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Topic: stage 3 survivors

Forum: Triple-Negative Breast Cancer —

Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: Nov 9, 2016 12:23PM - edited Nov 9, 2016 12:24PM by Rainy213

Rainy213 wrote:

Hey all! Looking for some inspiration from those with stage 3 triple negative. It seems to me that most people who do well with lymph node involvement only have 1-2 involved. I have at least 4..so feeling defeated. Thanks for sharing!

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Nov 10, 2016 01:06AM lululani wrote:

Dear Rainy123,

I am overjoyed to give you hope! I had 8 nodes positive. 5 nodes were visible to the naked eye & 2 of them looked like a "circus peanut," according to my surgeon. I am a 6+ year survivor.

Dx 5/20/2010, IDC, <1cm, Stage IIIA, Grade 3, 8/24 nodes, ER-/PR-, HER2-
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Nov 10, 2016 11:42AM Rainy213 wrote:

So great to hear...I dont think i would like to hear my nodes referred to as circus peanuts! Lol. Congrats to you.

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Dec 1, 2016 11:51PM AnnaMO wrote:

Hey Rainy! You know what helped me is a friend who had Stage 4 TN in many of her nodes. It's 16 years later and she's still here. You and I are lucky that there's so much new research on TN and better treatments. I had 6 nodes with residual cancer, along with residual in at the huge friggin' lump I had found in October 2015. After surgery I had 4 more chemo infusions (Carboplatin). Then, into the the easy bake over for rads. My family and I were dancing with NED. Now the onc is suggesting Xeloda. Waiting to the insurance company to approve. You may want to ask your doctor about the Japan Study regarding Xeloda (capecitabine). It's a promising study that has shown risk reduced by 1/3 - 1/2.


It's empowering to be your own advocate. You'll get through this! And Lulani...thank you for sharing! Awesome!

Anna Dx 12/4/2015, IDC, Right, 2cm, Stage IIIA, Grade 3, 6/17 nodes, ER-/PR-, HER2- Chemotherapy 12/28/2015 AC + T (Taxol) Surgery 5/12/2016 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Prophylactic ovary removal Radiation Therapy 10/10/2016 Lymph nodes, Chest wall Chemotherapy Carboplatin (Paraplatin) Chemotherapy Xeloda (capecitabine)
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Dec 2, 2016 12:14PM - edited Dec 2, 2016 12:18PM by LovesLoons

Since I've only had this a month ... I'm not going to inspire much as far as survival, but I just posted about the research treatment trial I am in that seems very promising. Heart I think many here have smaller tumors than I have and fewer nodes (no specific count but they only biopsied 1 and many, including intramammary nodes, are BIG). TNBC is scary but I agree that there are a lot of new things coming through phase II/III trials. Hope abounds. Smile I'm stage III B I think... and diagnosed T3 or T4 depending on doctor, N2, M0. No specific stage until after surgery, but the size itself puts me in stage III I believe. :)

May 2017 MRI found 20ish small brain mets, biggest one in cerebellum. Whole brain radiation done for 3 weeks, triple negative, grade 3. Did AC and other chemo. Now doing Cisplatin for as long as it works and can handle it. Dx 10/4/2016, IDC, Right, 5cm, Grade 3, 1/1 nodes, ER-/PR-, HER2-
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Dec 2, 2016 01:56PM KSteve wrote:

Rainy213 - I'm 6+ years out from a large TN tumor and lymph node involvement (see my specifics in my signature line below). I'm doing great! I understand where the fear is coming from. We all go through that. You didn't mention at what point you are within your treatment. Just remember, you are not a statistic. Keep putting one foot in front of the other and you will find yourself where I am before you know it!

Hugs,

Kathy

Dx 9/3/2010, IDC, 6cm+, Stage IIIA, Grade 3, 3/15 nodes, ER-/PR-, HER2- Chemotherapy 9/21/2010 AC + T (Taxol) Surgery 1/8/2011 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 3/15/2011 Breast, Lymph nodes Surgery 6/1/2011 Reconstruction (left); Reconstruction (right) Surgery 12/6/2011 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 1/23/2014 Reconstruction (right): Latissimus dorsi flap, Tissue expander placement Surgery 4/4/2014 Reconstruction (left); Reconstruction (right)
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Dec 2, 2016 04:24PM Jojobird wrote:

I am so grateful to hear these stories as well. Just started radiation, after surgery and adjuvant chemo. My tumor was 7 cm and I had 21 nodes. My last scan was NED. One step at a time, and praying for a long future ahead.

My blog: pinkstinks.blog/ Dx 3/2016, IDC, Right, 6cm+, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2- Surgery 4/18/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Dx 4/2018, IDC, Right, 5cm, Stage IIB, Grade 3, ER-/PR-, HER2- Chemotherapy 4/26/2018 Taxotere (docetaxel), Xeloda (capecitabine) Chemotherapy AC + T (Taxol) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Dec 2, 2016 05:25PM - edited Dec 2, 2016 05:26PM by Kayrem

Hi- thought I would join. I am over 5 years out from diagnosis. The first 2 years were pretty tough as I found out I was BRCA 1 after a year and had a couple of prophy procedures. But it has definitely gotten better! I still get scared but then I get distracted and then I am good. Get through treatment and you will be fine. One big thing this cancer thing has done for me is drilled home that I need to have hope and faith that I will be okay. You will also be okay

Dx 6/13/2011, IDC, 2cm, Stage IIIA, Grade 3, 4/11 nodes, ER-/PR-, HER2- Surgery 6/30/2011 Lumpectomy: Right Chemotherapy 9/15/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxol (paclitaxel) Radiation Therapy 2/21/2012 Breast, Lymph nodes Surgery 3/14/2013 Prophylactic mastectomy: Left, Right Surgery 5/21/2013 Prophylactic ovary removal
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Jan 22, 2017 05:47PM eruyle wrote:

I'm not really any inspiration either as I was diagnosed in October and am currently undergoing chemo...but just wanted to say I'm stage 3 also! Thank you all for sharing your stories of inspiration

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Feb 10, 2017 01:52AM Winters74 wrote:

just curious for those who are Stage 3c, what treatments have you done? I completed treated last May; 4 rounds of tc. Doctor doesn't think we got it all or I had a recurrence quickly afterwards. Tumor is in chest wall was found accidentally which was 3 auxiliary nodes stuck together, 2 were only found to be positive. There was also a paratracheal lymph node light up but after biopsy this week they found no cancer. I have already started chemo but doctor felt if it was cancerous we wouldn't of found some traces of it. Today, I had my 3rd round of chemo and in 2 weeks, I go for my 4th and will learn what chemo I will do next. I am really trying to educate myself self on successful treatments since the first time around I had no clue.

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Feb 20, 2017 01:47AM SSInUK wrote:

winter socks am not tn but just bumping this for you - hope you get some responses. So orry for what you are going through. I also had nodes found shortly after treatment, know how that feels - but Drs emphasised recurrencecis different from 'persistence of disease' or a 'geographical miss'. There is hope.. x

Dx 11/2014, IDC, Left, 5cm, Stage IIIA, Grade 2, 5/17 nodes, ER+/PR+, HER2+ Dx 3/30/2016, IDC, Left, Stage IIIC, 2/2 nodes, ER+/PR+, HER2- Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lymph node removal: Underarm/Axillary Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Surgery Reconstruction (left): DIEP flap Hormonal Therapy Femara (letrozole) Radiation Therapy External: Lymph nodes
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Feb 20, 2017 07:05PM - edited Feb 20, 2017 07:06PM by MinusTwo

This Post was deleted by MinusTwo.
2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Feb 20, 2017 07:07PM MinusTwo wrote:

Sorry, I didn't see the triple negative forum designation.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Apr 4, 2017 08:48AM Edna10 wrote:

Hi Ladies,

My mother is a TN on RT brest with 3 lymph nodes involved that are obvious we will find out if there is any more once she gets surgery according to her onc/surg. She isdone with her taxol tretment and is about to start with her a/c treatment any advise? Ive read horror things about it. She is still working and I would'nt want her to feel more usless that what she already feels... thanks and best wishes to all...

Dx 11/7/2016, Right, 1cm, Stage IIIA, Grade 3, ER-/PR-, HER2- Chemotherapy 12/29/2016 TAC
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Apr 5, 2017 11:42AM KSteve wrote:

Edna10 - Hi! I had the same chemo as your mom and was able to continue working throughout. I had chemo every other Thursday, so I would take that Thursday and Friday off. I thought it was very manageable. Although all of us would have wished to be anywhere else! If you haven't already, come to the Calling All TNs thread. Wonderful group of supportive women (and men) there. Fingers crossed that she will do just fine. One day at a time!

Hugs,

Kathy

Dx 9/3/2010, IDC, 6cm+, Stage IIIA, Grade 3, 3/15 nodes, ER-/PR-, HER2- Chemotherapy 9/21/2010 AC + T (Taxol) Surgery 1/8/2011 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 3/15/2011 Breast, Lymph nodes Surgery 6/1/2011 Reconstruction (left); Reconstruction (right) Surgery 12/6/2011 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 1/23/2014 Reconstruction (right): Latissimus dorsi flap, Tissue expander placement Surgery 4/4/2014 Reconstruction (left); Reconstruction (right)
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Aug 13, 2017 07:35PM WorryWartSuzie wrote:

Know that just reading your post inspired me, as well. I am in radiation therapy after bilateral mastectomy lymph node resection, 4 cycles of AC and 12 of Taxol. I'm not triple negative (ER positive only), but this post made me so happy I almost jumped out of my office chair!

Dx 9/28/2016, DCIS/IDC, Stage IIIC, 11/11 nodes, ER+/PR-, HER2- Surgery 10/30/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 11/28/2016 AC + T (Taxol) Radiation Therapy 7/12/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 7, 2017 03:15PM Edna10 wrote:

Hello ladies, just wondering if any of y'all stage 3 TN had xeloda aside from there chemo treatment. I have heard that this medication gives you better surviving rates? Any info? My mom doesn't have an appt with Onco dr till Oct. As of right now she is on her 23rd radiation treatment and doing okay. Hope y'all are doing wonderful

Dx 11/7/2016, Right, 1cm, Stage IIIA, Grade 3, ER-/PR-, HER2- Chemotherapy 12/29/2016 TAC
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Sep 16, 2017 06:55AM Cpacino wrote:

when I was newly diagnosed this thread gave me so much hope and I promised if I made it to my 5 year cancerversary. I would revisit and post my survival. I was DX after the birth of our 3rd baby and found the lump while nursing him... of course I assumed the lump was from a clogged milk duct... that assumption got me a TN stage 3 DX... after chemo. DMX. More chemo. Radiation. Genetic testing. Oophorectomy. Reconstruction. Countless scans. I am cancer free! A lot of worries in between...my youngest is now 6. My beautiful daughter is now 8 and my oldest son is turning 16! Life is always full of surprises but the biggest surprise is im here to love and enjoy my husband and children. Forward. Onward. Outward

Pathological Complete Response! Forward, Onward, Outward! Dx 9/28/2012, IDC, Left, 3cm, Stage IIIA, Grade 3, 3/8 nodes, ER-/PR-, HER2- Chemotherapy 10/5/2012 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel) Surgery 2/5/2013 Mastectomy: Left, Right Surgery 8/2/2013 Prophylactic ovary removal Radiation Therapy
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Sep 16, 2017 06:56AM - edited Sep 16, 2017 06:56AM by Cpacino

This Post was deleted by Cpacino.
Pathological Complete Response! Forward, Onward, Outward! Dx 9/28/2012, IDC, Left, 3cm, Stage IIIA, Grade 3, 3/8 nodes, ER-/PR-, HER2- Chemotherapy 10/5/2012 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel) Surgery 2/5/2013 Mastectomy: Left, Right Surgery 8/2/2013 Prophylactic ovary removal Radiation Therapy
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Dec 27, 2017 02:34AM mkn86 wrote:

not a lot of responses but i am grateful to have stumbled onto this thread. i am currently mid-way with neo adjuvant chemo. i have a log way to go and sometimes i can’t help but wonder.

thank you for sharing your stories and i do hope to hear from more of you.

- kat Dx 8/11/2017, IDC, Right, 5cm, Stage IIIA, Grade 3, ER-/PR-, HER2- Chemotherapy 9/6/2017 Cytoxan (cyclophosphamide), Ellence (epirubicin) Chemotherapy 11/9/2017 Carboplatin (Paraplatin), Taxol (paclitaxel)
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Dec 27, 2017 08:25AM KSteve wrote:

mkn86 - I am over 7 years out, so there are lots of us out there. Just busy living life and not on the boards every day. Life is amazing for me. I'm in the midst of planning my daughter's wedding in September 2018. I can honestly say that cancer is not on my mind nearly as much as it used to be. Instead of waiting for the other shoe to drop, I am living a wonderful life and enjoying every minute of it. You will get there too. Just keep putting one foot in front of the other.

Happy holidays,

Kathy

Dx 9/3/2010, IDC, 6cm+, Stage IIIA, Grade 3, 3/15 nodes, ER-/PR-, HER2- Chemotherapy 9/21/2010 AC + T (Taxol) Surgery 1/8/2011 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 3/15/2011 Breast, Lymph nodes Surgery 6/1/2011 Reconstruction (left); Reconstruction (right) Surgery 12/6/2011 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 1/23/2014 Reconstruction (right): Latissimus dorsi flap, Tissue expander placement Surgery 4/4/2014 Reconstruction (left); Reconstruction (right)
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Dec 27, 2017 09:01AM KristinWickman wrote:

Hey --

I need some encouragement. First, some history ....

  • 1998 Stage 1 DCIS found in left breast; Lumpectomy followed by Tamoxifen
  • 2005 Endometrial cancer . . . full hysterectomy
  • 1998 Stage 3C found in right breast (I don't remember the type); Involved 3 lymph nodes; Chemotherapy and radiation
Well, I've now found a new lump to the left of where the right breast was. It wasn't there in August. It seems kind of hard but it is growing. It's smaller than a golf ball. I have an appointment with a nurse practitioner on Friday (12/29). My previous surgeons from 1998 and 2008 have moved on. My original oncologist is now retired.

I'm kind of freaking out . . . No, I am freaking out. Are hard lumps common 10 years after a mastectomy?

Please help me .........


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Feb 4, 2020 01:21PM Edna10 wrote:

Hello KSteve, I am so glad that you responded when you did! So far my mom is doing good still here with us we are scheduled for that annual appt/ct scan on the 13 of Feb. I get so anxious every time we have a Dr appt. But I’m trying to stay positive and hope for the best! She has been doing good she still works full time never stopped working. She still has neuropathy going only on her feet and now she finds her self more tired easily since being diagnosed but we are blessed! I would like to here more from you!!! Thank you for your words and HOPE!!!!

Dx 11/7/2016, Right, 1cm, Stage IIIA, Grade 3, ER-/PR-, HER2- Chemotherapy 12/29/2016 TAC
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Feb 4, 2020 01:41PM KSteve wrote:

Edna10 - Crazy timing - I just signed on and haven't been on for a little bit. Glad to know your mom is doing good. I am now 9-1/2 years out and still doing great. My daughter got married a year and a half ago, and my husband and I are less then 2 years away from retirement (at 56). I was 44 when diagnosed and remember wondering if I would make it to enjoy retirement. Now it's within my grasp. I understand the fear that pops up with every doctor appointment. That gets better eventually, but never really goes away completely in my experience. My best advice is to live every day with as much happiness as you can. Not every day is roses, but most days are completely amazing and I can't wait for tomorrow! Continued best wishes for your mom's health!

Hugs,

Kathy

Dx 9/3/2010, IDC, 6cm+, Stage IIIA, Grade 3, 3/15 nodes, ER-/PR-, HER2- Chemotherapy 9/21/2010 AC + T (Taxol) Surgery 1/8/2011 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 3/15/2011 Breast, Lymph nodes Surgery 6/1/2011 Reconstruction (left); Reconstruction (right) Surgery 12/6/2011 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 1/23/2014 Reconstruction (right): Latissimus dorsi flap, Tissue expander placement Surgery 4/4/2014 Reconstruction (left); Reconstruction (right)
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Feb 4, 2020 07:12PM Edna10 wrote:

Well I appreciate the timing because sometimes you can feel like you are in this by yourself. Now, this is coming from a daughter of a survivor. I am glad that you are enjoying life with you loved ones! But I do have a Question for yo? Do you have or had any late side effects from chemo or radiation?

Dx 11/7/2016, Right, 1cm, Stage IIIA, Grade 3, ER-/PR-, HER2- Chemotherapy 12/29/2016 TAC
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Feb 5, 2020 08:58AM KSteve wrote:

Hi Edna - Other than some neuropathy in my toes, not experiencing any major side effects. And that is something that I have learned to live with. Have gotten used to the "new normal" feelings/numbness that comes along with doing a bilateral mastectomy. So I really wouldn't say that it affect my life in any way. Your mom is only 3 years out and some of that comes with time. My oncologist told me that making it to 3 years out from triple negative bc is the time to pop the champagne! If it is going to come back, it typically does it within the first 3 years, vs 5 years for other bc.

Hugs,

Kathy

Dx 9/3/2010, IDC, 6cm+, Stage IIIA, Grade 3, 3/15 nodes, ER-/PR-, HER2- Chemotherapy 9/21/2010 AC + T (Taxol) Surgery 1/8/2011 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 3/15/2011 Breast, Lymph nodes Surgery 6/1/2011 Reconstruction (left); Reconstruction (right) Surgery 12/6/2011 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 1/23/2014 Reconstruction (right): Latissimus dorsi flap, Tissue expander placement Surgery 4/4/2014 Reconstruction (left); Reconstruction (right)
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Feb 14, 2020 10:52PM Eauburn1234 wrote:

celebrated 5 years from dx last July and 5 years from surgery last month.

Dx 7/10/2014, Both breasts, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 8/1/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 1/1/2015 Mastectomy
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