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Topic: Post treatment testing

Forum: Triple-Negative Breast Cancer —

Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: Jan 30, 2020 10:20PM

Survivor_2003 wrote:

I was diagnosed in 2003 and completed all treatment in 2004. The good news is I've been cancer free since then. A friend was recently diagnosed with TNBC which spurred me to check current info on this ....so much more genetic testing on the tumors seems to be done now vs 2003. I am wondering if tissue may have been retained which could be treated by today's standards? Would I check in with my Oncologist? Or should I consider getting genetic testing to have more info? I chose not to originally.


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Jan 31, 2020 12:35AM MinusTwo wrote:

good question. I'd like to know the answer too, even though I was HER2+

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jan 31, 2020 01:37AM Moderators wrote:

Hi there, Survivor_2003!

That is a very good question! A federal law called CLIA (Clinical Laboratory Improvement Amendments) does require labs to hold onto specimens for certain periods of time, sometimes 10 years or longer. In many cases, retained tissues are used to determine if a recurrence is related to the primary tumor, or a new cancer. In other cases, retained tissues can be used for new treatments or testing that has become available since the time of diagnosis. It may be worth a call to your oncologist and/or the pathologist and lab who reviewed and processed your original specimens to see if they're still being stored. It may be that too much time has passed, but it's certainly worth finding out!

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