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All TopicsForum: Clinical Trials, Research News, Podcasts, Study Results → Topic: Hormone Therapy with/without Afinitor (everolimus) SWOG-S1207

Topic: Hormone Therapy with/without Afinitor (everolimus) SWOG-S1207

Forum: Clinical Trials, Research News, Podcasts, Study Results —

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Posted on: Jul 16, 2014 08:55PM

Bec65 wrote:

I started this clinical trial in May 2014 and would like to connect with anyone else who is on it.  It's a Phase III trial for high risk hormone-positive, HER2- patients to see if adding one year of everolimus to hormone therapy improves disease-free survival.  Anyone?  

Also did one year clinical trial of Afinitor or placebo May 2014-15, and I think I got the drug! Dx 8/21/2013, ILC, Left, 4cm, Stage IIIA, Grade 2, 6/18 nodes, ER+/PR+, HER2- (FISH) Surgery 9/27/2013 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/30/2013 AC + T (Taxol) Radiation Therapy 2/26/2014 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/10/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/19/2014 Prophylactic ovary removal Hormonal Therapy 12/30/2014 Femara (letrozole)
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Jan 13, 2018 11:41PM DodgersGirl wrote:

cindysmom, I meet with MO Monday to talk about this trial. Can you tell me what the trial pays for in regards to tests and doctor visits?

Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/5/2017 AC + T (Taxol) Surgery 9/11/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Jan 13, 2018 11:42PM DodgersGirl wrote:

KPW3– so sorry you had progression. I hope you respond well to your next treatment.

Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/5/2017 AC + T (Taxol) Surgery 9/11/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Jan 14, 2018 01:25AM cindysmom wrote:

DodgersGirl-As far as I know it only pays for the drug everything else is considered normal care and they bill it to your insurance. Your responsible for anything they don't cover (insurance).

Dx 11/6/2016, IDC, Right, 1cm, Stage IIA, Grade 2, 2/9 nodes, ER+/PR+, HER2- Chemotherapy 11/25/2016 AC + T (Taxol) Surgery 4/4/2017 Lumpectomy; Lymph node removal: Sentinel, Underarm/Axillary Radiation Therapy 6/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy Femara (letrozole)
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Jan 14, 2018 11:36AM DodgersGirl wrote:

cindysmom, did you talk with your insurance before going on the study? If you did, wondering what kind of info did they ask you for?

Do you know if there are any CTs or scans done over the year for the clinical trial?

Sorry for all the questions.... just trying to wrap my head around all of this.

Thank you!!

Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/5/2017 AC + T (Taxol) Surgery 9/11/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Jan 14, 2018 01:42PM KPW3 wrote:

DodgersGirl, I didn't check with my insurance before hand....the study coordinator might have. I didn't have to have any additional scans, there were regular labs done, which I think my insurance covered-my cholesterol went up quite a bit, but did return to normal after the end of the trial (54 weeks is what I remember). I felt much better when the study was over...I had quite a bit of fatigue with the drug, but didn't realize how much until I was off the med. I think you cover any expenses like travel....

Dx 10/2014, IDC, 2cm, Stage IIB, Grade 3, 2/3 nodes, ER+/PR-, HER2- Surgery 1/28/2015 Lumpectomy Chemotherapy 3/2/2015 AC + T (Taxol) Surgery 7/22/2015 Lymph node removal: Underarm/Axillary Radiation Therapy 9/16/2015 Dx 11/29/2017, IDC, Left, Stage IV, metastasized to liver, Grade 3, ER-/PR-, HER2- Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Jan 14, 2018 01:51PM DodgersGirl wrote:

KWP3– thank you for sharing your experien

Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/5/2017 AC + T (Taxol) Surgery 9/11/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Jan 14, 2018 05:22PM cindysmom wrote:

DodgersGirl: I didn't check with my insurance company either, I know there are lots of labs and I'm scheduled for a PET scan in February. The only real problem I have is my blood sugar levels. Sometimes extra tired, sometimes kinda feel blah.

Dx 11/6/2016, IDC, Right, 1cm, Stage IIA, Grade 2, 2/9 nodes, ER+/PR+, HER2- Chemotherapy 11/25/2016 AC + T (Taxol) Surgery 4/4/2017 Lumpectomy; Lymph node removal: Sentinel, Underarm/Axillary Radiation Therapy 6/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy Femara (letrozole)
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Jan 14, 2018 06:14PM DodgersGirl wrote:

cindysmom— will keep you in my prayers for good PET results in February. Hope the blood sugar spikes go down after the trial.


Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/5/2017 AC + T (Taxol) Surgery 9/11/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Jan 16, 2018 01:39PM DodgersGirl wrote:

cindysmom- had meeting with clinical trial nurse this week. Asked about glucose rises due to Everolimus. She said it is a know side effect and that they have a range you A1C needs to fall in so that you can continue with the trial. I don’t have the time can’t numbers but thought she said A1C had to be below 7.x.

I have the paperwork to review. I think I will do this trial even though a year of chemo pills doesn’t sound fun.

Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/5/2017 AC + T (Taxol) Surgery 9/11/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Jan 16, 2018 10:06PM cindysmom wrote:

DogersGirl: Your right a1c needs to be 7 or less, which it normally is but it just goes high with that medicine. I added a new drug to the rest of my meds hoping to get it down. I had to stop the Afintor until its under control again, I want to stay on this trial since I'm pretty sure I actually got the real drug. Outside of blood sugar levels I'm not having any other side effects. It sure beat IV chemo. Good luck if you decide to go for it, I hope all you se are minimal.



Dx 11/6/2016, IDC, Right, 1cm, Stage IIA, Grade 2, 2/9 nodes, ER+/PR+, HER2- Chemotherapy 11/25/2016 AC + T (Taxol) Surgery 4/4/2017 Lumpectomy; Lymph node removal: Sentinel, Underarm/Axillary Radiation Therapy 6/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy Femara (letrozole)
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Jan 16, 2018 10:12PM DodgersGirl wrote:

cindysmom— hope you get to continue with the trial.

I think I will sign up later this month. I have an appt with a surgeon next week. Need to see if clinical trial is a problem with a pending surgery

Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/5/2017 AC + T (Taxol) Surgery 9/11/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes

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