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Mar 4, 2019 06:15PM
I have a question for all my triple negative sisters. I finished my last Xeloda just over a year ago and I I wanted to check to see if anyone else was dealing the same issues I've been struggling with.
Starting December 2017 (while I was still on Xeloda) I began an exercise and diet regime in order to get to a good BMI. I started walking five miles a day, six days a week and working out rigorously five days a week. I also started a healthy diet at the same time .
I kept up that same routine for nearly all of 2018. Over those 11 plus months, I lost exactly one pound. That's right. One freaking pound. And I wasn't even building muscle.
I know my body, and how it behaves with diet and exercise. Even after menopause, I normally would have lost fifteen to twenty pounds with what I was doing. But I didn't.
I knew something was wrong. I've been to 3 endocrinologists, thinking there had to be something wrong with my thyroid or parathyroid. But nothing showed up.
Then yesterday, while my daughter and I were discussing it, she said I wonder if Xeloda is to blame. It's a pretty harsh chemo. I replied yeah, but A/C was even more harsh. Then she said something that really has me thinking. She said A/C is an infusion chemo. Xeloda is an oral chemo. Maybe it destroyed all of your good gut bacteria and that's why your body is so messed up.
It was like a lightbulb went off. I know gut bacteria plays a huge role in health, and weight loss. And I'm particularly susceptible to issues with my gut bacteria after a nasty bout of C-diff about 6 years ago. I'm wondering if that's why I've struggled so much with my weight this last year.
Has anyone else noticed that kind of a change after Xeloda? Like your body isn't the same after the chemo?
I'm going to be starting a probiotic/prebiotic rebuilding process to see if that helps. I'd be interested to hear if anyone else has dealt with anything similar.
8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2-
8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2-
9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2-
9/28/2016 AC + T (Taxol)
4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
8/5/2017 Xeloda (capecitabine)