Join Us

We are 216,745 members in 84 forums discussing 160,184 topics.

Help with Abbreviations

Topic: Mirena IUD/breast cancer

Forum: Clinical Trials, Research News, Podcasts, and Study Results —

Share your research articles, interpretations and experiences here. Let us know how these studies affect you and your decisions.

Posted on: Mar 16, 2010 10:35AM

Tabb2000 wrote:

I wanted to reach out and see if anyone else had Mirena when diagnosed with breast cancer?  I was only 30 years old when diagnosed and had Mirena put in about 1 year prior to me discovering a lump.  I really think there may be a connection.  I may be interested in getting together a class action suit, if there are enough of us.  Please respond if you have a similar story or know someone who does.

Dx 12/31/2008, IDC, 2cm, Stage IIB, Grade 3, 2/16 nodes, ER+/PR+, HER2-
Log in to post a reply

Page 1 of 7 (184 results)

Posts 1 - 30 (184 total)

Log in to post a reply

Mar 16, 2010 10:51AM cd1234 wrote:

I was using Mirena when diagnosed at 37. I had mine for about 3 years when diagnosed.

Dx 1/15/2009, ILC, 1cm, Stage IIA, Grade 1, 1/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Mar 17, 2010 06:06PM paml wrote:

OH my gosh!

I have been waiting for a post like this one! It was suggested that I try the Mirena IUD to correct irregular bleeding. I was 51 years old at the time. My doctor assured me that the mirena only delivers hormones to the uterus and it would be perfectly safe. That was in February of 2008.  9 Months later I had 3 cancerous tumors in my left breast and had to have a radical mastectomy. One was 5.5 Cm! I faithfully got my mammograms every year since 40. I will always believe the mirena iud caused my stage 3 cancer!

Dx 12/12/2008, ILC, 5cm, Stage IIIB, Grade 2, 2/9 nodes, ER+/PR+, HER2-
Log in to post a reply

Mar 17, 2010 06:13PM maryannecb wrote:

I still have my mirena...and have NED after 5 years at stage 3..I think if it were a factor...well i'd have relapsed by now.

Fists up! Dx 9/20/2005, IDC, 6cm+, Stage IIIA, Grade 2, 2/14 nodes, ER-/PR-, HER2+
Log in to post a reply

Mar 20, 2010 07:59PM tbarnes wrote:

Im 29 years old and had the Mirena since Sep07. Abount Sept 08 I felt a lump in my breast but didnt think about it too much as it was the size of a bb and closer to the skin then deep in the breast. In December of 09 I noticed that it was getting bigger . It would always get a little bigger for a few days out of a month then it would return the  the bb size but in Dec I noticed that it was getting bigger and staying bigger... I went to the doc and they refered me to a specialist in Dec. He did a breast exam and sent me for an ultra sound which came back inconclusive but not a cyst. So the doc wanted to do the core needle biopsy.. I had no Ins...So i spent a few months working on getting that and last Tuesday had the biopsy by the way the lump has grown from the size of a bb to the size of a gum ball. I wont know the results until this tuesday but Im kinda wondering the same as you... Im 29..  Breast cancer just dont fit in to  my schedule... Lets hope others read these comments...  Wish me luck... Ill keep you all in my prayers.

Log in to post a reply

Mar 24, 2010 08:37PM chalex wrote:

I also had a Mirena IUD placed in April 09 and I had 7-8 cm tumour that I found myself in July, 2009. I believe that sucker grew overnight. I also believe ther is a connection b/w BC and the Mirena.... I would love them to do an investigation and see if there's a direct link to the mirena and BC.

Chalex

Log in to post a reply

Mar 25, 2010 01:25PM Tabb2000 wrote:

Thank you all for your feedback!  I'll post back after I do some investigating.

Dx 12/31/2008, IDC, 2cm, Stage IIB, Grade 3, 2/16 nodes, ER+/PR+, HER2-
Log in to post a reply

Mar 30, 2010 02:53AM Melissa35 wrote:

I was watching a commercial tonight for Mirena that came on TV and started paying attention when is said "is not recommended for women with certain types  of cancer" Since I am currently going through chemo for Breast Cancer I thought I check into what type of cancers that might be. Am overwhelmed at the postings of women with the mirena that were diagnosed with breast cancer. I hope there is a study done soon and if there is a link, it is addressed right away.

 I have a 2 year old and a 13 year old and have the Mirena in 3 different times. Most recently right after my 2 year old was born. I have NO family history of breast cancer and am still in shock that I had a rediculous 10 cm tumor! Can't help but wonder if mirena may have contributed...

 I have round 5 of 8 chemo treatments in the morning and you can bet I'm going to ask my dr if I need to get this thing out....actually regardless of his answer/opinion I think its coming out!

Dx 12/10/2009, 6cm+, Stage IIB, Grade 3, 2/16 nodes, HER2-
Log in to post a reply

Mar 30, 2010 03:19AM cwepener wrote:

My Oncologist suggested I have the mirena after I was diagnosed, and after all the treatment and a year on Herceptin, the beast has come back after 3 years... I makes me wonder???

Dx 11/14/2009, IDC, 4cm, Stage IV, 2/4 nodes, ER+/PR+, HER2+
Log in to post a reply

Mar 30, 2010 01:08PM paml wrote:

Hi Melissa,

My doctor removed my mirena as soon as I was diagnosed. He said that I was never to have anything that produced hormones again since my tumors were hormone positive. I dont blame you for removing the mirena.

Pam

Dx 12/12/2008, ILC, 5cm, Stage IIIB, Grade 2, 2/9 nodes, ER+/PR+, HER2-
Log in to post a reply

Jul 20, 2010 11:15AM zenith4289 wrote:

I had a mirena from 2004-2009 for heavy periods.  went thru menopause with it.  Then this year I started having "periods" again and went to my gyn immediately.  Went for annual mammo - long story short i had bilateral ILC with 3/30 nodes positive.  2 cm was the largest tumor.  also have uterine "atypical hydroplasia" and need a complete hysterectomy.  If the mirena contributed to the breast cancer or was the cause of the breast cancer i want to know and i want to be part of any lawsuit. 

ILC in both breasts. Stage 2a for both. Arimidex for 5 years.
Log in to post a reply

Jul 20, 2010 09:43PM jdootoo wrote:

I had the Mirena placed about 4 years ago and was DX in January, 2010, although I am ER and PR negative.

There's a natural mystic blowing through the air; If you listen carefully now you will hear. This could be the first trumpet, might as well be the last: Many more will have to suffer, Many more will have to die - don't ask me why. -- Bob Marley Dx 1/29/2010, IDC, 3cm, Stage IIIA, Grade 3, 6/7 nodes, ER-/PR-, HER2+
Log in to post a reply

Aug 10, 2010 04:25PM recentlydiagnosedinOH wrote:

I was just diagnosed with Breast Cancer two weeks ago.  Since then I have found out that it is 3cm, ER-/PR-, HER2+.  I had Mirena inserted in September 2008 and I found a lump in my right breast in September 2009.  I immediately saw my OB/GYN in September 2009 and she did not think I should worry about it, but keep an eye on it. 

 The lump grew over these last few months (while still having Mirena inserted) and now have been recently diagnosed. I am 33 years old and I am having a Mastectomy on Friday. 

Is there a Mirena connection?

Log in to post a reply

Aug 10, 2010 04:38PM zenith4289 wrote:

I believe that breast cancer is listed as a risk factor for the Mirena.  I didn't think I was at risk - no family history of breast cancer so chose to use it to decrease the severity of my perimenopausal periods.  It releases progesterone into your system every day so if your tumor is PR + it is not helping.

ILC in both breasts. Stage 2a for both. Arimidex for 5 years.
Log in to post a reply

Aug 20, 2010 04:53PM caddyusa wrote:

I had mirena put in February of 2007 and September of 2008 was diagnosed w/ Breast Cancer I was 35 at the time with no family history of cancer at all , I was wonder if mirena had something to do it, but my OB/ GYN and Breast Surgeron said no, but I took mirena out soon I find out  I had Breast Cancer and I always had that in the back of my mind, was mirena or not, I had severe side effects from mirena, like fatigue, mood swing ,pain,lower libido,and about 6 months after mirena a lower imune system, I was sick all the time  getting everthing from colds to shingles.. I was  told by the doctors been like  that was pretty normal for a mother of 2 little children I had a 2 years old and a 6 months old at the time.And like some woman my lump showed over night and was growing like crazy, so today I looked to report mirena to FDA, and I think that anynone that had Cancer  after mirena should do the same ,I've been searching to see if mirena can cause cancer and what I find out that they don't have enough cases so relate mirena with Breast Cancer, but if more people report they may start to take a better look. u can go to the Mirena Official web site and scroll down a little bit and you'll see in blue report side effect to FDA, 

Log in to post a reply

Aug 26, 2010 10:24AM caddyusa wrote:

I found out a law suit going on  you can check at mirenalegalhelp.com, But also is very important to report to the FDA
Log in to post a reply

Aug 26, 2010 12:35PM Carole66 wrote:

I had the Mirena about 8 years ago and had it for 5 years, when it came time for a new one I had gotten divorced and my own insurance did not cover it. So I went without and was diagnosed with stage 2 breast cancer March 5 and just had a double mastectomy done 2 week ago. I am interested in your findings.

Dx 3/5/2010, 4cm, Stage IIA, ER+
Log in to post a reply

Oct 4, 2010 06:05PM Wiosna wrote:

I had my first Mirena put in August, 2004 while having an operation to treat what turned out to be only very minor endometriosis. Four years later, I had severe endometriosis and during that operation another Mirena was put in, i felt there was a connection between the Mirena and the endo then. In November 2009, I found a lump and was diagnosed with BC. This was exactly one year after that operation. Again, I felt there was a connection between the Mirena, the endometriosis and the BC. Needless to say I had it removed just before 3x FEC.

The cancer recurred in the same place and has metastasised. It has grown back extremely quickly. I would like to find a treatment that balances the hormones completely.

I'd also be very interested in any findings. 

Dx 8/2010, IDC, 6cm+, Stage IV, Grade 3, 2/8 nodes, mets, ER-/PR-, HER2-
Log in to post a reply

Oct 11, 2010 02:56PM angicpa wrote:

I had a Mirena inserted in June 2007. My body expelled it in October 2007. I was diagnosed April 2009.  My feeling is the Mirena didn't cause my cancer, but certainly contributed to its growth.

Dx 4/29/2009, IDC, 3cm, Grade 3, 0/2 nodes, ER+/PR+, HER2+
Log in to post a reply

Apr 12, 2011 12:33AM Wiosna wrote:

Is everyone on this thread aware of the other Mirena thread on this site? It's called Mirena IUD. A lot of other women think the two are connected as well.
Dx 8/2010, IDC, 6cm+, Stage IV, Grade 3, 2/8 nodes, mets, ER-/PR-, HER2-
Log in to post a reply

Jun 27, 2011 06:57AM lisa1427 wrote:

I had the Mirena inserted in March of 2010.  Was diagnosed with breast cancer at the age of 43 in May of this year.  As my cancer is both ER and PR positive, I was advised by my oncologist and gynecologist to have the Mirena removed, which I just did on Friday (June 24th) before starting my chemo on June 30th.

Log in to post a reply

Sep 19, 2011 10:38AM bstrongone wrote:

I am 49 and have been getting mammograms done annually since I was 40. I had a Mirna inserted in April of 2009, My mammogram done in April of 2011 came back abnormal and I have to get an ultrasound done. I am very concerned because I'm also a 35 year smoker.

Log in to post a reply

Sep 19, 2011 10:45AM mrsnjband wrote:

Just an observation from those posting.  It seems like most who have bc after using Mirena are hormone postive.  Those not affected seem to be homone negative.  

I took HRT for 14 years but my bc is triple negative I don't believe that the HRT had any affect on my getting IBC, TN.  

Just my opinion. NJ 

Norma June, Bi-lateral MX 2008, Bi-lateral DIEP 2011 Dx 1/10/2008, IBC, <1cm, Stage IIIB, ER-/PR-, HER2- Chemotherapy 1/24/2008 AC Chemotherapy 3/9/2008 Taxol (paclitaxel) Chemotherapy 5/28/2008 Taxotere (docetaxel) Surgery 7/9/2008 Lymph node removal: Right; Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy 8/10/2008 Surgery 8/14/2011 Reconstruction (right): DIEP flap Surgery 8/14/2011 Reconstruction (left): DIEP flap Surgery 12/11/2011 Reconstruction (left)
Log in to post a reply

Oct 18, 2011 02:34PM - edited Oct 19, 2011 09:05PM by Jenniferky

This Post was deleted by Jenniferky.
Log in to post a reply

Dec 6, 2011 04:54AM leelee07 wrote:

I have had Mirena for 4 yrs. I was diagnosed with Stage 3 Breast Cancer omn Oct. 17, 2011. I still have it in. I have already gone through 2 treatments. I told everyone I could tell I had Mirena and no one acted like it was a big deal. I switched oncologists and he said it needs to come out ASAP. I don't know if it has affected my treatments or not. The P.A, that put it in can't take it out until after I have another treatment. This has me concerned. Does MIrena have anything to do with getting the Breast Cancer? I have so many questions and it seems so hard to get any answers.

Dx 10/17/2011, 6cm+, Stage IIIB, ER+/PR+, HER2-
Log in to post a reply

Dec 6, 2011 04:59AM leelee07 wrote:

I would like to know if MIrena has anything to do with getting BC. I have so many questions, and feel like its so hard to get answers. I still have the Mirena in. I had told evryone I saw that I had an IUD and no one acted like it was a big deal. I switched oncologist and he says it needs to come out immediately. I have already had 2 treatments and by the time I get it removed I will have had 3 treatments. I don't know if it is affecting my treatments or not. I am a single parent of a 4year old and I am having a hard time with all of this.

Dx 10/17/2011, 6cm+, Stage IIIB, ER+/PR+, HER2-
Log in to post a reply

Dec 11, 2011 05:22AM mary625 wrote:

I had two Mirenas for a total of 9 years before diagnosis.  I was told it had to come out when diagnosed, so I had it removed.  I too thought that the hormones would only go into the uterus and not the blood stream, but apparently not.  The reason I got it in the first place was because of medical conditions not compatible with oral contraceptives.  I suspect it's no worse or better than oral contraceptives.  IMO, breast cancer research needs to take a look at all hormonal methods of contraception. 

Dx 8/29/2011, ILC, 1cm, Stage IIIC, Grade 2, 10/16 nodes, ER+/PR+, HER2- Chemotherapy 9/26/2011 AC + T (Taxol) Surgery 2/6/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right Hormonal Therapy 3/12/2012 Femara (letrozole) Radiation Therapy 3/13/2012 Surgery 9/24/2014 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Log in to post a reply

Dec 11, 2011 05:29AM Bonseye wrote:

I too had a Mirena....it was placed in May 2007. This is all interesting to me because as soon as my GYN heard I had breast cancer I had to get it out right away...so glad i found this discussion! I am going to do some research for sure!

Dx 9/14/2011, ILC, 3cm, 3/12 nodes, ER+/PR+, HER2- Surgery 10/3/2011 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 11/6/2011 Reconstruction (right) Chemotherapy 11/24/2011 AC + T (Taxol) Surgery 5/7/2012 Reconstruction (right): Free TRAM flap Surgery 5/7/2012 Reconstruction (left) Radiation Therapy 6/6/2012 Hormonal Therapy 7/24/2012
Log in to post a reply

Dec 11, 2011 05:41AM Beebop wrote:

I had Mirena placed in September 2010 and was diagnosed with BC in April 2011. I still have it, but after reading this thread I will be talking to my oncologist about it. Yikes!

Becky Dx 4/18/2011, IDC, 3cm, Stage IIB, Grade 3, 1/21 nodes, ER+/PR+, HER2- Chemotherapy 6/6/2011 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 11/27/2011 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 12/30/2011 Radiation Therapy 2/14/2012 Breast Surgery 1/7/2014 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Log in to post a reply

Jan 21, 2012 04:00AM vmkroger wrote:

Recently diagnosed and perplexed, I searched mirena and breast cancer and found this website and forum. My mirena was removed in October 2011 after five years. It helped uncontrolled bleeding. Well it looks like the five years of relief may have led to this life changing diagnosis. I'm very interested in what, if anything, is being done to determine the relationship between mirena and bc. I would love to participate in a class action suit if one exists. If not, I feel compelled to find the right lawyer. I'm very angry and scared right now. My bilateral mastectomy is scheduled for January 31.

vmk Dx 12/14/2011, ILC, 1cm, Stage I, ER+/PR+
Log in to post a reply

Jan 21, 2012 04:56AM ma111 wrote:

I ahve a mirnia and I am ER-, so no it didn't cause mine. It is such a low dose that does not go into the blood stream that you may have a hard tiem with a suit. They don't even recomend having them removed when dx with bc.

Dx 8/4/2009, IBC, <1cm, Stage IV, 19/19 nodes, ER-/PR-, HER2+

Page 1 of 7 (184 results)