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Topic: Going to MO for first time today

Forum: Triple-Negative Breast Cancer —

Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: Apr 12, 2019 07:54AM - edited Apr 12, 2019 07:55AM by Deb65

Deb65 wrote:

Any advice about questions to ask? Thanks so much. This is all so new and scary.

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Apr 12, 2019 08:42AM HappyAnyway wrote:

Hi Deb65. I am meeting my MO for the first time on Tuesday. I just wanted to let you know that you are not alone. I'm praying for you.

Like... existence could be beautiful, or it could be ugly. But that's on you. Mr. Robot Dx 4/10/2019, IDC, Right, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (IHC) Chemotherapy 4/25/2019 AC Chemotherapy 6/20/2019 Taxol (paclitaxel) Chemotherapy 7/18/2019 Carboplatin (Paraplatin) Surgery 10/29/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/1/2019 Xeloda (capecitabine) Immunotherapy 1/16/2020 Radiation Therapy 6/7/2020 Whole-breast Dx 10/2/2020, Left, Stage IIIC, Grade 3, ER-/PR-, HER2- Surgery 11/3/2020 Mastectomy: Left; Reconstruction (left): Latissimus dorsi flap Chemotherapy 12/2/2020 Halaven (eribulin)
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Apr 12, 2019 08:44AM Ingerp wrote:

I'm sure there are some wonderful threads here about what to ask but it's probably more important at this point to listen and take notes. You will get your tumor type (if you didn't already get that from your biopsy) and proposed treatment. I'd done enough research on BCO that I knew what would be recommended for me before I ever met my MO. You'll likely have a teaching session before you start chemo, if that is in your treatment plan. That will answer many/most of your questions (although, again, I'd learned so much from threads here that by the time the nurse had finished answering all of my questions, she didn't have much left to tell me). You can follow threads based on your diagnosis, your particular treatment, and there's a new "Chemo starting April 2019", "Radiation starting April 2019". . . every month. It's good to read those but also helpful to read the ones from 1-2-3 months before you start for really good recommendations/tips.

I feel it's important to keep in mind that for most of us, this is a blip--something you will get through and past. It's all-consuming now, but there will come a time when life will get <mostly> back to normal.

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/22/2016 Lumpectomy Surgery 4/19/2016 Lumpectomy: Left Radiation Therapy 5/17/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/12/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 5/17/2018 Taxol (paclitaxel) Targeted Therapy 5/17/2018 Herceptin (trastuzumab) Radiation Therapy 8/19/2018 Whole-breast: Breast
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Apr 20, 2019 07:47PM Deb65 wrote:

Hi Happy Anyway,

How did your appointment with the MO go? I started chemo last Wednesday and it all feels like its moving so fast. So far just one not so good day. How did your scans come out? It was a huge relief when mine came out clean. That was a huge fear of mine. This is so stupidly hard but we are doing it and we got this. Cancer didn't stand a chance!!!

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Apr 21, 2019 06:22AM santabarbarian wrote:

With TNBC, I would ask

-"what subtype am I?"

-"how long will you give my chemo before expecting a response, and if I do not get a response, what will you switch me to?"

-would I benefit from taking Metformin?

I was given Taxotere/Carboplatin, and I think that this combo is more tolerable than AC/T. Maybe ask about this?

pCR after neoadjuvant chemo w/ integrative practices; Proton rads. Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/11/2019 Whole-breast: Breast, Lymph nodes
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Apr 23, 2019 12:00AM Kkmay wrote:

It’s scary at first, but once you start the treatment, you’ll gain a sense of control, and thereby feel better. Just take it one day at a time.

In addition to the above questions, ask him whether he will add Carbo to your chemo. Many studies stated that it significantlyimprove outcomes for TNBC.

Dx 1/22/2019, IDC, Left, 6cm+, Stage IIIB, Grade 2, ER-/PR-, HER2- (FISH) Chemotherapy 2/16/2019 AC + T (Taxol)
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Apr 23, 2019 11:25AM Cowgirl13 wrote:

santabarbarian, what a great list of questions to ask! Kudos.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/16/2009 Chemotherapy 8/2/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/22/2010 Arimidex (anastrozole)

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