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Topic: Studies recruiting participants

Forum: Clinical Trials, Research News, Podcasts, and Study Results —

Share your research articles, interpretations and experiences here. Let us know how these studies affect you and your decisions.

Posted on: Jun 5, 2019 11:48AM - edited Jun 8, 2019 08:51AM by Lumpie

Lumpie wrote:

Many of us want to be able to do SOMETHING...ANYTHING.... about this dreadful disease. If we are not practitioners or bench scientists, then communication, advocacy, studies and clinical trails may seem like all we can do ... aside from charitable giving or rendering to direct aid to those in need. So... I am starting this thread about studies - not clinical trials - related to cancer that are actively recruiting participants. Ideally, it will allow an easy and efficient way for people to learn about and sign up for relevant studies. I think it might be useful in allowing us to share information about something we can DO. It's no fun to just sit and wait! Put a bit more brutally, no one is coming to save us. We must resort to self-help.

If you know of studies recruiting, please post a bit of info and a link below.

Posters, if you have disclosures (if you work for the study/researchers or are compensated for recruitment, etc.), please note those.

Thanks.

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right
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Oct 1, 2019 05:20PM Lumpie wrote:

Help end breast cancer mortality due to recurrence

Participate in our blood drive
Become a long-term member of our translational research team

We need 500 breast cancer survivors to donate blood and join our team. Take the survey below to find out whether you are eligible for the blood drive.

If you've had breast cancer within the last 7 years, you are not currently on chemotherapy and have not had another kind of cancer, you may be eligible to donate blood!

There are no borders for this event. If you can be at the event on November 16, 2019, it doesn't matter where you live. However, we are working out details to allow remote blood collection for our next blood drive.

https://thebenchwithbedsideinitiative.usc.edu/


"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right
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Oct 1, 2019 05:29PM - edited Oct 1, 2019 05:30PM by Lumpie

The future of healthcare is co-designed with patients.

If you have "patient experience" consider signing up with Savvy.coop. Savvy is the Match.com of patient insights. Connecting people with opportunities to share their unique health experiences with professionals. Connecting companies and researchers with qualified individuals to gain diverse insights. Our Story: Once upon a time, there were two patients who were tired of healthcare innovators designing products and services without talking to patients first. They dreamed of restoring power back to patients, giving them a voice and fairly valuing their insights. Our Mission: To empower people to use their experience to create positive change. Our Vision: To create a world where it's easy to connect and learn from each other. And where profits are fairly distributed to the people who helped generate them. {Savvy is a coop which distributes profits to member participants.}

https://savvypatient-signup.paperform.co/?df4pk=cc...

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right
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Oct 9, 2019 06:43PM aterry wrote:

Lumpie, thanks for starting this great thread. I'm on the Susan Love mailing list andI got an interesting email today. Army of Women is connecting volunteers to a study of a cognitive tool. The study is in NYC. I can't participate, alas, because I'm over 65 but I hope they get their enrollment and proceed with the work. I'm curious to know more about this irksome side effect of chemo and if there is any way to lessen the damage. The researcher is: James Root, PhD, Memorial Sloan Kettering Cancer Center, New York, NY

The research team needs both women who have been diagnosed with stage 0 (DCIS) to stage III breast cancer and women who have not had cancer to participate so the researchers can compare test results between the two groups.

https://www.armyofwomen.org/studies/72128

Thanks, again.

Dx 10/13/2016, IDC, Left, 1cm, Grade 3, ER-/PR-, HER2- Surgery 4/18/2017 Radiation Therapy 5/23/2017 Chemotherapy AC + T (Taxol) Targeted Therapy Targeted Therapy
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Oct 9, 2019 08:57PM Lexica wrote:

this is an interesting one aterry - I am going to try and get in even though they say 40-65. Probably won't happye, but if it's still recruiting in 3.5 years, I can try again :)

Diagnosed at 34. 2 years of Ibrance via PALLAS trial (ends 4/2020) Dx 7/2017, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2- (IHC) Surgery 12/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Dx 12/27/2017, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 3, 5/11 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 1/16/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol)
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Oct 9, 2019 09:54PM Lumpie wrote:

Thanks for sharing that one, aterry. I got it, too. Good luck, Lexica.

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right
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Oct 10, 2019 02:28AM Trishyla wrote:

Thanks for all the great info, Lumpie. I signed up for the USC study. I'm scheduled to give them a blood sample on November 16th. Not sure what else is involved, but it's only a couple of miles from my home.

Trish

Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 8/5/2017 Xeloda (capecitabine)
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Oct 10, 2019 09:12AM Lumpie wrote:

Yeah! Thank you, Trishyla!

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right
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Nov 7, 2019 06:07PM - edited Nov 7, 2019 06:10PM by AnnC2019

This is a scam. I sent information and there was no reply. Moderators need to remove this link about cancer and poop

https://persephonebiome.com/

Dx 6/19/2019, ILC, Right, 3cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 8/15/2019 Arimidex (anastrozole) Surgery 8/28/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Radiation Therapy 11/4/2019 Whole-breast: Breast, Lymph nodes, Chest wall
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Nov 7, 2019 06:13PM - edited Nov 7, 2019 06:13PM by AnnC2019

This Post was deleted by AnnC2019.
Dx 6/19/2019, ILC, Right, 3cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 8/15/2019 Arimidex (anastrozole) Surgery 8/28/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Radiation Therapy 11/4/2019 Whole-breast: Breast, Lymph nodes, Chest wall
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Dec 9, 2019 12:30PM Hopeful82014 wrote:

I apologize for the size of this post but I couldn't get the link only to post properly.

Stage IV, HER2-Negative Women Needed for Trial Testing Neratinib Purpose of this Study: The purpose of this study is to see whether neratinib is effective in treating HER2-negative metastatic tumors that have a specific type of genetic mutation (ERBB2). The first part of this study is a preliminary screening. During this part of the study, your tumor tissue will be tested to see if it has the specific mutation the researchers are looking for. If your tumor has the mutation, you will be given more information about the main research study, which is investigating the effectiveness of neratinib. This Study Involves:

  • Medical history review
  • Blood samples
  • Tumor sample (new or previously taken)
Participating Locations:


Multiple sites in the U.S.

Researcher:
Cynthia Ma, MD, PhD
Washington University
St. Louis, MO Recruiting for:
Women with stage IV, HER2 negative breast cancer. Sign Up for This Study Forward to a Friend Not the right study? View all Studies
Dx IDC
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Dec 11, 2019 11:07AM Lumpie wrote:

Breast cancer patients throughout the U.S. starting hormone therapy needed.

Hormone therapies are routinely used to treat hormone-sensitive (ER+ and/or PR+) breast cancer. Researchers have developed online health programs designed to help women with early-stage breast cancer learn more about hormone therapy and how to enhance wellbeing.

The purpose of the My Journey Study is to compare two 8-week online health programs that have been developed to help women with early-stage breast cancer starting hormone therapy. Both programs include interactive health resources and videos. The researchers are interested in learning what aspects of these programs patients find beneficial.

https://www.armyofwomen.org/studies/72224


"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right
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Dec 23, 2019 05:31PM Lumpie wrote:

NEW HRT STUDY
Dear MiraKind Participant,


We are reaching out because you have been involved with MiraKind in the past. In case you missed it, we wanted to ask for your help on a new study to determine the role of Hormone Replacement Therapy (HRT) in Breast Cancer Risk. As you may already know, this is a very controversial area in women's health, which is lacking clear, personalized information to help guide this important decision. You may also know that currently there is strong evidence that for women with the KRAS-variant, taking HRT appears to decrease their risk of developing aggressive breast cancer. The potential protective effect of estrogen alone therapy was just confirmed in a 19 year follow up or the Women's Health Study.

The goal of this new research study is to further understand how HRT decreases the risk of cancer in women with the KRAS-variant, and to identify additional genetic markers that can identify women with an increased or decreased risk of breast cancer related to HRT.

How you can help:

1. Complete this new* survey to participate in the study.

LINK TO SURVEY

Please be sure to have 10-15 minutes available to complete it.
*Note, even if you have previously filled out a survey for MiraKind, this survey is specific to this study, so please also complete this.

2. Share this email with friends, family, or anyone you think would be interested, and ask them to follow this link to sign up to receive study information when we launch this to the broader public.

Share via FacebookShare via FacebookForward via EmailForward via Email
Thank you for helping us find answers with you to better guide important decisions in women's health!

Dr. Joanne Weidhaas
Founder, MiraKind

{I think the link may allow you to send yourself and invitation. It is brief - took me less than 10 minutes.}

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right
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Jan 22, 2020 10:59AM Lumpie wrote:

What Type of Breast Cancer Surgery Did You Choose— and Why? The WhySurg Study. The purpose of this study is to learn how a woman's beliefs and values influence her decision to select a specific type of breast cancer surgery. The researchers will use what they learn to create a decision aid that doctors can use to talk with their patients about breast surgery options. We encourage minorities and women who have had a single mastectomy to please consider participation.
This Study Involves:
  • A 30-minute anonymous online survey containing questions about your personality profile and your breast cancer diagnosis and surgery. We are interested in how your values influenced your surgical choices. You may take breaks while answering the questions. You have the opportunity to receive your personality score after completing the survey.
Recruiting for:
  • You can read and understand English.
  • You are a woman who was diagnosed with breast cancer no more than 10 years ago.
  • You were 18-59 years old at the time of your breast cancer diagnosis.
  • You had breast cancer surgery (double mastectomy, single mastectomy, or lumpectomy/breast-conserving surgery) no more than 10 years ago.
  • You are willing to complete an online survey.
  • You are anywhere in the U.S.
We encourage minorities and women who have had a single mastectomy to please consider participation.
https://survey.northshore.org/surveys/?s=7CAXFPHDYL

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right
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Mar 12, 2020 12:55PM - edited Mar 12, 2020 12:56PM by Lumpie

Have you been diagnosed with cancer? Help @ASCO understand patient experiences with cancer care by taking this 10-minute survey https://bit.ly/2HCoGuR

{Includes questions on diet/nutrition and exercise.}

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right
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Jun 10, 2020 11:31PM Lumpie wrote:

Purpose of this Study: The purpose of this study is to learn how a woman's beliefs and values influence her decision to select a specific type of breast cancer surgery. The researchers will use what they learn to create a decision aid that doctors can use to talk with their patients about breast surgery options. We encourage minorities and women who have had a single mastectomy to please consider participation.
This Study Involves:
  • A 30-minute anonymous online survey containing questions about your personality profile and your breast cancer diagnosis and surgery. We are interested in how your values influenced your surgical choices. You may take breaks while answering the questions. You have the opportunity to receive your personality score after completing the survey.
https://loveresearcharmy.org/studies/72195

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right
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Jun 29, 2020 11:13PM Lumpie wrote:

Sharing this message which I got from Poop For The Cure:

{Sorry for the short notice. I just got it today.}

Message from our CEO and Co-founder, Dr. Stephanie Culler:

I want to thank you all for helping in the fight against cancer by signing up for Poop For The Cure® over the last two years. With a strong showing of support, by poop donors in all 50 states, we have made great progress in the development of ground-breaking microbial cell therapies to end cancer. We are a small startup company and the que of poop samples and donors has kept us very busy! If you have yet to receive a poop kit, please be patient, we still want your poop as we intend to study as many poop samples as possible! In the meantime, there is one, simple request I need each of you to help us with in the fight against cancer today.

Based on data, from the poop samples we have collected to date from you all, we are seeking to work with Johnson & Johnson pharmaceuticals to help us commercialize the therapeutic derived from our research. On Tuesday June 30th 9:00am-10:00am PDT, Johnson & Johnson will be hosting an online webinar and I will be the featured speaker. The online webinar is called "Science First: The Power of the Microbiome in the Fight Against Disease". We really need your support and to show Johnson & Johnson people are interested in new therapies and options for cancer patients. We really need thousands of our Poop For The Cure participants to sign up for the free online webinar. Even if you are not able to attend the June 30 webinar, by signing up you will help to really help our efforts in the fight against cancer and COVID-19!! Click on the link below.

https://microbiome.splashthat.com

What if we could leverage the impact of the gut microbiome on the human immune system to fight one of the most devastating diseases we face today? Persephone Biosciences, a resident company of JLABS @ San Diego, is combining artificial intelligence with population-scale patient data with the aim to develop ground-breaking microbial cell therapies to treat cancer. We're bringing together Dirk Gevers, Global Head, Microbiome Solutions, World Without Disease Accelerator at Janssen R&D and Stephanie Culler, CEO of Persephone Biosciences to dive into their technology platform and its potential impact on cancer, as well as their recently developed candidate for an immune-boosting microbiome therapeutic aimed to help prevent and fight SARS-CoV-2.

Poop For The Cure®

Persephone Biosciences, Inc.

support@persephonebiome.com

JLABS 3210 Merryfield Row

San Diego, CA 92121

TEDxSan Diego

PoopForTheCure™

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right
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Jun 30, 2020 08:20AM Lumpie wrote:

Medicare Advantage For All Can Save Our Health-Care System

George Halvorson, former CEO of Kaiser Permanente, and Dr. Mehmet Oz propose here a quick and comprehensive way to provide Americans with universal health-care coverage and better health care, especially poor, underserved communities - By having health insurance bought through the highly successful Medicare Advantage program. One-third of people on Medicare have opted for Medicare Advantage because beneficiaries get better care thanks to competing plans. As the authors explain, Medicare Advantage could be expanded quickly and (they think) would be infinitely better than the highly-flawed idea of Medicare for All.

https://www.forbes.com/sites/steveforbes/2020/06/11/medicare-advantage-for-all-can-save-our-health-care-system/#155644f14d12

{An interesting suggestion for getting a universal coverage plan "out there" and available asap.}

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right

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