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Topic: Single or Double Mastectomy?

Forum: Triple-Negative Breast Cancer —

Share with others who have ER-/PR-/HER2- breast cancer.

Posted on: Sep 17, 2021 06:41PM

Kayce234 wrote:

My surgeon and oncologist are pushing me towards a single mastectomy but 1st diagnosis of ER/PR+ then 10 yrs later 2nd diagnosis of Triple negative I really feel like double is the answer. Right now I've agreed to single with flap reconstruction but I see the plastic surgeon on the 21st and will make final decision. What would you do?

Dx 11/10/2011, IDC, 3cm, Stage II, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 12/7/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/17/2012 Hormonal Therapy 3/16/2012 Dx 8/24/2021, IDC, Left, <1cm, Stage IA, Grade 3, ER-/PR-, HER2- Surgery 10/20/2021 Mastectomy: Left; Reconstruction (left): DIEP flap
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Sep 17, 2021 06:48PM MinusTwo wrote:

It's a highly personal decision - and no one can know what's in your mind & heart. But for me - there was absolutely NO question. Double mastectomy. Since even then, I had a recurrence in a lymph node 2 years later, I was extremely glad I had them both removed.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 17, 2021 06:55PM Kayce234 wrote:

MinusTwo - I have such strong feelings on the double. I remember first time I wanted to do double and doctors talked me out of it - i keep thinking had I done it there is a good chance I wouldnt have this new diagnosis...

Dx 11/10/2011, IDC, 3cm, Stage II, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 12/7/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/17/2012 Hormonal Therapy 3/16/2012 Dx 8/24/2021, IDC, Left, <1cm, Stage IA, Grade 3, ER-/PR-, HER2- Surgery 10/20/2021 Mastectomy: Left; Reconstruction (left): DIEP flap
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Sep 17, 2021 07:14PM LillyIsHere wrote:

I would go for DMX to reduce the recurrence on the other breast, not to have mammograms and breast MRIs anymore, and would be easier for the plastic surgeon to make both breasts symetrical. However, it will be your personal choice and I hope you know that most of the time, you lose the sensesion once breast is removed. Are you going to a well-known cancer center? Dana-FArber or MGH?

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/30/2019 Femara (letrozole) Targeted Therapy
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Sep 17, 2021 07:29PM Kayce234 wrote:

1st time was MGH through Newton Wellesley, this time is Dana Faber and Brigham Women's. I really think I want the double but feel crazy getting it just for psychological reasons. But had I done what my heart said last time i might not be dealling with this

Dx 11/10/2011, IDC, 3cm, Stage II, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 12/7/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/17/2012 Hormonal Therapy 3/16/2012 Dx 8/24/2021, IDC, Left, <1cm, Stage IA, Grade 3, ER-/PR-, HER2- Surgery 10/20/2021 Mastectomy: Left; Reconstruction (left): DIEP flap
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Sep 17, 2021 07:52PM MountainMia wrote:

Kayce, if not for all kinds of things you don't know, you might not be dealing with this. Or you might anyway. You cannot know. People still actually can get new cancers even after mastectomies, even after double mastectomies. It almost sounds like you're blaming yourself, and I hope you can find a way to not do that. No matter what happened before, or what happens now, you made the best decision you could at the time, given what you knew then.

That said, I truly hope you can come to a decision that makes sense to you. You can listen to the experts (not us), and then choose. Then, please don't second guess yourself.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Sep 17, 2021 08:29PM moth wrote:

yes, as MountainMia said, you can get cancer even after mastectomy.

Some people get them in the remnants of breast tissue - because the surgeons can never remove it all. And mastectomies don't reduce risk of metastatic recurrence - which I haven't seen mentioned yet in this thread.

As others have said, the right answer is the one that's right for you. All the decision making is exhausting, isn't it? I hope you settle on a decision which feels good

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Sep 17, 2021 08:33PM - edited Sep 17, 2021 08:34PM by Miriandra

If you decide to get the double, there's a lot more acceptance and validation these days for women who go flat and own it. You'll find a supportive tribe out there.

Flat AF

Dx 5/31/2019, DCIS/IDC, Left, 1cm, Stage IA, 0/1 nodes, ER+ Surgery 8/14/2019 Lymph node removal: Sentinel; Mastectomy: Left
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Sep 18, 2021 07:19PM BrinkOfEternity wrote:

Have you had genetic testing done? I did and had negative result, so decided to have UMX and then DIEP flap reconstruction. I don’t mind getting ultrasound and mammogram and MRI done as I need to have follow-ups anyway. For me I don’t really regret my decision because the recovery from DIEP was harder than I thought as it was done after chemo and my immune system had taken a beating. A DMX would have been even harder for me.

If it were my second cancer however I probably would do DMX, especially if I were young and healthy enough to go through it.

Weakly ER+ so practically TNBC, neoadjuvant chemo (Abraxane) with immunotherapy (Keytruda), then surgery, then more chemo (AC) Dx 7/26/2018, DCIS/IDC, Right, 3cm, Stage IIB, Grade 3, 0/5 nodes, ER+/PR-, HER2- (FISH) Chemotherapy 9/4/2018 Abraxane (albumin-bound or nab-paclitaxel) Surgery 12/28/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 2/4/2019 AC Surgery 4/26/2019 Reconstruction (right): DIEP flap
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Sep 21, 2021 04:28PM Kayce234 wrote:

Hi all - met with Plastic Surgeon today. I'm going to do the single with the deip. No reason to punish my right breast when it did nothing wrong. Surgery seem so real and so intense but worth it. I may even get a flatter stomach out of it which BONUS! But seriously, I've research like crazy but meeting the surgeon and hearing what he said made it very real. Thank you for all the responses. Oh I did have genetic testing and my results are Braca1 uknown variant

Dx 11/10/2011, IDC, 3cm, Stage II, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 12/7/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/17/2012 Hormonal Therapy 3/16/2012 Dx 8/24/2021, IDC, Left, <1cm, Stage IA, Grade 3, ER-/PR-, HER2- Surgery 10/20/2021 Mastectomy: Left; Reconstruction (left): DIEP flap

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