Sep 5, 2019 03:05PM santabarbarian wrote:
There are a lot of good stories on other threads in the TNBC forum. Hopefully people will chime in.
TNBC is scary, but there are some really important silver linings to remember 1. It can have an excellent response to chemo. As in, it can completely die from chemo and literally disappear. 2. After 3 years, the recurrence risk becomes very low. After 5 years, to drops to nearly zero. So unlike most cancers, you can defeat it, and then you can breathe a sigh of relief, and move on with your life and not be on meds for the next 10 or 20 years. These are NOT insignificant advantages!
Guessing you are early stage if doing surgery first, and that is great. I was 2B old staging and 3C new staging. And I had a complete response to chemo. I have a 90% chance of being well for the long haul, which is wonderful.
Newly diagnosed people should be aware that TNBC has 6 different subtypes which may have different treatment needs. It can be important to check the tumor's genetics, as your TNBC might respond to PDL1 therapies or EFGR therapies or other things on top of chemo. There may be some clinical trials you are qualified for giving chemo "plus." You may also want to find out AR receptor status... these results may guide treatment decisions.
Tons of complimentary practices can amplify chemo efficacy, and blunt its side effects.
I had a very good response to chemo and withstood the side effects other than anemia/major fatigue, whch is normal when you poison yourself 6 times!
Breathe deep, be healthy in every area (diet, exercise) and do the most aggressive treatment approach. You want to kill it dead in Round One!!