Log in to post a reply
Feb 16, 2015 09:58AM
I just realized its been almost 2 weeks since I posted an update. Time flies no matter the circumstances.
The Hospice RN came two times last week to check on my mom. She saw her on Wednesday and diagnosed worsening ascites. It is now creeping around to her back and also in the thighs. You can almost see where it stops because my mom is so thin from weight loss. The fluid is about to her diaphram and as a result she has very little air circulation in her lower lungs. In the upper lungs she has pretty good air circulation. We tried a 3 day stint if 40Mg of Lasix and that did nothing to reduce the swelling. At the same time she was on the increased lassie she was prescribed Potassium to offset the chemical reaction of the Lasix.
We were able to talk my mom into a hospital bed-- in fact it was really her idea -- we just put the seed there. :) I think it will make things easier. The bed is to be delivered today and will have an air mattress that kind of waves to avoid pressure sores. I am interested to see what that is about. I'll post a picture later. Mom's room looks like a hospital room -- all kinds of equipment in there. We're thankful for it-- it makes life so much easier. I can't imagine having to buy all this stuff to make my mom comfortable.
The RN came again on Friday (13th)- they had to take her off the 40mg of Lasix because it was not working and could cause kidney failure -- so it was stopped. I was able to get my mom in the shower yesterday but she is so winded. She can walk about 5 steps and then has to sit on her walker (has a bench seat in it-- another awesome piece of durable medical equipment offered by Hospice) After a rest of about 3-4 minutes she can walk a few more steps. Sometime she just barrels through it -- like she is mad about not being able to go further-- but then she pays for it by gasping and asking me to turn up the liters on the oxygen machine. She also has fluid in her pleural cavity that has to be drained-- thank GOD we can drain that or she would be really miserable all the time.
I hate seeing her like this and I am so nervous about what is happening to her. I talked to the RN about getting my sister here-- is it time? She said she did not think it would be this week. That just scared me because I didn't think it would be this soon. It almost sounds like she is saying it might be next week. I have scoured the boards looking for an experience with Ascites so I know what to expect. The RN just tells me her organs will not be able to withstand the pressure and she may get very blown up with the fluid. She says I should just watch her and if she has difficulty breathing to give her the morphine and try to calm her down. We have had a few episodes of manic behavior when oxygen cannula came out of her nose and she was struggling to breathe. It must be so scary for her. I know she is ready to go and not afraid to die -- I guess its just human nature to hang on.
I am reading Final Gifts and it is helping me a great deal. I suggest anyone dealing with a dying loved one read it. I don't feel so alone.
I hope this is not upsetting anyone -- I do not want people to be afraid of what happens at the end. I will tell you my mother is in NO PAIN. She simply has a difficult time breathing. When she is sitting and doing nothing we are able to talk and laugh. I just dread the times we have to try to make it to the potty or to the shower because of how her body handles it.
I will keep you posted and send a picture of the fabulous bed we can't wait to get! :)
4/2008, DCIS, 1cm, Stage IV, 0/2 nodes, ER+/PR-, HER2+
4/1/2008 3DCRT: Breast
4/30/2008 Lumpectomy: Left
6/30/2008 Femara (letrozole)
12/31/2012 Cytoxan (cyclophosphamide), Taxol (paclitaxel), Xeloda (capecitabine)