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Topic: New Triple-Negative Diagnosis

Forum: Triple-Negative Breast Cancer —

Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: Aug 3, 2021 07:04AM

oddboood wrote:

I'm 56 so I was not expecting this. I live in Germany, and they don't do the same sort of type/staging here, so all I know right now is that the tumor is 1.9cm and is triple negative. I'm going to go to the U.S for treatment - probably at Johns Hopkins. It's all happening so fast - I found the lump just ten days ago. I'm just really scared and overwhelmed.

Dx at 56. Trying to make lemonade. Dx 8/3/2021, IDC, Right, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 9/7/2021 Carboplatin (Paraplatin), Taxol (paclitaxel) Immunotherapy 9/8/2021 Keytruda (pembrolizumab)
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Aug 3, 2021 07:40AM mamacure wrote:

I’m sorry you have to be here. I’m TN too. It’s very scary at the beginning, but you will feel better once you have your treatment plan. Lots of good info here that you can read up on. Do your research on where, which country to get the very best care for you. Health cost in the US is crazy expensive, but good. Hang in there!

DX 3/23/21 | IDC LEFT | IBC LEFT | ER-/PR-/HER-2- (FISH) | T4b(inflammatory)N1, overall stage IIIc | Neoadjuvant Chemotherapy April 2021 Taxol, Carbo, Ketruda | Chemo May 2021 Abraxane, Carbo, Keytruda ,AC | Integrative Oncology & Accupuncture
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Aug 3, 2021 08:37AM oddboood wrote:

Thanks, mamacure. The good news is that I have U.S. insurance and am currently stationed abroad for the government, so at least I have that going in my favour. They will send me to any treatment centre, which is wonderful. I'm looking at Johns Hopkins because it is close to family and friends. Still, TN at my age is such a surprise. Was hoping to avoid chemo, but I guess that's not in the cards!

Dx at 56. Trying to make lemonade. Dx 8/3/2021, IDC, Right, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 9/7/2021 Carboplatin (Paraplatin), Taxol (paclitaxel) Immunotherapy 9/8/2021 Keytruda (pembrolizumab)
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Aug 12, 2021 10:16AM santabarbarian wrote:

Hi, there's an active thread "Calling all TNs" with many of us who have ben successfully treated for TNBC. Silver Lining: you CAN get rid of it permanently (rare for many BCs).

You will likely have chemo first. This is to make sure tumor is shrinking/responding. JHU is great; in the area, UMD also.


pCR after neoadjuvant chemo w/ integrative practices; Proton rads. Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/10/2019 Whole-breast: Breast, Lymph nodes
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Aug 12, 2021 03:26PM oddboood wrote:

Thank you, Santabarbarian! I will definitely take a look over at the calling all TNs thread. I'm discovering that managing one's cancer treatment is a full time job. I met with the surgeon at JH, but have not met with a MO. They told me I'd have surgery first and would not meet with the MO until afterwards. A survivor friend told me this is weird. Perhaps I'll post about it over on the TNs thread. I liked the surgeon, but so far working with JH has been a logistical nightmare.

Dx at 56. Trying to make lemonade. Dx 8/3/2021, IDC, Right, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 9/7/2021 Carboplatin (Paraplatin), Taxol (paclitaxel) Immunotherapy 9/8/2021 Keytruda (pembrolizumab)
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Aug 12, 2021 04:50PM MountainMia wrote:

oddboood, I think for smaller tumors, having surgery first is very typical. santabarbarian's was larger; hence chemo first.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Aug 12, 2021 05:38PM LIgma wrote:

Hi Oddboood,

MountainMia is correct. I am Tnbc diagnosed 1/20. Like you I had a small tumor. My surgery was first then chemo and then rads. How it was explained to me: Neoadjuvant chemo( chemo before surgery ) is used to shrink the tumor in order to get clear margins. The "bonus" is finding out how well the chemo is working but that is not why it is given first. Removing all cancer is always the goal. Neoadjuvant chemo is usually given when the tumor is about 2CM or larger. So having surgery first is not weird at all in your case! Message me any time if you have any questions. Wishing you a speedy recovery from surgery and an easy time through treatment. As everyone on this board says, once a plan is in place it helps you feel better!

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Aug 12, 2021 05:45PM oddboood wrote:

Thank you, Mountain Mia and Llama! You responses are very reassuring. My tumor is 1.9 cm, so I guess I'm on the cusp. I was diagnosed in Germany where they wanted to start chemo right away. Because of the Ki-67, I'm worried about how fast it is growing - they were really concerned about that in Germany. Also, they were also concerned that it is 2mm from the skin surface. I know JH has good outcomes, so I think I just need to chill - they are basing their decisions on research. It's all just a lot to take in, you know?

Dx at 56. Trying to make lemonade. Dx 8/3/2021, IDC, Right, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 9/7/2021 Carboplatin (Paraplatin), Taxol (paclitaxel) Immunotherapy 9/8/2021 Keytruda (pembrolizumab)
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Aug 12, 2021 07:47PM santabarbarian wrote:

My mistake, I thought it was 1 cm+


pCR after neoadjuvant chemo w/ integrative practices; Proton rads. Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/10/2019 Whole-breast: Breast, Lymph nodes
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Aug 13, 2021 03:16AM oddboood wrote:

Yeah, I couldn't figure out how to put the decimal in my signature. But the surgeon did say that even if it was 2.2 or 2.2, she would still do surgery first, so I guess it's not that big a deal?

Dx at 56. Trying to make lemonade. Dx 8/3/2021, IDC, Right, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 9/7/2021 Carboplatin (Paraplatin), Taxol (paclitaxel) Immunotherapy 9/8/2021 Keytruda (pembrolizumab)

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