Topic: Long term survivor examples.

Forum: Triple-Negative Breast Cancer — Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: Dec 16, 2013 10:46PM - edited Dec 16, 2013 10:53PM by banr

Posted on: Dec 16, 2013 10:46PM - edited Dec 16, 2013 10:53PM by banr

banr wrote:

Just an idea came across my mind.

Can we share stories and examples of long term triple negative survivors. They dont participate in such forums. So its only by word of mouth that we get to hear about them.

But I also see few of them in this website, who themselves are long term survivors. I feel so happy to see how they have moved on so beautifully with their lives.

I know two such women. Both close to 10 years out of diagnosis. Both without any family history of cancer.

One diagnosed in 2003 and another in 2004. Both were in their late 30s then. Those days they were not aware that they were triple negative. But they say that tamoxifilin didnot work on them, they had only surgery chemo and radiation. So in all probability they were tnbc patients.

One was stage 1, another stage 2b. One had 6 rounds FEC and another had 6 rounds TAC. They both have yearly check ups now and are leading completely normal lives.

I also know another woman, who got diagnosed 5 years ago but stage 3, body didnot respond to tamoxifilin and had complete mastectomy. She had 6 rounds TAc, plus rads. Living a normal life...and put the entire episode behind her.

If you also know someone having similar treatment and diagnosis years ago and is still living ...please share. It will be very insipiring.

Love u all!!

Theory of randomness...so unfair! Dx 9/12/2013, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 9/30/2013 Lumpectomy; Lumpectomy (Right) Chemotherapy 11/5/2013 AC + T (Taxol) Radiation Therapy 3/10/2014
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Mar 18, 2014 04:18PM psp2pdx wrote:

Hi 

Just checking in….I'm now 8 years out from dx/surgery/tx with Adria+Cytoxin and external beam radiation.

I live my life best I can but honestly I'm aware that things could change regardless of how many years out I am.  I think once you're dx'd you have a tendency to look over your shoulder.  Also I say be your own best advocate, read up and stay informed.  Best to all!

Grateful Dx 2/4/2006, IDC, 1cm, Stage IB, Grade 3, 0/2 nodes, ER-/PR-, HER2-
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Mar 18, 2014 04:33PM Allydp wrote:

BanR, sorry I missed your post to me until just now! You know what, I don't know how my aunt knows it was TN. I'll have to ask her. I didn't even realize they didn't do the testing back then. Maybe it was her recurrence that was TN? Like I said, she doesn't remember all the specifics, but she was adamant about the TN fact. I'm curious now myself! 

Alicia - Dx at 33, BRCA2+ Dx 1/30/2014, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 2/4/2014 Lymph node removal: Sentinel Chemotherapy 2/24/2014 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 8/15/2014 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/8/2014 Prophylactic ovary removal Surgery 1/20/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 18, 2014 04:42PM inspiredbydolce wrote:

I know of a lady who is a 10+ year TNBC survivor, diagnosis was 1.5 cm and within 3 weeks it went to 6 cm while they were reviewing treatment options.  She was stage 3 with 11/13 nodes positive.  She does yoga, low fat and healthy eating.

After breast cancer, it's Plan B (as follows): Low-fat, low sugar, fish, veggies, whole grains, fruits, water, green tea; 6 hrs moderate-vigorous exercise weekly; and Metformin. If you need info about Metformin to discuss with your Onc, PM me. Dx 12/27/2011, IDC, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 1/3/2012 Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 2/1/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 5/29/2012 Reconstruction (Left); Reconstruction (Right)
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Mar 21, 2014 05:56PM maywin wrote:

Hi- I'm eleven years out!! You don't hear from us long term survivors because after five years or so, we don't check back in very much! I make a special point to come by once in a while to say hello. Otherwise, I'm out living my LifeSillyHeart

Dx 2/25/2003, IDC, Right, 2cm, Stage IIB, Grade 3, 0/14 nodes, ER-/PR-, HER2-
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Mar 22, 2014 03:55AM Carol99 wrote:

Thank you Maywin, you are an inspiration!  I plan on the same for myself, live my life.  

My cousin, who is a cancer survivor tells me I'm in the PTSD stage. . .last chemo was 2/10.  

Carol

I connected with my birth mother 10 years ago and discovered I am BRAC 1 positive. Surgery 8/22/2011 Prophylactic ovary removal Dx 9/13/2013, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 11/3/2013 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 12/15/2013 AC Chemotherapy 1/7/2014 AC Chemotherapy 1/26/2014 AC Chemotherapy 2/9/2014 AC
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Mar 22, 2014 06:56AM JanJan70 wrote:

This year will be 10th year surviving triple negative BC. This is my first post here. It was too hard to frequent these forums when I was first diagnosed. Life is good! Hang in there.

Dx 12/3/2004, IDC, 2cm, Stage IIB, Grade 3, 2/9 nodes, ER-/PR-, HER2- Surgery 12/11/2004 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Chemotherapy 1/5/2005 AC + T (Taxol) Radiation Therapy 5/8/2005 Breast, Lymph nodes Surgery 12/28/2005 Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 7/18/2013 Prophylactic ovary removal
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Mar 22, 2014 03:02PM msjag wrote:

Jan and May, thanks for stopping in and giving many such hope and inspiration!  I am hoping to do the same for others throughout the years. 

Dx 9/29/2010, IDC, 1cm, Grade 3, 0/2 nodes, ER-/PR-, HER2-
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Mar 27, 2014 10:12AM banr wrote:

Thanks ladies for sharing your stories!!

I wonder what lifestyle changes you made post your treatments. Do share.. 

I for one, have been always high in Soya, Vegetables, Fruits and Exercise ( alcohol, cigarettes etc a complete No, very low in meat, hardly consume junk or pre processed food and never had any hormonal supplements) and I really am confused what else should I do post treatment. Will be cutting down on milk products and eliminating the 1 cup coffee I used to have. Nothing else I can think of..and yes, take life easy and eliminate stress etc 

Ally:  Along with BRCA you have also inherited the fighting spirit from her. I am sure you are going to do very well..

Theory of randomness...so unfair! Dx 9/12/2013, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 9/30/2013 Lumpectomy; Lumpectomy (Right) Chemotherapy 11/5/2013 AC + T (Taxol) Radiation Therapy 3/10/2014
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Mar 28, 2014 10:28AM Lettinggo wrote:

Thank you all ladies again for the inspirational posts.  BanR, Has anyone tried raw food and juicing?  I have always been high on veggies, fruits and exercises too.  also can someone please tell me what 0/3 lymph nodes mean? Thank you all!

I choose to empower myself with Divine Love and Protection and let go of fear, helplessness and hopelessness Dx 1/7/2014, IDC, 2cm, Stage II, Grade 3, ER-/PR-, HER2-
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Mar 28, 2014 12:12PM lintrollerderby wrote:

Lettinggo: that would mean 3 lymph nodes were biopsied and zero were found to have cancer. 

Diagnosed at age 34 on 11 May 2011 • IDC • Right • 1.3 cm • Stage I • Grade 3 • 0/3 nodes • ER-/PR-/HER2- • Triple Negative and Basal-Like • Ki-67: 76% • P53: 64% • BRCA1+ (no family history) • BRCA1 mutation: IVS5-11T>G (known deleterious mutation) Surgery 4/27/2011 Lumpectomy: Right Surgery 5/30/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 6/22/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel)

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