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Topic: Circle of GLBT women 2013

Forum: LGBTQA+ With Breast Cancer —

A special and safe place for the LGBTQ community diagnosed with breast cancer to connect.

Posted on: Apr 1, 2013 09:08PM

EmilysMom wrote:

Colleen here from Michigan. I wrote a couple posts on here but have poured through them several times tonight and didn't find the area where I posted, so I am starting a new one.
Hopefully I won't lose this one!

Started 1/12 taxol today... Went much better than the AC did. Yikes.

Hope everyone is doing well with whatever treatment you have.
Be well,
C. In GR

C., aka: Emily's Mom Dx 12/3/2012, LCIS/ILC, Left, 4cm, Stage IIIC, Grade 2, 12/28 nodes, mets, ER+/PR+, HER2- Surgery 1/8/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/4/2013 AC + T (Taxol) Radiation Therapy 7/1/2013 Breast, Lymph nodes
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Apr 13, 2013 08:19PM - edited Apr 13, 2013 11:50PM by CancerWarrior3

Hi there Colleen, I hope this post finds you well and surviving!

I have re-writen my post, so that it make more sence. Sorry about my jibberish, I sometimes forget to read what I write and then embarrasse myself by clicking send.

Let me satart all over by introducing myself!

I am Jessica from Los Angeles, CA., but I live in Seattle, WA. I grew up in Barcelona, Spain, during my informative years (6 to 14). I don't have a whole lot in common with people here, because of where and how I grew up, but also because I have lived with Cancer for 28 years.

I am seeking other lesbians BC survivors, to talk to. Looking to build my community of friends. I am intrested in communicating about life, love and surviving, as a woman and a lesbian, in todays world!

I am a lesbian with cancer, and I don't know any other lesbian BC survivors. I am very aware of how Cancer is a solitary and a very loanly journey. But knowing that, it would be nice to be able to share my journey with women who understand.

Take care, j

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Apr 13, 2013 08:51PM EmilysMom wrote:

Cancer warrior,
Glad u got in touch.

When u say that they don't understand, do mean they aren't fighting BC or do u mean they are living I some other world without BC or just not getting it?
Sorry that I didn't seem to get it when u tried to explain it.

What part tx, etc, you going through right now?

It sure can bea lonely road,eh? Sucks a lot of times. I have a young daughter who had to go live with her other mom during all of this... That is my worst nightmare, although not surviving would be the worst, so I am grateful for that.

As u can see my tx at the bottom of here... Right now coming up on week three of twelve weekly taxols after going through there'd devils. Made it through that one, it it was horrendous.
Hang in there... Sure, feel free to chat any time.
Send me an email if u want. I thik there is a way to so that on here. Haven't done it yet, so don't know.

Peace to you,
C. In michigan

C., aka: Emily's Mom Dx 12/3/2012, LCIS/ILC, Left, 4cm, Stage IIIC, Grade 2, 12/28 nodes, mets, ER+/PR+, HER2- Surgery 1/8/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/4/2013 AC + T (Taxol) Radiation Therapy 7/1/2013 Breast, Lymph nodes
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Apr 13, 2013 11:59PM - edited Apr 14, 2013 12:06AM by CancerWarrior3

LOL, I am a spaz! I re-wrote my post to you, and if you want to go back and read it, I think it makes more since now!

I do hope you are tolerating your treatments well.

I am done with all treatments, and I am getting my port out next Friday, so I can be free to move about the country and live!

I also have a son, who is 18. He has been well cared for by his other mom, who I was partnered to for 13yrs. We broke up 13 years ago, and I have had 2 cancers since. My kid is slowly coming to terms with his life and the effects cancer has had on him.

There you go, me in a nutshell!

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Jun 24, 2013 08:09AM surlytits wrote:

Hey Colleen,

I'm Michelle and I live in Michigan too! And I'm doing the cancer dance as well. Not only am I a BC warrior, I'm young for having BC (32). I'm the first in my family and the first of my friends to be going through this. It's intense!

I just had surgery last week, double mast, with lymph node removal. Today I'm going back to have my drains removed. I did chemo before surgery, and now have to wait to see if I will have rad next, or more chemo.

I have noticed that there isn't a ton out there for glbt folks with cancer. When I was first diagnosed, I looked for support within my community, and found a lot of supportive friends and chosen family, but not a lot of folks who've been through it. So I began blogging my journey so that others looking for support or to feel less alone in the process might find some comfort or encouragement in a shared experience. It's also helped me process through some of the stuff that's come up along the way.

I went to a BC support group in town once. It was right after I got dx, and not only was I the youngest person there, I felt like I was probably the only queer person there.

There is a young adult support group in Ann Arbor, but its an hour commute, and I haven't been able to make it there yet.

It'd be nice to chat with other lesbians going through this!

How's Taxol treating you so far?

Michelle Dx 12/14/2012, IDC, 4cm, Stage IIIA, Grade 3, 9/17 nodes, ER+/PR+, HER2- Chemotherapy 1/31/2013 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel) Surgery 6/13/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy 7/6/2013 Breast, Lymph nodes
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Jun 27, 2013 12:27PM diana50 wrote:

Hi all
I am stage 4 after 11 years NED. Returned august 2012 in my spine. On letrozole and monthly zometa. Had a clear Pet/CT scan yesterday in remission.

So been a cancer survivor for 11 and half years. My motto is to just keep on Live each day and not get too far ahead. Practice. Lol

Not today cancer. Nope. Dx 2/26/2002, IDC, 1cm, Stage IIIC, Grade 3, 10/12 nodes, ER+/PR+, HER2- Surgery 3/3/2002 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 4/2/2002 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/5/2002 Hormonal Therapy 8/9/2002 Arimidex (anastrozole) Dx 8/30/2012, IDC, 1cm, Stage IV, mets, ER+/PR+, HER2- Radiation Therapy 10/1/2012 Bone Chemotherapy 7/7/2014 Taxol (paclitaxel) Chemotherapy 5/6/2015 Ixempra (ixabepilone) Chemotherapy 10/4/2015 Gemzar (gemcitabine) Hormonal Therapy 4/12/2016 Faslodex (fulvestrant)
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Jul 3, 2013 06:06PM Sparkytheimp wrote:


I am a bit in the dark as far as things go. I just had a mastectomy along with lymph node removal.

I am kind of looking for some lesbians to talk to this about. Right now I feel like a freak. I feel like no one is ever going to want to be with me, and I know that sounds ridiculous, but it still occurs within my thoughts :(

I am bi I guess, though never with more than one person at a time ever.

I am sort of suffering from feelings of rejection, even though it hasn't happened yet :(

Surgery 6/21/2008 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Dx 5/7/2013, DCIS, 3cm, Stage IIIA, 1/17 nodes, ER+/PR+, HER2-
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Aug 5, 2013 08:34PM elliejdan wrote:

Hey coleen
I'm originally from muskegon and now live in sc.
So good to see other family and fellow Michiganders
I just had my dmx and 16 axillary lymph nodes
This is so far the worst part of my cancer but I thought every part was lol. Is good to know we're not alone

Targeted Therapy 1/3/2012 Herceptin (trastuzumab) Surgery 7/11/2012 Mastectomy: Left, Right Dx 12/28/2012, IDC, 6cm+, Stage IIIC, Grade 3, 16/16 nodes, ER+/PR-, HER2+ Surgery 6/4/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Prophylactic ovary removal Chemotherapy AC + T (Taxol)

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