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Topic: TAXOL

Forum: LGBTQ With Breast Cancer —

A special and safe place for the LGBTQ community diagnosed with breast cancer to connect.

Posted on: Jan 29, 2012 10:44AM

stillhere663 wrote:

Hey Gals!

PLEASE if there are any of us out there who have had Taxol as part of Chemo regimen, would you post some of the side effects? I have looked on the net and am scared to death! I start mine as a follow up to AC in February. UGH!

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Jan 29, 2012 11:17AM MiniMacsMom wrote:

I saw your post on the actives list so I thought I would let you know about this other thread.  Under the Chemo forums that has a running list of those of us on taxol.  http://community.breastcancer.org/forum/69/topic/779535?page=1

Some have had taxol before, some after other chemo treatments, some weekly some dose dense, some every three weeks.  Read through and see if that helps you at all.  I am on weekly taxol but some of the other ladies posting are DD.  ;)  Hope this helps, Hugs.

Diagnosis: 10/25/2011, IDC, 9cm, Stage IIIa, Grade 3, 4/15 nodes + Rotter's Node, ER+/P+-, HER2-, BRCA 2+
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Feb 9, 2012 03:02AM Outfield wrote:

StillHere, I hated Taxol. Made me nauseated, pains shooting through my body,a nd this horrible weird nerve-damage itching in my feet that was really debilitating. But you get though it, and it's over.  I toolk a lot of meds to stay comfortable, listened to audiobooks,walked when feet were up to it.

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Feb 9, 2012 02:28PM stillhere663 wrote:

Thanks Outfield

I just had first Taxol infusion. Feet are really sore already.  I read where B-12 helps, gonna try that. Only 6 more weeks of this crap. I am over it.

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Feb 9, 2012 02:39PM phgraham wrote:

stillhere663, be sure to tell your onc about your feet.  She/he might want to try gabapentin, L-glutamine and or acetyl L carnetine for that. Gabapentin is prescription but the other two are over the counter.  My onc prescribed the gabapentin and said I can take the others but in the dose recommended on the package only.  I have heard that others do it differently, though.

Good luck with your Taxol!  I hope the next one is better.

Phyllis - "Be yourself, everyone else is already taken." Oscar Wilde...........Mets to sternum ....Radiation Clinical Trial: Aggressive Local Therapy for Limited Bone-only Metastasis to Improve Progression-Free Survival in Breast Cancer Patients Surgery 9/25/2011 Lumpectomy: Right Dx 10/3/2011, IDC, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 11/7/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxol (paclitaxel) Surgery 5/17/2012 Lumpectomy: Right Radiation Therapy 7/16/2012 Breast, Lymph nodes Dx 3/6/2013, IDC, <1cm, Stage IIA, Grade 3, 1/40 nodes, ER-/PR-, HER2- Surgery 3/18/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 4/21/2013 Ixempra (ixabepilone), Xeloda (capecitabine) Dx 7/7/2014, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2- Chemotherapy 8/6/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy 1/25/2015 External: Bone Dx 5/3/2016, IDC, Right, <1cm, Stage IV, metastasized to bone/other, Grade 3, 1/1 nodes, PR-, HER2-
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Feb 9, 2012 02:46PM orlandpark65 wrote:

I had terrible pains in legs and feet, could barely walk.  The Onc gave me a steroid and it made all the difference.  Ask for that.    My toe nails were strange while on Taxol besides that it was okay except for the 1st treatment. Everyone reacts differently.

Dx 1/11/2011, IDC, 6cm+, Stage IIIB, Grade 2, 15/20 nodes, ER+/PR+, HER2-
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Feb 10, 2012 04:57PM - edited Mar 31, 2013 04:08PM by TectonicShift

This Post was deleted by TectonicShift.
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Feb 12, 2012 06:21PM stillhere663 wrote:

I am right there with you. My side effects started on Friday after infusion on Wed. Neuropathy of the hands and feet (very  painful) and massive bladder spasms. I thought the abdominal shooting pains were my imagination.  I demanded Ativan to calm me down. Dr. recommended B-6, E and and analgesic for spasms. I am a little better.

This is so much worse than AC. They just don't tell you what to expect and I am scared. I have 3 more to go but my attitude is lousy and I wish I had never started this crap.

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Feb 14, 2012 04:07PM Ginger63 wrote:

I had AC DD in February through March of 2011 and Taxol DD April-May of 2011.  I did not have any horrible side effects of Taxol.  I had some tingling/numbness of my feet and fingers and after I finished the Taxol my fingernails and toenails were really thin and I lost the toenails on a couple of my toes.  After going through AC treatments I really didn't think the Taxol was horrible.  Good luck with everything, I hope you are spared from any horrible side effects.

Ginger63 Dx 12/14/2010, IDC, 1cm, Grade 1, 5/14 nodes, ER+/PR+, HER2-
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Feb 14, 2012 05:19PM stillhere663 wrote:

Trying to be tough. Thank you for support.

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Feb 14, 2012 10:48PM stillhere663 wrote:

I am having terrific pain from bladder spasms. I have IC but have been in remission for years. Not sure which of the drugs triggered it, but hope the next poor girl thinks to ask about side effects first.

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Feb 15, 2012 12:57AM Outfield wrote:

The "C" part of AC (Cytoxan or cyclophosphamide) has well-known bladder effects.  I don't know about Taxol.  

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Feb 15, 2012 08:29AM stillhere663 wrote:

Yes, I  read that. Is there any relief? I am about to embark on the doctor merry go round

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