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Topic: 35 years old TNBC IDC, stage 1b, grade 3,

Forum: Triple-Negative Breast Cancer —

Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: Apr 5, 2021 07:29PM - edited Apr 5, 2021 07:37PM by RanRee

RanRee wrote:

Hello,

My life was flipped upside down after finding out I had breast cancer on February 17th 2021, the same day I had surgery to remove half of my thyroid and parathyroid due to thyroid cancer. My birthday was a couple weeks before, and I was flabbergasted that at 35 I had two primary cancers, with no lymph node involvement.

Things happened quickly, MRIs, bone scans, X-rays, etc and I found out I had invasive ductal carcinoma, triple negative, stage 1b, grade 3, and the lump was 1.9cm and hadn't spread to the lymph nodes.


I had genetic testing and am negative for brac-1 and 2, though my mother (52), maternal grandmother (62) and maternal great grandmother (72) all had breast cancer. My mother and identical twin sister were tested and also came back negative...

I'm currently going through “the red devil" rounds of chemo, with 4 rounds every two weeks, and just two more left. It's been brutal emotionally and mentally and physically. And then on to taxol for 4 more rounds. I'm hoping to bypass radiation.

I've opted for a full bilateral mastectomy, no nipple sparing. I can't bare the thought of recurrence.l, though I don't know the rates and long term prognosis for me.

I'd love to hear from any other young survivors and patients. 2021 has been a hell of a year already for me.

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Apr 5, 2021 07:43PM Christmascarol wrote:

One of my rad sisters had a very similar diagnosis to you. Triple neg, 1.5 cm, micro met in one node. I don’t know the grade, but i think triple neg is usually higher grade in general? We met 4 years ago during radiation treatment. She was 50. She was told she had very good odds for a cure. She is doing great. Hang in there! Xoxo

ps. She had a mastectomy and still did the rads chest wall and lymphs. I suspect due to the micro met.

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Apr 5, 2021 09:34PM Moderators wrote:

Welcome, RanRee. We're so sorry you find yourself here, but we hope you find the support and encouragement you need in this community. You are not alone, and we're here with you!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Apr 5, 2021 10:43PM Poppy_90 wrote:

rere—I am so sorry you are here, but you have found a great place for support. I'm a fellow TN, diagnosed last May. I am not going to say I know how you feel, because it is different for us all. But I remember feeling so overwhelmed with the TN diagnosis. But, I want you to know, treatment was tough but I got through it and it was hard, but not as hard as I had feared. Lean on your care team and make sure you trust them.

I remember early in my diagnosis, I found another TN. She told me we are in a sorority that nobody wants to join, but once you do we are here for each other. That meant a lot to me, so I wanted to say the same to you. You'll find a lot of very smart and supportive people on this site. Please know that I'm here for you, too. To cheer you on, answer any questions, or just to vent to.

I may not qualify as young as you’re looking for, but was diagnosed in my mid 40s, so feel young. Also BRACA negative with a similar family history— for me it was my mom and maternal grandmother. I did chose lumpectomy with radiation. My SO and MO were very kind in taking time to explain TNBC and where we have the highest risk of recurrence. For me it was the right choice, but realize that we are all very different and it is a very personal choice. I encourage you to take all the time you need research, ask questions, and make the decision that you are comfortable with. Make sure you have all the answers you need before makeing the next step in treatment.

When I see a new TN, I feel a need to reach out, it’s a scary diagnosis. I am here for you with any questions or just to offer support. Don’t ever hesitate to reach out. I’ll be thinking of you and sending good thoughts and gentle hugs to you. And if I can do this, I know you can, too!

Kristen

Dx 5/1/2020, IDC, Right, 2cm, ER-/PR-, HER2- Chemotherapy 5/28/2020 AC + T (Taxol) Surgery 10/4/2020 Lumpectomy: Right Radiation Therapy 11/4/2020 Breast
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Apr 6, 2021 07:01AM buttonsmachine wrote:

RanRee, I'm sorry you're finding yourself here, but welcome. I'm not TN, but I was also diagnosed young.

If you haven't had surgery yet you might want to check out Beesie's thread. She did a lot of work to gather a lot of info in one place. https://community.breastcancer.org/forum/91/topics/868997?page=2#post_5644987

I mention it because there is some new data there about the effectiveness of different surgeries.

Best wishes to you.

Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/31/2017 Whole-breast Hormonal Therapy 3/31/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib) Dx 1/2021, IDC, Stage IV, metastasized to liver/lungs Chemotherapy 1/14/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Apr 6, 2021 03:01PM santabarbarian wrote:

TN is scary but the silver lining is it is a cancer you CAN get rid of and stay rid of. I am closing in on 3 years. TNBC comes back fast or not at all After 3 years you have reached a milestone and after 5 years recurrence drops to about zero. I had 3.8 cm and nodes upon diagnosis, also grade 3 9 Nottingham... had pCR after chemo.

Also: Lx + rads is equivalent to Mx for survival stats.

Hang in there, you can beat this!

Santabarbarian

pCR after neoadjuvant chemo w/ integrative practices; Proton rads. Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/13/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/11/2019 Whole-breast: Breast, Lymph nodes
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Apr 6, 2021 05:41PM Aram wrote:

Hi RanRee, I am really sorry you are here with us. I am going through AC treatment at the moment as well and totally understand what you talk about when you talk about its physical and emotional toll. Maybe join us in March 2021 Chemo group? A couple of us are going through AC at the moment and it sometimes helps to talk to others in the same boat.

Dx at 40, BRCA1 Dx 2/5/2021, IDC, Left, 1cm, Grade 3, ER-/PR-, HER2+ (IHC) Dx 2/5/2021, IDC, Left, 3cm, Grade 3, ER-/PR-, HER2+ (IHC) Chemotherapy 3/10/2021 AC + T (Taxol) Targeted Therapy 6/2/2021 Perjeta (pertuzumab) Targeted Therapy 6/2/2021 Herceptin (trastuzumab)
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Apr 6, 2021 09:03PM NorCalS wrote:

Hi RanRee.

It is overwhelming when you first get the diagnosis. Similar to Poppy-90, I was diagnosed in my mid 40’s, so not young, but young-ish. 😉. For me, the AC portion was tougher than Taxol. I had a lot of weird side effects (nails and knuckles turned black!). The taxol portion (every week for 12 weeks) felt so much easier than AC. I felt I could do a lot more and I just felt better. Hopefully, this will be the case for you. After ACT, the primary tumor shrank so much that it was undetectable on an MRI right before surgery. The only plus side to TNBC is that it does tend to respond well to chemo.

I have met a lot of women who have had TNBC and they are thriving years after diagnosis. Most have passed the 5 year mark and they have moved on from their diagnosis.

Dx 6/17/2019, IDC, Left, 6cm+, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/23/2019 AC + T (Taxol) Chemotherapy 4/5/2020 Xeloda (capecitabine) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 7, 2021 07:05AM Binks wrote:

Hi RanRae


I'll be 35 in a couple of months, just got diagnosed with triple negative grade 3 cancer, lump is 0.8/1cm. I, however, did have the BRCA 2 mutation. And my mum got breast cancer at age 50 (triple negative as well) and two of her sisters (my aunts) also had cancer. So a little different from you but we are going through this almost at the same time. You're ahead of me in treatment as I haven't started any treatment yet, I'm waiting for my double mastectomy in 2 weeks, with reconstruction and nipple sparring. My lump is deep in my breast so they say I'm a good candidate for nipple sparring so I hope it goes well. Hopefully it's not spread to my lymph nodes. So far it shows it hasn't.

My post doesn't help much since I haven't started any treatment yet, but I felt an urge to reply to you, to let you know that you're not alone. <3

2021 is an upside down year for us. Full of scary, sad, hard, emotional times. I am also getting my eggs frozen because I got my diagnosis while trying to conceive, My husband and I were devastated by the possibility of never having kids. That process will start after surgery but before chemo (without causing any delay in chemo) It's all so much to deal with, and I don't fully understand it yet.

I'm so sorry I have to be here replying to your message. I have never had any other cancer before so I'm so sorry you have to go through it again. Sending a hug your way.

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Apr 27, 2021 03:39PM NinjaMeow wrote:

Hi there! I was diagnosed at 40 and similar to you tested negative for generic disposition but I had zero history of breast cancer in the family. 3 surgeries, 8 rounds of chemo and 7 years later I am healthy, alive and well. I could not see it at the time bc it is a giant whirlwind and I found all the info about TNBC disheartening but day by day/step by step things got better. You are not alone.

Diagnosed at 40 Dx 10/9/2013, DCIS, Right, 1cm, Stage IA, Grade 3, 0/4 nodes, ER-/PR-, HER2- Surgery 11/19/2013 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 12/15/2013 AC + T (Taxol)
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Jun 30, 2021 12:48PM Easymac08 wrote:

hey! How did you decide on mastectomy? I have to decide soon. Like this week. Done a million hours of research. Can't get passed getting rads vs. Not getting rads. I have done 4 ac, 10 taxol, and got 2 more. Yesterday the mammogram and ultrasound showed it shrank from 2.6cm to .088cm. And they don't know yet if it is cancer or dead cells. Thankful for anyone's insight!

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Jun 30, 2021 04:29PM moth wrote:

Easymac08 - you may want to look at this write up from BC about new research published in May 2021

"Even after the researchers took into account all the other factors that could affect survival, lumpectomy plus radiation still offered better survival rates than mastectomy plus radiation and mastectomy alone."

Lumpectomy Plus Radiation Offers Better Survival Rates Than Mastectomy for Early-Stage Breast Cancer

https://www.breastcancer.org/research-news/lumpect...


I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Jul 2, 2021 09:22AM Easymac08 wrote:

thnk you, moth. That is what I was trying to read more about. So tricky!!

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