemotherapy 11/5/2013 AC + T (Taxol) Radiation Therapy 3/10/2014
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Jan 24, 2014 06:10AM banr wrote:

Hi Mercygirl!

congratulations ... and a very big one on top of that.

You are a brave lady to go through this 4 times and come out of it too!! Could you share with us a little more about your treatment. 23 years ago...i believe those days there was no chemotherapy too.

Will love to be in touch with you...you are such an inspiration!!

May you live a long healthy life...you will be in my prayers always and thanks a lot for sharing your story

Theory of randomness...so unfair! Dx 9/12/2013, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 9/30/2013 Lumpectomy; Lumpectomy (Right) Chemotherapy 11/5/2013 AC + T (Taxol) Radiation Therapy 3/10/2014
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Jan 29, 2014 05:00PM h0pe wrote:

Hello - I am ER/PR+, but I have a very good friend who is a 20 yr (+) survivor. Back when she was diagnosed, they did not test for Her2, but she was ER/PR negative. She had a 5cm tumor and 5 lymph nodes involved. After 4 rounds of AC and Taxol, radiation...she is doing great! She was diagnosed at 42 and is 62 now. 

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Jan 29, 2014 09:34PM banr wrote:

Thanks for sharing this h0pe!! My good wishes to you and your friend for a long healthy life

Love and hugs

Theory of randomness...so unfair! Dx 9/12/2013, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 9/30/2013 Lumpectomy; Lumpectomy (Right) Chemotherapy 11/5/2013 AC + T (Taxol) Radiation Therapy 3/10/2014
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Feb 6, 2014 11:03PM - edited Feb 7, 2014 10:51AM by Meggy

Mercygirl, your post is so moving, you made me cry.  What an inspiration.  

I just hit the 6 year mark.  No recurrence in sight.

Meg

See my 10 years out post regarding my extensive treatment. Triple Negative IDC Neoadjuvant chemo 2/08 of 4 dose dense A/C then 4 Taxol, Then Bilat in 6/08, then 2 more AC, then 4 Carboplatin/Taxotere. Then Radiation. Node Positive (5+). Dx 1/9/2008, IDC, Right, 2cm, Stage IIIA, Grade 3, ER-/PR-, HER2- Chemotherapy 2/2/2008 AC + T (Taxol) Surgery 5/10/2008 Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 6/4/2008 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 9/10/2008 Breast, Lymph nodes Dx
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Feb 7, 2014 07:29AM banr wrote:

good going Meggy! 6 years means the "risky" phase is over..congratulations!! wish you more years of good health...

you went through neo adjuvant chemo. did you go through more chemo after surgery? did you achieve Pcr?

Theory of randomness...so unfair! Dx 9/12/2013, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 9/30/2013 Lumpectomy; Lumpectomy (Right) Chemotherapy 11/5/2013 AC + T (Taxol) Radiation Therapy 3/10/2014
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Feb 9, 2014 05:04PM megomendy wrote:

My mother is a 30 year breast cancer survivor, but we have no idea if she was triple negative. Do you think there are any records from that far back that we could access? I think tamoxifen was new then and her doctor didnt give it to her.

Meg Dx 2/2013, DCIS, <1cm, Stage 0, Grade 3, ER-/PR- Surgery 3/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 12/2013, IDC, 2cm, Stage IIA, 0/0 nodes, ER-/PR-, HER2- Surgery 1/28/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel
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Feb 9, 2014 10:26PM banr wrote:

Thats wonderful megomendy!! I wish your mom a long and healthy life and congrats to her on completion of 30 years!!

Hospitals these days do preserve slides. There are regulations for that. Some preserve for as many as 40 to 50 years is what i hear. do check with the hospital where her surgery was done and in case they have her slide preserved you can get it evaluated. you might get some information which may be valuable for you. did you or your mom get checked for brca1 and brca2?

Theory of randomness...so unfair! Dx 9/12/2013, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 9/30/2013 Lumpectomy; Lumpectomy (Right) Chemotherapy 11/5/2013 AC + T (Taxol) Radiation Therapy 3/10/2014
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Feb 10, 2014 08:10PM megomendy wrote:

I was just checked for BRACA and am negative. My mom never got tested, but two of my sisters were checked after my diagnosis and they are negative. I come from a family of 6 girls, so when I was diagnosed, they were concerned about their probability of BC. My maternal grandmother also had BC, but she and my mother were both postmenopausal. I'll have my mom call her hospital just to check about the slides, on the chance they are available.

Meg Dx 2/2013, DCIS, <1cm, Stage 0, Grade 3, ER-/PR- Surgery 3/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 12/2013, IDC, 2cm, Stage IIA, 0/0 nodes, ER-/PR-, HER2- Surgery 1/28/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel

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