I'm hoping to gather some info from others experience with this. I was diagnosed with TNBC last year, went through 8 rounds of chemo, then had double mastectomy, then 25 rounds of radiation. I had a complete response to chemo treatment, surgery went well they got it all out including 12 lymphnodes, radiation was just a safeguard to catch anything the PET scan didn't pick up, etc. All PET scans were clean, after chemo and after radiation.
Now dr. puts me on Keytruda and Xeloda maint. plan.....however the Keytruda caused me to develop severe hyperthyroidism....and now I have to take thyroid meds for the rest of my life.
I had to stop the keytruda while waiting to see thyroid dr. so I only had one dose of Keytruda so far.
So my oncologist wants to put me back on Keytruda....but I am extremely reluctant to go back on it because I'm concerned that the Keytruda will attack other glands (adrenal and pituitary) or organs, as it did my thyroid.
I meet with my oncologist later this week and am preparing to tell her no to the Keytruda.....but I'm trying to have a reality check and research....to see if others have had issues with Keytruda as a maint. plan drug (NOT to treat active BC- as I am currently cancer free at the moment).
I know that TNBC has a higher recurrence rate......but I am so concerned about additional side effects that could stay with me for the rest of my life, just like this hyperthyroidism. :(
Anyone else out there have this problem? I know everyone is different and react differently to treatments, etc.
Thanks for any input on this.
5/6/2020, ILC/IDC, Left, Stage IIIA, Grade 3, ER-/PR-, HER2-
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